Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 We are finally here in Utah with my grand daughter. She is stable. last night she was really critical. But things have settled down a little. Right now her heart strength is only 17. 60 is normal. They say that if she doesn't start to improve, she will be put at the top of the heart transplant list. Then it is just a waiting game. The doctors don't know why this has happened. They did an echo cardiagram today hoping to find an answer, but haven't been able to figure it out. My daughter and I discussed today asking them to check for mito problems. I wish I had a diagnosis so I could be more helpful. Any way I will try to keep you updated. Hopefully I will be able to find access to the internet at the hospital. Joanne Quote Link to comment Share on other sites More sharing options...
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