DAWN and others--MEDICAL RECORDS

[Guest guest]

I would suggest also that you get a copy of your medical records to keep

with you--all of them. I still need to get all of mine from Dr Tick but got

some when we were there in November. I was looking for a copy of my mothers

hospital records from 1988 that I know were in my sisters file from 1996.

Dr Tick was finally able to locate my sisters file and I got some of her

info but it had gotten caught in a flood at his old office in Thiensville

and a lot of the stuff was unreadable. He is requesting the stuff from

Froedert again but some of the stuff his lab did cannot be redone. He had

said that he hopes his new space will be ready soon.

Also, my son's lactic acid tests from 1997 were in my file. When we first

went back to him in the fall of 2002 with his constipation problems and

questioned the melas he said that never had had a lactic acid test. I

reminded him that they did one on him and me at the Ozaukee hospital in 1997

when I first had my blood drawn for the melas test.

Anyway, I now have most of my records but if you get copies right away it

really helps. Sometimes some of the offices charge a small photocopying fee

but then you have them.

Janet Sample

New Dr !!!!

> >

> >

> > > Some of you might recall that the Mito Dr I was seeing diagnosed

> me

> > > with dysautonomia, but felt my gait and muscle issues are

> > > psychosomatic. My PT proved this to be wrong. My PCP refered me

> to

> > > Dr Tick for suspected Mito, she does not feel my issues are

> > > psychosomatic.

> > >

> > > So far I am impressed with Dr Tick. he is not traditional in

> anyway,

> > > which I like. He ahs not wasted his time going over the basics

> and

> > > has dove right into what is important. He told me he may not

> find an

> > > answer, but that does not maean there is nothing wrong. He said

> > > there were a lot of tests that need to be done that have not. He

> > > gave me an order for 21 different labs to be done at children's

> > > hosp in Milw. including a mito DNA test. He also ordered an emg

> to

> > > be done by a specific neurologist who is good at it. I feel so

> > > relieved to have someone take this more seriously. I was so

> sick of

> > > getting one-two test every 6-8 months. The best part is he is

> only

> > > 45 min from my home.

> > >

> > > Dawn

> > >

> > >

> > >

> > >

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> > >