Re: New to group with questions

[Guest guest]

In a message dated 12/17/2004 1:19:05 PM Eastern Standard Time,

bcbmsts@... writes:

> Thyroid Peroxidase >70.0

>

Did the doctor tell you that you have Hashimotos?

Cindi

[Guest guest]

In a message dated 12/17/2004 1:28:57 PM Eastern Standard Time,

bcbmsts@... writes:

> Is it common for

> Hypo's to have PCOS also?

PCOS is often found with folks with Hashi's.

cindi

[Guest guest]

> In a message dated 12/17/2004 12:54:44 AM Eastern Standard Time,

> bcbmsts@y... writes:

>

> > I now missing some other

> > hormone or getting too much of something to cause all this? Or

am I

> > not being treated fully for the hypo? Would Armour help me?

> >

>

> I don't know about the fuzzy hair...but the cholestrol is probably

hypo

> related. What I do know is that Armour usually works better for

anybody. I would

> encourage you to ask for it. Do you have your recent labs ....and

hopefully

> they did Free T4 and Free T3? If so, post any labs you have.

> Cindi

>

Thyroid Peroxidase >70.0

Thyroglobulin 4.9

This was done approx. 6 weeks after starting meds:

T uptake 27.80

T4 8.4

T4 Free 1.17

TSH 3.68

And a sonogram that showed a Multinuodular goiter with lobes

minimially enlarged.

[Guest guest]

Yes, I do have Hashimotos

Chris

> In a message dated 12/17/2004 1:19:05 PM Eastern Standard Time,

> bcbmsts@y... writes:

>

> > Thyroid Peroxidase >70.0

> >

>

> Did the doctor tell you that you have Hashimotos?

> Cindi

>

>

>

[Guest guest]

I've never had Hashimotos even diagnosed or tested for. Where do you people get

doctors who test & diagnose for that or Graves disease or whatever else? I was

lucky to get a doctor who thought to test me for thyroid dysfunction when none

other even thought to years ago. But after putting me on Synthroid, she never

suggested any other tests for anything else. I must pick doctors like I picked

men......bad track record....'nuff said about that.

Re: New to group with questions

Yes, I do have Hashimotos

Chris

[Guest guest]

In a message dated 12/18/2004 1:44:37 AM Eastern Standard Time,

MamaMaha@... writes:

> . Where do you people get doctors who test & diagnose for that or Graves

> disease or whatever else?

a regular doctor can order the blood tests for thyroid antibodies which

indicates hashi's.

cindi

[Guest guest]

In a message dated 12/18/2004 5:32:36 AM Eastern Standard Time,

artisticgroom@... writes:

> I have often wondered if other illnesses have this same lack of care or if

> we're just too easy to shove under the table as we forget and go to sleep in

> between our doctor visits.

valerie,

i don't think it's just us. my daughter has PKD (polycystic kidney disease)

and all that forum there are people all the time complaining about the lack of

caring and good care from their nephrologists. it's an epidemic i think.

doctors who could care less about their patients.

cindi

[Guest guest]

>>I must pick doctors like I picked men<<

No believe me it is not your choice of doctors! it is that there are so FEW

doctors out there that even have a CLUE about thyroid disease. I lucked out WAY

long ago when I first went severely hypo and by accident went to a DO. A GOOD

one. He put me on Armour without even a test and told me how to adjust my meds

myself by symptoms. I was about 19 years old! Had he not died and then I was

convinced to take Synthroid for so many years oh how much different my life

would have been! But in all those years since then till I turned 44 I was in

hypo HELL and was convinced by my doctors either NONE of them had succeeded in

finding my optimal Synthroid dosage or it was " something else " wrong as my labs

were " normal " ...TWENTY-FIVE years of my life gone and in that time I saw SO

many doctors and so many diets and so many pain pills, muscle relaxants,

anti-depressants, diet pills and yes, shrinks too. I even tried street drugs to

feel normal and became a speed addict for a few years trying to feel like I had

some energy. Very sad what poor medicine caused me to do with my life. I am just

thankful I finally got wise to the horrid lack of medical care we thyroid people

actually have. I have often wondered if other illnesses have this same lack of

care or if we're just too easy to shove under the table as we forget and go to

sleep in between our doctor visits. Lets face it, we are not demanding about our

own health till we learn there is a possibility for a better life. I think more

of us that HAVE gotten better need to start raising a real stink about our prior

care, but we are so grateful to have a life back we don't fuss about it even

then.

*Artistic Grooming * Hurricane, WV

Fat cat? Diabetes? Listowner for overweight or hypothyroid cats

http://groups.yahoo.com/group/hypokitties/

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[Guest guest]

Caroline, it took 3 dr's for anybody to even consider testing for antibodies for

me. #3 Dr Poophead is the one who wanted to know about the antibodies because I

was self medicating with Armour. If not for that, I don't think anybody would

have honestly cared. She was just trying to prove me 'wrong' for self

medicating.

SandyE~Houston

Re: New to group with questions

Yes, I do have Hashimotos

Chris

[Guest guest]

In a message dated 12/18/2004 5:38:32 PM Eastern Standard Time,

bcbmsts@... writes:

> It wasn't until

> I went to the ER for an asthma attack & I started telling the doc

> about how sick I've been that she decided to run the test for the

> thyroid....and sure enough, I was right.

>

wow. I was also in the ER room with an asthma attack in the year before

being diagnosed...but no one mentioned thyroid. I haven't had any problem with

asthma since being on Armour.

Cindi

[Guest guest]

Caroline wrote: >>I must pick doctors like I picked men<<

s replied: >>>No believe me it is not your choice of doctors! it is that

there are so FEW doctors out there that even have a CLUE about thyroid

disease.<<<

Yes I know. I haven't found any truly good thyroid or endocrine doctors either.

Does this mean that there are too few good men out there too then? No wonder I

had such bad luck with them then...LOL! Gee what does that say about male

doctors? Which is why I've chosen female drs as much as possible the past many

years. Specially gyns & GPs.

I know its sad when we find an understanding (if not knowledgeable) doctor &

then they either retire, get sick, disabled or die or move away to another town.

That's sad & specially when you've been misdiagnosed all those many years...how

horrible.

I'm sure there's thousands of others on street drugs too because pf undiagnosed

or misdiagnosed illnesses by doctors. People then often turn to self-medicating

trying anything to feel better, lacking the medical knowledge of their condition

themselves.

I've also gone the route (for over 40 years) of OTC & Rx pain pills, muscle

relaxors, antidepressants, experimented with scads of natural supplements, did

juice fasting, enemas, had colonics, chiropractic, accupuncture, Reiki healings,

learned hatha yoga, Feldenkrais, aerobics, self-massage, Chi Qong, chanting,

meditation, self-hypnosis & also smoked pot for a number of years to ease the

pain & depression/anxiety & carry on with life as best I could.

And it was only about 6 years ago one lady doctor finally said I had low thyroid

& put me on Synthroid which was better than a kick in the head but made me worse

after the first year or so on it which I didn't even realize back then. Because

heck, I didn't know enough to even question if my thyroid was still a problem

when my test results were " normal " . Or if it was the original problem for that

matter, since a childhood neck injury which I've recently learned can cause

thyroid problems due to pinched nerves & lack of proper energy flow.

So my health concerns since 1995, except for occasional chiropractic

adjustments, mostly went undertreated is maltreated when the worst of my

symptoms were surfacing Big Time again. Mostly because I was so wrapped up in

caregiving my mentally/physically disabled ailing husband & trying to find ways

to help him & keep track of his medical & health needs & records so I could

speak coherently about them at his doctors & with his Workers Compensation

attorney because with his Dementia, he had memory loss & wasn't very coherent

most of the time which kept getting worse & then he became increasingly violent

& verbally abusive too.

With all that super stress my health went down the tubes even further so that I

was beginning to feel like a hypochonriac & doctors who kept pushing

antidepressants, sleep aid Rx, other drugs & advising counseling & more exercise

were convincing me it was true.

I'm sure my thyroid dysfunctioned even more then & I never knew it & my doctor

at that time never put 2+2 together to figure it out either. And neither did

future doctors I had to see when I had to move/relocate for a few years until I

finally bought this place & settled here & have seen several doctors since being

here too & never knew what to even ask them about related to the endorcrine

system or thyroid until the last couple of months from this group & the HRT

group.

I just figured the Synthroid & Estradiol I was on were doing their jobs & the

doctors knew to increase or decrease my dosage depending on the blood test

results. So what a waste of my life time & money on these know-nothing doctors

all these many years!!It makes me sick with rage to even think about it.

Caroline

----- Original Message -----

From: T

>>I must pick doctors like I picked men<<

No believe me it is not your choice of doctors! it is that there are so FEW

doctors out there that even have a CLUE about thyroid disease. I lucked out WAY

long ago when I first went severely hypo and by accident went to a DO. A GOOD

one. He put me on Armour without even a test and told me how to adjust my meds

myself by symptoms. I was about 19 years old! Had he not died and then I was

convinced to take Synthroid for so many years oh how much different my life

would have been! But in all those years since then till I turned 44 I was in

hypo HELL and was convinced by my doctors either NONE of them had succeeded in

finding my optimal Synthroid dosage or it was " something else " wrong as my labs

were " normal " ...TWENTY-FIVE years of my life gone and in that time I saw SO

many doctors and so many diets and so many pain pills, muscle relaxants,

anti-depressants, diet pills and yes, shrinks too. I even tried street drugs to

feel normal and became a speed addict for a few years trying to feel like I had

some energy. Very sad what poor medicine caused me to do with my life. I am just

thankful I finally got wise to the horrid lack of medical care we thyroid people

actually have. I have often wondered if other illnesses have this same lack of

care or if we're just too easy to shove under the table as we forget and go to

sleep in between our doctor visits. Lets face it, we are not demanding about our

own health till we learn there is a possibility for a better life. I think more

of us that HAVE gotten better need to start raising a real stink about our prior

care, but we are so grateful to have a life back we don't fuss about it even

then.

[Guest guest]

Oh that's sad, Sandy. I asked my dr to test for antibodies & other things I

learned of from this group a week or so ago but haven't heard back from here

yet. She likely hasn't a clue what the results even mean, let alone know how to

prescribe for any of it is what I'm figuring since she called me the next day

after she got my TSH & T4 results. But I haven't heard Word One from her on

these latest tests she never even suggested but which I asked for that include

antibodies, FT3/FT3, ferritin & other things. I'm going to have to call her on

Monday & no doubt make another appointment to go over the results with her.

Tho I don't even know what to discuss or suggest to her that I might need. I

will ask her to prescribe at least 2 grains of 'real " Armour for me tho instead

of the generic she got the first time in that puny 30mg dose.

Re: Re: New to group with questions

Caroline, it took 3 dr's for anybody to even consider testing for antibodies

for me. #3 Dr Poophead is the one who wanted to know about the antibodies

because I was self medicating with Armour. If not for that, I don't think

anybody would have honestly cared. She was just trying to prove me 'wrong' for

self medicating.

SandyE~Houston

[Guest guest]

I guess trying to prove you wrong to get the tests is better than not doing it

at all. These doctors....bah humbug!!

----- Original Message -----

From: sandy

Caroline, it took 3 dr's for anybody to even consider testing for antibodies

for me. #3 Dr Poophead is the one who wanted to know about the antibodies

because I was self medicating with Armour. If not for that, I don't think

anybody would have honestly cared. She was just trying to prove me 'wrong' for

self medicating.

[Guest guest]

I just happened to get lucky. I had gone into my regular doctor

over a year ago complaining of hypo symptoms & he told me I was

fine. Meanwhile I kept getting sicker and sicker. It wasn't until

I went to the ER for an asthma attack & I started telling the doc

about how sick I've been that she decided to run the test for the

thyroid....and sure enough, I was right.

> I've never had Hashimotos even diagnosed or tested for. Where do

you people get doctors who test & diagnose for that or Graves

disease or whatever else? I was lucky to get a doctor who thought to

test me for thyroid dysfunction when none other even thought to

years ago. But after putting me on Synthroid, she never suggested

any other tests for anything else. I must pick doctors like I picked

men......bad track record....'nuff said about that.

> Re: New to group with questions

> Yes, I do have Hashimotos

> Chris

>

>

[Guest guest]

So that was a lucky trip to the ER for you then. Sometimes that's the way of it.

----- Original Message -----

From: bcbmsts

I just happened to get lucky. I had gone into my regular doctor

over a year ago complaining of hypo symptoms & he told me I was

fine. Meanwhile I kept getting sicker and sicker. It wasn't until

I went to the ER for an asthma attack & I started telling the doc

about how sick I've been that she decided to run the test for the

thyroid....and sure enough, I was right.