RE: seeking advice, suggestions, ideas, anything!

[Guest guest]

Mike,

There are many thyroid replacement drugs on the market. You should try the

various ones until you find one that works with your body. I could not

tolerate the synthetic drugs and went on the natural form (Armour). Most of

the side effects you are descibing I had on synthyroid and Leveoxyl and

Unithyroid. I would recommend asking the doc for a different brand and work

through the various brands until you find one that works for you. Hope this

helps.

Regards,

LaCretia

>

>Reply-To: NaturalThyroidHormones

>To: NaturalThyroidHormones

>Subject: seeking advice, suggestions, ideas,

>anything!

>Date: Thu, 09 Dec 2004 06:38:13 -0000

>MIME-Version: 1.0

>X-Originating-IP: 24.31.255.204

>X-Sender: mbennett34@...

>Received: from n3a.bulk.scd.yahoo.com ([66.94.237.37]) by

>mc11-f34.hotmail.com with Microsoft SMTPSVC(5.0.2195.6824); Wed, 8 Dec 2004

>22:41:12 -0800

>Received: from [66.218.69.4] by n3.bulk.scd.yahoo.com with NNFMP; 09 Dec

>2004 06:38:16 -0000

>Received: from [66.218.66.156] by mailer4.bulk.scd.yahoo.com with NNFMP; 09

>Dec 2004 06:38:16 -0000

>Received: (qmail 82806 invoked from network); 9 Dec 2004 06:38:13 -0000

>Received: from unknown (66.218.66.167) by m16.grp.scd.yahoo.com with QMQP;

>9 Dec 2004 06:38:13 -0000

>Received: from unknown (HELO n17a.bulk.scd.yahoo.com) (66.94.237.46) by

>mta6.grp.scd.yahoo.com with SMTP; 9 Dec 2004 06:38:13 -0000

>Received: from [66.218.69.5] by n17.bulk.scd.yahoo.com with NNFMP; 09 Dec

>2004 06:38:13 -0000

>Received: from [66.218.67.147] by mailer5.bulk.scd.yahoo.com with NNFMP; 09

>Dec 2004 06:38:13 -0000

>X-Message-Info: 6sSXyD95QpUyh7kKBIXWzeCQ/lsalq4M

>X-Yahoo-Newman-Property: groups-email

>X-Apparently-To: NaturalThyroidHormones

>User-Agent: eGroups-EW/0.82

>X-Mailer: Yahoo Groups Message Poster

>X-eGroups-Remote-IP: 66.94.237.46

>X-Yahoo-Profile: mbennett34

>Mailing-List: list NaturalThyroidHormones ; contact

>NaturalThyroidHormones-owner

>Delivered-To: mailing list NaturalThyroidHormones

>Precedence: bulk

>List-Unsubscribe:

><mailto:NaturalThyroidHormones-unsubscribe >

>Return-Path:

>sentto-7991139-42052-1102574294-lacretiamo=hotmail.com@...

>X-OriginalArrivalTime: 09 Dec 2004 06:41:12.0076 (UTC)

>FILETIME=[12B58CC0:01C4DDBA]

>

>

>

>Hi, I don't really know what to say here. I've seen numerous dr's

>over the past 3 mos and they all tell me basically that i can't be

>experiencing any kind of reaction from levoxyl, that it's something

>else causing it. I am supposed to be taking 100 mcg of levoxyl a

>day, but i can only tolerate 50. I've tried numerous time to take

>the 100, but after 3 days or so it is just too strong in my system.

>I'm not supposed to feel it at all or to be able to even tell it's

>there. It causes panic attacks, extreme anxiety, about 8 hrs after i

>take it i get very hot like i was when i was hyperthyroid. An hour

>and a half or so after i take it i feel like my brain is cooking, i

>feel very speedy, as if i've taken several caffine pills. I don't do

>well on caffine either, in fact i completely cut caffine out of my

>diet a few years ago. One cup of coffee makes me all shaky and

>nervous. I stopped taking the levoxyl all together for 4 days a

>couple weeks ago just because i felt i had to, and after a couple

>days all the anxiety went away. I felt sooooo much better, but after

>the 4th day or so the hypo symptoms came back as far as the stiff

>muscles, and muscle cramps, and my face feeling puffy, things like

>that. The levoxyl definately helps with the hypo symptoms, but i

>don't want to feel like i'm losing my mind in order for my body to

>feel normal. I'm going to have to take this stuff for the rest of my

>life as i'm sure is the case with most if not all of us, i just want

>to take something that i can take, i don't care what it is. Does

>anyone have any idea why levoxyl would cause these side effects in me

>or what i can tell the endo in order for him to take it seriously,

>what kind of tests i can have him run in order to determine if

>somethign else is not right. It's almost as if i have too much t3 in

>my body after 8 hrs or so, i don't know it's so hard to describe. My

>mother, and one sister both take synthroid and " can't even tell it's

>in their system " i whish that were the case with me. I don't mind

>taking whatever i need to take, i just want to be able to take it. I

>don't currently have insurance, so basically i have to deal with this

>one endocranologist. So far he hasn't been at all sympathetic, i've

>only been able to talk to his nurse though thus far. She relays the

>messages, and all i've gotten from him is " keep taking it " I've

>gained 40 lbs since the rai treatments 4 mos ago or so, i want to

>start working out again, I'd love to have my life back. I actually

>felt better when i hade graves i think. needless to say i'm more

>than a little frustrated. I may have repeated some of this in earlier

>posts, and if it's getting redundent i appologize, i'm just at a loss

>as to what to do here. I just want to be able to go out and function

>everyday. Anyway, thanks for you time, and advice.

> Mike

>

>

>

>

>

>

>

>

[Guest guest]

Thanks for the advice. Adrenals make sense. I had about 147

allergies when i was a kid. I will definately have my adrenals and

Ferritin checked. It definately gives me a place to start. It does

feel like the levoxyl builds up in my system very quickly and sort of

sets there cooking my brain. Also i was divorced around 4 years ago

right before all of the thyroid problems showed up. I've read that a

high stress episode can cause the adrenals to become fatigued. It all

makes sense. I am located in Kansas city, Mo. I'm checking the links

section now to see about the adrenal saliva test. Thanks again.

>

> Hi Mike. I'm really sorry to read about your current frustration.

> Let me assure you that this WILL pass eventually. To Sandy's great

> response, I also want to add that your symptoms sound strongly like

> an overreacting adrenal gland, as well, or can even be the result

of

> sluggish adrenals. If your adrenals aren't functioning properly,

the

> thyroid hormones OVERbuild in your system, causing those kind of

> symptoms. There is a good adrenal test from a lab called ZRT--it's

a

> saliva test, and you don't need a prescription. You can check it

out

> in our LINKS section. It will give you more information to figure

> this out.

>

> Additionally, you might want to get your Ferritin tested. LOTS of

us

> have had intensely low Ferritin, which can also cause the symptoms

> you describe, even though they sound more like an adrenal issue.

>

> You need to chuck those Endo's. They are the absolute worst for

good

> thyroid care. The fact that you are on Levoxyl, which is a T4-only

> med, and not Armour is another good reason to find a better doc.

> Where are you located?

>

> I'm sure you will get other good responses, too, and will

eventually

> figure this all out. And Mike, once you do get a handle on this,

> please don't be complacent about being on a T4-only med, even if

> your sister and mom are. Armour is a FAR FAR better thyroid

> treatment than T4-only meds. It gives you exactly what your own

> thyroid would be giving you. Your sister and mother have symptoms

> related to an inferior treatment that they are probably not aware

of.

>

> There is a good reason this group is here: because we found out the

> hard way about T4-only meds. They are a poor treatment.

>

> Janie

>

> >

> > Hi, I don't really know what to say here. I've seen numerous

dr's

> > over the past 3 mos and they all tell me basically that i can't

be

> > experiencing any kind of reaction from levoxyl, that it's

> something

> > else causing it. I am supposed to be taking 100 mcg of levoxyl a

> > day, but i can only tolerate 50. I've tried numerous time to

take

> > the 100, but after 3 days or so it is just too strong in my

> system.

> > I'm not supposed to feel it at all or to be able to even tell

it's

> > there. It causes panic attacks, extreme anxiety, about 8 hrs

> after i

> > take it i get very hot like i was when i was hyperthyroid. An

> hour

> > and a half or so after i take it i feel like my brain is cooking,

> i

> > feel very speedy, as if i've taken several caffine pills. I

don't

> do

> > well on caffine either, in fact i completely cut caffine out of

my

> > diet a few years ago. One cup of coffee makes me all shaky and

> > nervous. I stopped taking the levoxyl all together for 4 days a

> > couple weeks ago just because i felt i had to, and after a couple

> > days all the anxiety went away. I felt sooooo much better, but

> after

> > the 4th day or so the hypo symptoms came back as far as the stiff

> > muscles, and muscle cramps, and my face feeling puffy, things

like

> > that. The levoxyl definately helps with the hypo symptoms, but i

> > don't want to feel like i'm losing my mind in order for my body

to

> > feel normal.

[Guest guest]

Mike,

Did you look for the Levoxyl prescribing information online? That

might have some info on side effects.

Also you might want to look around about.com. There will probably be

info there.

Good luck

Louise

>

> That sounds like an excellent idea, I've tried though.

Unfortunately

> I don't have insurance currently, so i'm going through the county

> hospital, they only have one endo and he refuses to change the

med.

> He says it can't possibly be bothering me. I've done walk in's and

> even tried the emergency room to get it changed, but they all say

> he's the " expert " and refuse to step on his toes. That's the

> frustrating thing. I finally have an appt with him next thursday

> after 3 months of trying to take this stuff, and was hoping for

some

> suggestions of tests i can have him run to confirm that i can't

take

> this med. I've tried everything i can think of to get them to

change

> it. I don't even care what i take i just want to be able to take

it

> and not have the cure be worse than the disease.

>