Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Hi- Could you all please take me off the list? For some reason, since yesterday, I'm receiving about 20 e-mails a day from you....thanks so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Janie, It's so ironic that you are asking this question because I am in the process of writing a book about plagio! One of the chapters will be about preventing plagio in a newborn baby. The things you've listed are right on track with what needs to be done. You also might want to alternate your baby's position in the crib each night so he/she won't get used to one side. Alternating positions when you feed your baby could also help. Definitely implement lots of tummy time as early as possible and be limited in the amount of time spent in car seats, bouncy seats, swings, and strollers. If you notice your baby starting to favor one side over the other, you can attach toys onto the crib to focus his/her attention. Position your baby to where he/she has to look in the opposite direction from the side he/she seems to be favoring. If you gather anymore info that could help with this, let me know! Preuett From: "Janie P." <rjjpencek@...>Reply-Plagiocephaly To: "Plagiocephaly " <Plagiocephaly >Subject: Preventing plagio in a new babyDate: Thu, 1 Jun 2006 11:44:53 -0700 (PDT) Hi all, I am 11 weeks preg. and I want to do everything from day one for this baby not to have plagio. I know you can't help inuterine plagio (like my son was born with). My son had severe brachio and is still wearing his second helmet (he started wearing one in nov. 05), which is scheduled to come off permantly at the end on June 06. The Doc Band has helped tremendously, but I dont't want another baby to go through what he did. My 7 yr old didn't have plagio at all! I want to use memory foam under this baby's head anytime he/she is on their back in swings, carsears, bouncy chairs, floor,sleeping, etc. I also want to incorporate lots of tummy time. I also want to look into a bumbo baby seat to prop he/she up in when it's old enough to keep he/she out of the bouncy seat as much. Does anyone have any other ideas that might help prevent plagio on a new baby? I didn't know about plagio w/ my son, or I would have tried my best to correct his misshaped head that he was born with. Unfourtanalty it was too severe for much repo to help. Thanks in advance, Janie EDD 12-23-06 doc band since 11-05, second band on since 3-06 Jessi 7 yr. old __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Our plastic surgeon recommends NightForm for repositioning at night to avoid plagio: http://www.nightform.com/ Hope this helps! Molly -----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Janie P.Sent: 1 June 2006 11:45 AMPlagiocephaly Subject: Preventing plagio in a new baby Hi all, I am 11 weeks preg. and I want to do everything from day one for this baby not to have plagio. I know you can't help inuterine plagio (like my son was born with). My son had severe brachio and is still wearing his second helmet (he started wearing one in nov. 05), which is scheduled to come off permantly at the end on June 06. The Doc Band has helped tremendously, but I dont't want another baby to go through what he did. My 7 yr old didn't have plagio at all! I want to use memory foam under this baby's head anytime he/she is on their back in swings, carsears, bouncy chairs, floor,sleeping, etc. I also want to incorporate lots of tummy time. I also want to look into a bumbo baby seat to prop he/she up in when it's old enough to keep he/she out of the bouncy seat as much. Does anyone have any other ideas that might help prevent plagio on a new baby? I didn't know about plagio w/ my son, or I would have tried my best to correct his misshaped head that he was born with. Unfourtanalty it was too severe for much repo to help. Thanks in advance, Janie EDD 12-23-06 doc band since 11-05, second band on since 3-06 Jessi 7 yr. old __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Molly - Thanks for recommending this. I just ordered one to try and help repo my son. I guess anything is worth a try. Thanks, > > Our plastic surgeon recommends NightForm for repositioning at night to avoid > plagio: http://www.nightform.com/ > > Hope this helps! > > Molly > > Preventing plagio in a new baby > > > Hi all, > > I am 11 weeks preg. and I want to do everything from day one for this baby > not to have plagio. I know you can't help inuterine plagio (like my son was > born with). My son had severe brachio and is still wearing his second > helmet (he started wearing one in nov. 05), which is scheduled to come off > permantly at the end on June 06. The Doc Band has helped tremendously, but I > dont't want another baby to go through what he did. My 7 yr old didn't have > plagio at all! I want to use memory foam under this baby's head anytime > he/she is on their back in swings, carsears, bouncy chairs, floor,sleeping, > etc. I also want to incorporate lots of tummy time. I also want to look > into a bumbo baby seat to prop he/she up in when it's old enough to keep > he/she out of the bouncy seat as much. Does anyone have any other ideas that > might help prevent plagio on a new baby? I didn't know about plagio w/ my > son, or I would have tried my best to correct his misshaped head that he was > born with. Unfourtanalty it was too severe for much repo to help. > > Thanks in advance, > > Janie > EDD 12-23-06 > doc band since 11-05, second band on since 3-06 > Jessi 7 yr. old > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 the same thing happened to me when I first joined. Click on " edit membership " at the top of the page and then scroll down to where it says " message delivery " Click on no emails. You'll stop getting a billion emails a day > > Hi- > Could you all please take me off the list? For some reason, since > yesterday, I'm receiving about 20 e-mails a day from you....thanks so much. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 If you are writing a book, will you please consider getting in touch with Dr. Goodrich (www.jamestgoodrich.net) who is a plagio expert at Montefiore Children’s Hospital in the Bronx. He’s an expert on plagio and I went to see him for a second opinion for my son. My son was diagnosed with plagio and tort when he was five days old. During the pregnancy, his head was wedged against my right rib cage with the right side of his body facing out. I was told by Dr. Goodrich that plagio cases caused in uterus are almost always intractable and nearly impossible to prevent or correct without medical intervention (i.e. Doc band or other helmet). While repositioning would help reduce further flattening to my son’s head, it would not remedy the flattening and facial asymmetry from the pregnancy. Dr. Goodrich told me that they usually recommend parents to try repo for 2-3 months – before the first six months – even though repo almost never works for in uterus cases. If parents have seen little to no improvements from repo, then he recommends the Doc band. While acquired plagio might be avoidable or preventable, plagio cases from birth are often unavoidable or preventable, which I hope you will consider in your book. This is important because plagio cases due uterine constraints are often forgotten by the medical community. Moreover, many parents are led to believe that plagio can be remedied by them when it sometimes is out of their ability to rectify and makes them feel like a failure when they cannot rectify their baby’s plagio. Meanwhile, I’d love to help you with your book in any way I can. Please feel free to e-mail (cdfox@...) off the blog if you like. Carolyn in NYC Mum to Malcolm – Doc band #1 3/27, Doc band #2 6/9 From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Jim Preuett Sent: Thursday, June 01, 2006 4:01 PM Plagiocephaly Subject: RE: Preventing plagio in a new baby Janie, It's so ironic that you are asking this question because I am in the process of writing a book about plagio! One of the chapters will be about preventing plagio in a newborn baby. The things you've listed are right on track with what needs to be done. You also might want to alternate your baby's position in the crib each night so he/she won't get used to one side. Alternating positions when you feed your baby could also help. Definitely implement lots of tummy time as early as possible and be limited in the amount of time spent in car seats, bouncy seats, swings, and strollers. If you notice your baby starting to favor one side over the other, you can attach toys onto the crib to focus his/her attention. Position your baby to where he/she has to look in the opposite direction from the side he/she seems to be favoring. If you gather anymore info that could help with this, let me know! Preuett From: " Janie P. " <rjjpencek@...> Reply-Plagiocephaly " Plagiocephaly " <Plagiocephaly > Subject: Preventing plagio in a new baby Date: Thu, 1 Jun 2006 11:44:53 -0700 (PDT) Hi all, I am 11 weeks preg. and I want to do everything from day one for this baby not to have plagio. I know you can't help inuterine plagio (like my son was born with). My son had severe brachio and is still wearing his second helmet (he started wearing one in nov. 05), which is scheduled to come off permantly at the end on June 06. The Doc Band has helped tremendously, but I dont't want another baby to go through what he did. My 7 yr old didn't have plagio at all! I want to use memory foam under this baby's head anytime he/she is on their back in swings, carsears, bouncy chairs, floor,sleeping, etc. I also want to incorporate lots of tummy time. I also want to look into a bumbo baby seat to prop he/she up in when it's old enough to keep he/she out of the bouncy seat as much. Does anyone have any other ideas that might help prevent plagio on a new baby? I didn't know about plagio w/ my son, or I would have tried my best to correct his misshaped head that he was born with. Unfourtanalty it was too severe for much repo to help. Thanks in advance, Janie EDD 12-23-06 doc band since 11-05, second band on since 3-06 Jessi 7 yr. old __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Other ideas for early prevention techniques ... Let you newborn nap on you (where you can monitor for SIDS). This way they can do tummy napping and get a good stretch in the neck. Alternate which direction they turn their head. Before they can do full fledge tummy time let them do little push-ups on your chest while you recline. Just lifting their heads an inch is hard work and great for them even at a few days old. Tummy time can start as soon as the umbilical cord falls off or sooner (it's sometimes uncomfortable for them otherwise). In the beginning it's usually just a little face to face lay on the bed or floor and they don't lift their head much but you can encourage them to attempt to turn their head. Just always remember alternate positions! Move the swing, bouncy, car seat, etc. With more than one child it's hard not to have some time in these. The key is to keep range of motion in the neck and to not get a preference set. Once flatness starts it's sometimes hard to overcome because it becomes easier to rest there. We did use memory foam in the bouncy, swing, pack-n-play, and crib from 2 months. If I have another child we will use it from the beginning. We used 1-2 " thick low grade memory foam (read cheap - LOL), $20 for twin size at Target. Infants don't weigh a lot so it's not necessary to get the really expensive stuff. Even with all of these sometimes it doesn't work. Case in point - my 2nd child. She didn't appear to have any major inutero like my first but we saw signs of tort at 3 months. In looking back we believe she had some inutero and the tort which undermined our efforts. However, we do believe she was much milder than she would have been due to our diligence. I tend to carry my babies low in utero even though I am almost 5' 9 " so they should ahve plenty of room. na dropped early and was engaged (i.e. +1 in birth canal) for 10 days. Kiersten luckily didn't engage until 24 hours prior to brith (+2 station). na, DOC Grad X2 Feb 04 Kiersten, DOC Grad Apr 06 www.thefilyaws.com/plagio/plgaio.html > > If you are writing a book, will you please consider getting in touch with > Dr. Goodrich (www.jamestgoodrich.net <http://www.jamestgoodrich.net/> > ) who is a plagio expert at Montefiore Children's Hospital in the Bronx. > He's an expert on plagio and I went to see him for a second opinion for my > son. My son was diagnosed with plagio and tort when he was five days old. > During the pregnancy, his head was wedged against my right rib cage with the > right side of his body facing out. I was told by Dr. Goodrich that plagio > cases caused in uterus are almost always intractable and nearly impossible > to prevent or correct without medical intervention (i.e. Doc band or other > helmet). While repositioning would help reduce further flattening to my > son's head, it would not remedy the flattening and facial asymmetry from the > pregnancy. > > > > Dr. Goodrich told me that they usually recommend parents to try repo for 2-3 > months - before the first six months - even though repo almost never works > for in uterus cases. If parents have seen little to no improvements from > repo, then he recommends the Doc band. > > > > While acquired plagio might be avoidable or preventable, plagio cases from > birth are often unavoidable or preventable, which I hope you will consider > in your book. This is important because plagio cases due uterine > constraints are often forgotten by the medical community. Moreover, many > parents are led to believe that plagio can be remedied by them when it > sometimes is out of their ability to rectify and makes them feel like a > failure when they cannot rectify their baby's plagio. > > > > Meanwhile, I'd love to help you with your book in any way I can. Please > feel free to e-mail (cdfox@...) off the blog if you like. > > > > Carolyn in NYC > > Mum to Malcolm - Doc band #1 3/27, Doc band #2 6/9 > > > > _____ > > From: Plagiocephaly [mailto:Plagiocephaly ] > On Behalf Of Jim Preuett > Sent: Thursday, June 01, 2006 4:01 PM > Plagiocephaly > Subject: RE: Preventing plagio in a new baby > > > > > > Janie, > > It's so ironic that you are asking this question because I am in the process > of writing a book about plagio! One of the chapters will be about preventing > plagio in a newborn baby. The things you've listed are right on track with > what needs to be done. You also might want to alternate your baby's position > in the crib each night so he/she won't get used to one side. Alternating > positions when you feed your baby could also help. Definitely implement lots > of tummy time as early as possible and be limited in the amount of time > spent in car seats, bouncy seats, swings, and strollers. If you notice your > baby starting to favor one side over the other, you can attach toys onto the > crib to focus his/her attention. Position your baby to where he/she has to > look in the opposite direction from the side he/she seems to be favoring. > > If you gather anymore info that could help with this, let me know! > > Preuett > > > _____ > > > From: " Janie P. " <rjjpencek@...> > Reply-Plagiocephaly > " Plagiocephaly " <Plagiocephaly > > Subject: Preventing plagio in a new baby > Date: Thu, 1 Jun 2006 11:44:53 -0700 (PDT) > > Hi all, > > > > I am 11 weeks preg. and I want to do everything from day one for this baby > not to have plagio. I know you can't help inuterine plagio (like my son was > born with). My son had severe brachio and is still wearing his second > helmet (he started wearing one in nov. 05), which is scheduled to come off > permantly at the end on June 06. The Doc Band has helped tremendously, but I > dont't want another baby to go through what he did. My 7 yr old didn't have > plagio at all! I want to use memory foam under this baby's head anytime > he/she is on their back in swings, carsears, bouncy chairs, floor,sleeping, > etc. I also want to incorporate lots of tummy time. I also want to look > into a bumbo baby seat to prop he/she up in when it's old enough to keep > he/she out of the bouncy seat as much. Does anyone have any other ideas that > might help prevent plagio on a new baby? I didn't know about plagio w/ my > son, or I would have tried my best to correct his misshaped head that he was > born with. Unfourtanalty it was too severe for much repo to help. > > > > Thanks in advance, > > > > Janie > > EDD 12-23-06 > > doc band since 11-05, second band on since 3-06 > > Jessi 7 yr. old > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Carolyn, Thanks for responding. I will definitely include information in the book regarding torticollis caused by inutero constraint. In fact, there will be a whole chapter devoted to torticollis. I really think that all new parents could use this information. I sure wish I'd had this info before my daughter was born. By the time we noticed her flattened skull, she was 9 weeks old. Her plagio was solely a result of positioning. In each chapter of the book I plan on giving real life examples of experiences people have had with plagio. Perhaps you'd consider me using your story? I'll keep in touch! Preuett From: carolyn fox <cdfox@...>Reply-Plagiocephaly To: Plagiocephaly Subject: RE: Preventing plagio in a new babyDate: Fri, 02 Jun 2006 10:21:31 -0400 If you are writing a book, will you please consider getting in touch with Dr. Goodrich (www.jamestgoodrich.net) who is a plagio expert at Montefiore Children’s Hospital in the Bronx. He’s an expert on plagio and I went to see him for a second opinion for my son. My son was diagnosed with plagio and tort when he was five days old. During the pregnancy, his head was wedged against my right rib cage with the right side of his body facing out. I was told by Dr. Goodrich that plagio cases caused in uterus are almost always intractable and nearly impossible to prevent or correct without medical intervention (i.e. Doc band or other helmet). While repositioning would help reduce further flattening to my son’s head, it would not remedy the flattening and facial asymmetry from the pregnancy. Dr. Goodrich told me that they usually recommend parents to try repo for 2-3 months – before the first six months – even though repo almost never works for in uterus cases. If parents have seen little to no improvements from repo, then he recommends the Doc band. While acquired plagio might be avoidable or preventable, plagio cases from birth are often unavoidable or preventable, which I hope you will consider in your book. This is important because plagio cases due uterine constraints are often forgotten by the medical community. Moreover, many parents are led to believe that plagio can be remedied by them when it sometimes is out of their ability to rectify and makes them feel like a failure when they cannot rectify their baby’s plagio. Meanwhile, I’d love to help you with your book in any way I can. Please feel free to e-mail (cdfox@...) off the blog if you like. Carolyn in NYC Mum to Malcolm – Doc band #1 3/27, Doc band #2 6/9 From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Jim PreuettSent: Thursday, June 01, 2006 4:01 PMPlagiocephaly Subject: RE: Preventing plagio in a new baby Janie, It's so ironic that you are asking this question because I am in the process of writing a book about plagio! One of the chapters will be about preventing plagio in a newborn baby. The things you've listed are right on track with what needs to be done. You also might want to alternate your baby's position in the crib each night so he/she won't get used to one side. Alternating positions when you feed your baby could also help. Definitely implement lots of tummy time as early as possible and be limited in the amount of time spent in car seats, bouncy seats, swings, and strollers. If you notice your baby starting to favor one side over the other, you can attach toys onto the crib to focus his/her attention. Position your baby to where he/she has to look in the opposite direction from the side he/she seems to be favoring. If you gather anymore info that could help with this, let me know! Preuett From: "Janie P." <rjjpencek@...>Reply-Plagiocephaly To: "Plagiocephaly " <Plagiocephaly >Subject: Preventing plagio in a new babyDate: Thu, 1 Jun 2006 11:44:53 -0700 (PDT) Hi all, I am 11 weeks preg. and I want to do everything from day one for this baby not to have plagio. I know you can't help inuterine plagio (like my son was born with). My son had severe brachio and is still wearing his second helmet (he started wearing one in nov. 05), which is scheduled to come off permantly at the end on June 06. The Doc Band has helped tremendously, but I dont't want another baby to go through what he did. My 7 yr old didn't have plagio at all! I want to use memory foam under this baby's head anytime he/she is on their back in swings, carsears, bouncy chairs, floor,sleeping, etc. I also want to incorporate lots of tummy time. I also want to look into a bumbo baby seat to prop he/she up in when it's old enough to keep he/she out of the bouncy seat as much. Does anyone have any other ideas that might help prevent plagio on a new baby? I didn't know about plagio w/ my son, or I would have tried my best to correct his misshaped head that he was born with. Unfourtanalty it was too severe for much repo to help. Thanks in advance, Janie EDD 12-23-06 doc band since 11-05, second band on since 3-06 Jessi 7 yr. old __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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