Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 > > HI, i'm new here. I have a lot of questions really. > I had graves disease, was treated twice with radioactive iodine. > Now my thyroid is dead. My endocrinologist put me on levoxyl a > little over a month ago, and I hate it. Honestly I felt better > before I started taking the stuff. It's hard to explain how it makes > me feel, but it's like taking 3 or 4 dexatrims at once. Head rushes > when i stand up things like that. It gives me an upset stomach, and > makes me very anxious as well. I've tried to get the doctor to > change the medication but he refuses saying that there is no way i > can feel it's effects. Unfortunately i have no health insurance > currently and am going through truman medical center for my > treatments. He's the only endocrinologist available to me at the > moment. I've not taken the stuff for a couple days and feel better > without it. ON the other hand i know i need to take it. It does > seem to cut down on the hypo symptoms such as face feeling swollen, > and eye's bothering me, it just has very unpleasant symptoms of it's > own. I'm at a loss for what to do here. I'm definately open to > suggestions. > sincerely, Mike . Hi Mike, It sounds like the medicine is not agreeing with you at all.I wonder if it is too much. Yeah I know what you mean by doctors not listening, been there done that. I just had to start selfmedicating with Armour because they would not listen to me. I have been on Armour for almost a month now and I feel great. I also have graves and took radioactive iodine. My thyroid is slowly dying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 Hi Mike, I too had Graves disease and found out I was hyperT in Nov/Dec 2001. I didn't take RAI, but I'm curious why they did this twice on you? Sometimes, it's as if the dr's don't know that the first dose will bring on more hyperT symptoms, or else they just 'forget to share that with those they do this to'. Even though I didn't have RAI, I found out after my bout with Graves that I had TPO antiobodies after I'd already started taking Armour. I'd been on it a month, because after 2 yrs on atd's, I just couldn't feel good at all. My levels were all off, and showing hypo for me, so I knew I needed something. Thru this group and the encouragement and seeing how well people were doing on Armour, I took the plunge in April of this year and ordered it. It was the best decision I ever made. Dr's are really terrible about not looking at anything but labs. That's what got me into the hypoT state I found myself in. Unfortunately, they themselves don't suffer from this disease, but they will give us what 'they are told we should have' and it just isn't always the correct thing. I started off on 1 grain of armour and I'm now up to 3 1/2 grains. I haven't felt this good in years. SandyE~Houston levoxyl HI, i'm new here. I have a lot of questions really. I had graves disease, was treated twice with radioactive iodine. Now my thyroid is dead. My endocrinologist put me on levoxyl a little over a month ago, and I hate it. Honestly I felt better before I started taking the stuff. It's hard to explain how it makes me feel, but it's like taking 3 or 4 dexatrims at once. Head rushes when i stand up things like that. It gives me an upset stomach, and makes me very anxious as well. I've tried to get the doctor to change the medication but he refuses saying that there is no way i can feel it's effects. Unfortunately i have no health insurance currently and am going through truman medical center for my treatments. He's the only endocrinologist available to me at the moment. I've not taken the stuff for a couple days and feel better without it. ON the other hand i know i need to take it. It does seem to cut down on the hypo symptoms such as face feeling swollen, and eye's bothering me, it just has very unpleasant symptoms of it's own. I'm at a loss for what to do here. I'm definately open to suggestions. sincerely, Mike . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2004 Report Share Posted November 28, 2004 No, Levoxyl is not a generic for $ynthroid. Levoxyl is another brand of T4. Val yes levoxyl is a generic for synthroid. I took synthroid for 3 days and it made me incredibly depressed for several hours every time i took it. For some reason they affect my mood. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 HI, Mike, I'm assuming you've gotten some good advice by now. I just wanted to welcome you to the Group! I'm trying hard to catch up but still so far behind! in Va. HI, i'm new here. I have a lot of questions really. I had graves disease, was treated twice with radioactive iodine. Now my thyroid is dead. My endocrinologist put me on levoxyl a little over a month ago, and I hate it. Honestly I felt better before I started taking the stuff. It's hard to explain how it makes me feel, but it's like taking 3 or 4 dexatrims at once. Head rushes when i stand up things like that. It gives me an upset stomach, and makes me very anxious as well. I've tried to get the doctor to change the medication but he refuses saying that there is no way i can feel it's effects. Unfortunately i have no health insurance currently and am going through truman medical center for my treatments. He's the only endocrinologist available to me at the moment. I've not taken the stuff for a couple days and feel better without it. ON the other hand i know i need to take it. It does seem to cut down on the hypo symptoms such as face feeling swollen, and eye's bothering me, it just has very unpleasant symptoms of it's own. I'm at a loss for what to do here. I'm definately open to suggestions. sincerely, Mike . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2004 Report Share Posted December 14, 2004 Welcome Mike, I also have Graves', diagnosed and treated with RAI 7 years ago. 2 years ago (and 3 endocrinologists later) I was diagnosed with Hasimotos. Maybe if I had started researching and learning earlier about my medical conditions I could have done something before my health went so far down the tubes. I'm now on like endo #6 and I'm still not getting the docs to listen and I have great medical insurance (with Armour on the approved medication list!) But I haven't been able to get any doc to give me anything other than Sinthroid/Levoxyl. I was miserable for 2 years so I gave up and decided to treat myself according to my symptoms last year. Maybe you could try cutting your levoxyl in half? Try a little experimenting with it and if it still doesn't work and your doc still won't give you another med then you may want to consider trying Armour? I'm not trying to sell you on Armour (which I currently order without script and against my doc's wishes); everyone is different and not everything works for everyone. That's what's great about this group - we all understand we are individuals and should be treated as such and it should be applied to our medical treatment! Your not a lab number so don't let your doc treat you as such. Jen > > HI, i'm new here. I have a lot of questions really. > I had graves disease, was treated twice with radioactive iodine. > Now my thyroid is dead. My endocrinologist put me on levoxyl a > little over a month ago, and I hate it. Honestly I felt better > before I started taking the stuff. It's hard to explain how it makes > me feel, but it's like taking 3 or 4 dexatrims at once. Head rushes > when i stand up things like that. It gives me an upset stomach, and > makes me very anxious as well. I've tried to get the doctor to > change the medication but he refuses saying that there is no way i > can feel it's effects. Unfortunately i have no health insurance > currently and am going through truman medical center for my > treatments. He's the only endocrinologist available to me at the > moment. I've not taken the stuff for a couple days and feel better > without it. ON the other hand i know i need to take it. It does > seem to cut down on the hypo symptoms such as face feeling swollen, > and eye's bothering me, it just has very unpleasant symptoms of it's > own. I'm at a loss for what to do here. I'm definately open to > suggestions. > sincerely, Mike . Quote Link to comment Share on other sites More sharing options...
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