Help? Next Steps? Suggestions, Advice.

[Guest guest]

As mentioned in a previous message, I am 39 and have had myomectomy

for 30 fibroids, an ectopic pregnancy and removal of tube and am

Diabetic and would like to try to avoid a Hysterectomy due to my high

risk factors of stoke, etc... I am fed up with shooting pain down

leg, heavy bleeding, clots, and anemia. I am always worried to sit

down that I may soak a chair at any time! My periods, every 28 days

(only good part) then I have for an average of 12 days.

I met with the fertility clinic doctor who just performed my

Laparoscopy, Hysteroscopy. My postoperative diagnosis: sinus tract

fundus uterus, blocked right tube (great now both tubes not

functioning!), fibroids (fundal 7 x 5), large bulky anenomyotic

uterus now the size of a 10+ week pregnancy. Omental adhesion and

small bowel adhesions. No dye spilt through tube. And goes on...

I viewed a tape of my operation as I requested it and saw the removal

of my polyps and the size and location of the fibroids As well I saw

my large amount of scar tissue. I wonder if over time since my

myomectomyin 96 if scar tissue gets worse?

At this point the doctor believes my only course to any type of

pregnancy is in-vitro as both my tues are blocked. However due to my

age, my diabetes, etc. I would have a 25% success rate in even

conceiving!

My fertility doctor has now recommended that I return to my GYN and

explore endo ablation (sp?) or I think it is abilism of the lining of

the uterus and if that does not work then the dreaded hysterec.

I have booked an appointment due to my pain down leg - I believe it

is more due to my fibroids than DVT. Is the only way to detect a MRI?

Seems like MRIs are not as common in Canada as US and doctors always

try to discourage against one.

Anyone have any suggestions on my next course of action? Oh and by

the way my report mentioned that my FSH is 6, anyone know what my

doctor is talking about?

I know things could be worse but my diabetes is enough right now.

[Guest guest]

<<I have booked an appointment due to my pain down leg - I believe it

is more due to my fibroids than DVT. Is the only way to detect a MRI?

Seems like MRIs are not as common in Canada as US and doctors always

try to discourage against one.

>>

,

I had the same leg pain and I'm in Toronto and had no problem getting a MRI -

in fact, it only took three weeks before it was done. It helps a lot if your

doc has an office in a hospital with MR facilities. Hospital docs' patients

get priority over others. From what I've read on the PubMed website, MRI is the

definitive way to determine if a fibroid is pressing on the sciatic nerve -

that's what I told my gyn and she said fine I'll set you up with an MR appt.

(During those three weeks, I think I was so relieved to be getting a proper

diagnosis, the pain went away and later came back intermittently and finally

never

came back...knock wood.)

FSH = follicule stimulating hormone - it measures your ability to get

pregnant. I had this blood test done too and I think it was a l2 which was

considered

" not in the normal range " . My endocrinologist (who's also an RE) told me not

to worry as this blood test has to be timed correctly in a cycle to get an

accurate read. Not sure what a 6 means - someone here mentioned a website that

tells you what the results mean. I have this website written down somewhere in

this computer, when I find it I will post it.

I'm planning on getting a laparoscopic myo in the near future. Hope all goes

well for you.

Rhonda

[Guest guest]

If you still want to become pregnant why would your doctor suggest

an ablation? You cannot carry a baby after an ablation.

> As mentioned in a previous message, I am 39 and have had

myomectomy

> for 30 fibroids, an ectopic pregnancy and removal of tube and am

> Diabetic and would like to try to avoid a Hysterectomy due to my

high

> risk factors of stoke, etc... I am fed up with shooting pain down

> leg, heavy bleeding, clots, and anemia. I am always worried to

sit

> down that I may soak a chair at any time! My periods, every 28

days

> (only good part) then I have for an average of 12 days.

>

> I met with the fertility clinic doctor who just performed my

> Laparoscopy, Hysteroscopy. My postoperative diagnosis: sinus tract

> fundus uterus, blocked right tube (great now both tubes not

> functioning!), fibroids (fundal 7 x 5), large bulky anenomyotic

> uterus now the size of a 10+ week pregnancy. Omental adhesion and

> small bowel adhesions. No dye spilt through tube. And goes on...

>

> I viewed a tape of my operation as I requested it and saw the

removal

> of my polyps and the size and location of the fibroids As well I

saw

> my large amount of scar tissue. I wonder if over time since my

> myomectomyin 96 if scar tissue gets worse?

>

> At this point the doctor believes my only course to any type of

> pregnancy is in-vitro as both my tues are blocked. However due to

my

> age, my diabetes, etc. I would have a 25% success rate in even

> conceiving!

>

> My fertility doctor has now recommended that I return to my GYN

and

> explore endo ablation (sp?) or I think it is abilism of the lining

of

> the uterus and if that does not work then the dreaded hysterec.

>

> I have booked an appointment due to my pain down leg - I believe

it

> is more due to my fibroids than DVT. Is the only way to detect a

MRI?

> Seems like MRIs are not as common in Canada as US and doctors

always

> try to discourage against one.

>

> Anyone have any suggestions on my next course of action? Oh and by

> the way my report mentioned that my FSH is 6, anyone know what my

> doctor is talking about?

>

> I know things could be worse but my diabetes is enough right now.

>

>

[Guest guest]

> If you still want to become pregnant why would your doctor suggest

> an ablation? You cannot carry a baby after an ablation.

Thank you for the reply!

Cecile, of what little I know about ablation. Do I have any more

options? I do wish for children but do I still have any hope?

[Guest guest]

Yes - isn't a myo the best course for those wanting to conceive afterwards?

In a message dated 9/4/2003 2:25:49 PM Eastern Daylight Time,

tferstl@... writes:

>

> > If you still want to become pregnant why would your doctor suggest

> > an ablation? You cannot carry a baby after an ablation.

>

> Cecile, of what little I know about ablation. Do I have any more

> options? I do wish for children but do I still have any hope?

[Guest guest]

Rhonda,

> I'm in Toronto and had no problem getting a MRI -

Thanks for the info. I too use to live in TO but now in Calgary. By

any chance is your gyn Dr. Derzko? Boy do I ever miss her

expertise! I will insist with the MRI. This month my pain is

slightly better as I am taking stronger medication, in addition (I

know this sounds funny) but I have moved several of my large fibroids

a bit and seems tolerable now, hopefully will last until my 10-12

days are up!

> (During those three weeks, I think I was so relieved to be getting

a proper

> diagnosis, the pain went away and later came back intermittently

and finally never

> came back...knock wood.)

Does your pain just occur during your period or through the course of

the year?

> FSH = I have this website written down somewhere in

> this computer, when I find it I will post it.

Yes please do as I am very interested.

> I'm planning on getting a laparoscopic myo in the near future. Hope

all goes well for you.

Thank you for your assistance! I wish you all the success with your

LP. Do you currently have children or planning?

[Guest guest]

Hi ,

No, Dr. Derzko is not my gyn...I'll write down her name in my phone book just

in case...my regular ob-gyn is a bit of a cold fish (another patient told me

that in the waiting room and she's right!) and she's always off on maternity

leave. Thanks for the tip. My surgery is being performed by another doc who

specializes in laparoscopic procedures at Women's College.

When I had the sciatica, the pain wasn't influenced in any way by my period.

It came almost every day for a while and a lot of times it came in the middle

of the night. The wrenching pain was just awful. The only thing that seemed to

relieve the god-awful cramping feeling was to sit down. Standing up or lying

down just made it worse. I'm so glad it's gone. When you said you can move

your fibroids, I don't doubt it. I think my fibroid shifted away from the

sciatic

nerve and the pain ended. Try sitting when the leg pain comes on, it may help

you too. It'll still hurt but it relieved some of the pressure for me. I hope

this gets better for you soon, I know how terrible the pain is - I cried a

lot.

Other than the sciatica, I've never had any pain from my fibroids other than

urinary pressure and a feeling of fullness (bloating.) I get this pinging

sensation once in a while from my ovaries but that's about it. After the

sciatica,

I think I could put up with any type of pain. I read somewhere that sciatica

is very high on the pain scale - on par with childbirth. I'm glad you're

insisting on the MRI and don't forget this will be of infinite value as far as

the

placement of your fibroids goes. I know the MR report is the first thing a gyn

looks at no matter what the complaint - it's the gold standard of diagnostic

tests.

I would love to have a child (one would be enough!...lol) but somehow I don't

think it's meant to be. But, hey, you never know! I'll be happy whatever

happens.

The website that explains FSH levels is:

www.rscbayarea.com

Never checked this website out myself yet but someone on the list recommended

it.

All the best with everything,

Rhonda

..

[Guest guest]

most of the doctors i've talked to have said they have had at least patient

or 2 get pregnant after a UFE. i would recommend looking into that as a

possible option in addition to a myo.

>From: claireams@...

>Reply-To: uterinefibroids

>To: uterinefibroids

>Subject: Re: Re: Help? Next Steps? Suggestions, Advice.

>Date: Fri, 05 Sep 2003 12:51:40 -0400

>

>Yes - isn't a myo the best course for those wanting to conceive afterwards?

>