Helen/skin changes/amputation

[Guest guest]

In a message dated 12/19/2004 4:28:52 AM Eastern Standard Time, RSD-CRPSofAmerica writes:

have been reading the posts re meds. I was on the Duragesic patch a few years ago and quickly moved up to a high dose. My primary doc was not happy with this because he thought I should only take meds when I needed them. So, I went off them and switched to Talwin. None of the meds worked very well. I have been on just about everything all of you have mentioned.

Has anyone experienced the changes in skin, etc, that are supposed to come with some cases of advanced RSD? If so, would you please describe the changes? Also, if you are having any luck with meds relieving your pain, would you please let me know what you take? I would like to ask my pain doc to try again with meds. I don't think I am getting as much relief as I can. (Can you believe, my primary doc has once again mentioned amputation!)

Hi Helen,

That doctor better brush up on medicine because that is not how to treat chronic pain!!!! It kind of makes sense that if you have pain all of the time then it needs to be treated all of the time. Have you ever tried the Talwin with Naloxone? The two together word synergistically to give better relief. I have never been on it but as a nurse we used to use the two together.

I have changes in the skin on my RSD leg. The skin is shiny and mottled looking. It has a kind of bluish purple tinge to it too. Also the hair does not grow anymore and my toenails are very brittle and grow very slowly.

As far as amputation NO WAY!!! Don't walk but RUN as fast as you can from that doctor. If their is a cure found for RSD in the future then what would you do? Unless their is some other medical reason for amputation then don't even consider it. Also you have to consider the chance of developing phantom pain. This is a very real phenomenon and the pain can be just as bad as RSD pain.

Please have a great holiday season, Take care, Love Jai

[Guest guest]

Helen, as usual am behind on emails but this is really good for me to catch this one in less than month!!! Anyway, I am on Duragesic Patches and if they helped you please talk to your Pain Doctor about them again. What dosage where you on for Duragesic Helen? I am on 225msg and change every 72hrs, but would prefer every 60 to 65 hrs. And about your Primary Doctor, have your friends ever talked about their Primary doctor about how wonderful a doctor he/she is.....just wonder as if know of doctor that others speak highly of perhaps you might try that doctor also so you can leave this person pretending to be a doctor!!!!! Gee Helen, if he had talked to me about amputation would still be dragging my jaw on floor from shock of those awful words!!!!

Have to ask Helen, what did you say when he spoke of amputation? Did you choke or get nauseated, really would like to know as just beyond my scope of thinking that someone would say this to you and it not be some really awful joke he was trying to play.

Well take care and hope you get some meds to help you all the time.

Hugs

JoAnn

s Momma

Helen/skin changes/amputation

In a message dated 12/19/2004 4:28:52 AM Eastern Standard Time, RSD-CRPSofAmerica writes:

have been reading the posts re meds. I was on the Duragesic patch a few years ago and quickly moved up to a high dose. My primary doc was not happy with this because he thought I should only take meds when I needed them. So, I went off them and switched to Talwin. None of the meds worked very well. I have been on just about everything all of you have mentioned.

Has anyone experienced the changes in skin, etc, that are supposed to come with some cases of advanced RSD? If so, would you please describe the changes? Also, if you are having any luck with meds relieving your pain, would you please let me know what you take? I would like to ask my pain doc to try again with meds. I don't think I am getting as much relief as I can. (Can you believe, my primary doc has once again mentioned amputation!)

Hi Helen,

That doctor better brush up on medicine because that is not how to treat chronic pain!!!! It kind of makes sense that if you have pain all of the time then it needs to be treated all of the time. Have you ever tried the Talwin with Naloxone? The two together word synergistically to give better relief. I have never been on it but as a nurse we used to use the two together.

I have changes in the skin on my RSD leg. The skin is shiny and mottled looking. It has a kind of bluish purple tinge to it too. Also the hair does not grow anymore and my toenails are very brittle and grow very slowly.

As far as amputation NO WAY!!! Don't walk but RUN as fast as you can from that doctor. If their is a cure found for RSD in the future then what would you do? Unless their is some other medical reason for amputation then don't even consider it. Also you have to consider the chance of developing phantom pain. This is a very real phenomenon and the pain can be just as bad as RSD pain.

Please have a great holiday season, Take care, Love Jai

[Guest guest]

Helen, as usual am behind on emails but this is really good for me to catch this one in less than month!!! Anyway, I am on Duragesic Patches and if they helped you please talk to your Pain Doctor about them again. What dosage where you on for Duragesic Helen? I am on 225msg and change every 72hrs, but would prefer every 60 to 65 hrs. And about your Primary Doctor, have your friends ever talked about their Primary doctor about how wonderful a doctor he/she is.....just wonder as if know of doctor that others speak highly of perhaps you might try that doctor also so you can leave this person pretending to be a doctor!!!!! Gee Helen, if he had talked to me about amputation would still be dragging my jaw on floor from shock of those awful words!!!!

Have to ask Helen, what did you say when he spoke of amputation? Did you choke or get nauseated, really would like to know as just beyond my scope of thinking that someone would say this to you and it not be some really awful joke he was trying to play.

Well take care and hope you get some meds to help you all the time.

Hugs

JoAnn

s Momma

Helen/skin changes/amputation

In a message dated 12/19/2004 4:28:52 AM Eastern Standard Time, RSD-CRPSofAmerica writes:

have been reading the posts re meds. I was on the Duragesic patch a few years ago and quickly moved up to a high dose. My primary doc was not happy with this because he thought I should only take meds when I needed them. So, I went off them and switched to Talwin. None of the meds worked very well. I have been on just about everything all of you have mentioned.

Has anyone experienced the changes in skin, etc, that are supposed to come with some cases of advanced RSD? If so, would you please describe the changes? Also, if you are having any luck with meds relieving your pain, would you please let me know what you take? I would like to ask my pain doc to try again with meds. I don't think I am getting as much relief as I can. (Can you believe, my primary doc has once again mentioned amputation!)

Hi Helen,

That doctor better brush up on medicine because that is not how to treat chronic pain!!!! It kind of makes sense that if you have pain all of the time then it needs to be treated all of the time. Have you ever tried the Talwin with Naloxone? The two together word synergistically to give better relief. I have never been on it but as a nurse we used to use the two together.

I have changes in the skin on my RSD leg. The skin is shiny and mottled looking. It has a kind of bluish purple tinge to it too. Also the hair does not grow anymore and my toenails are very brittle and grow very slowly.

As far as amputation NO WAY!!! Don't walk but RUN as fast as you can from that doctor. If their is a cure found for RSD in the future then what would you do? Unless their is some other medical reason for amputation then don't even consider it. Also you have to consider the chance of developing phantom pain. This is a very real phenomenon and the pain can be just as bad as RSD pain.

Please have a great holiday season, Take care, Love Jai

[Guest guest]

Helen, as usual am behind on emails but this is really good for me to catch this one in less than month!!! Anyway, I am on Duragesic Patches and if they helped you please talk to your Pain Doctor about them again. What dosage where you on for Duragesic Helen? I am on 225msg and change every 72hrs, but would prefer every 60 to 65 hrs. And about your Primary Doctor, have your friends ever talked about their Primary doctor about how wonderful a doctor he/she is.....just wonder as if know of doctor that others speak highly of perhaps you might try that doctor also so you can leave this person pretending to be a doctor!!!!! Gee Helen, if he had talked to me about amputation would still be dragging my jaw on floor from shock of those awful words!!!!

Have to ask Helen, what did you say when he spoke of amputation? Did you choke or get nauseated, really would like to know as just beyond my scope of thinking that someone would say this to you and it not be some really awful joke he was trying to play.

Well take care and hope you get some meds to help you all the time.

Hugs

JoAnn

s Momma

Helen/skin changes/amputation

In a message dated 12/19/2004 4:28:52 AM Eastern Standard Time, RSD-CRPSofAmerica writes:

have been reading the posts re meds. I was on the Duragesic patch a few years ago and quickly moved up to a high dose. My primary doc was not happy with this because he thought I should only take meds when I needed them. So, I went off them and switched to Talwin. None of the meds worked very well. I have been on just about everything all of you have mentioned.

Has anyone experienced the changes in skin, etc, that are supposed to come with some cases of advanced RSD? If so, would you please describe the changes? Also, if you are having any luck with meds relieving your pain, would you please let me know what you take? I would like to ask my pain doc to try again with meds. I don't think I am getting as much relief as I can. (Can you believe, my primary doc has once again mentioned amputation!)

Hi Helen,

That doctor better brush up on medicine because that is not how to treat chronic pain!!!! It kind of makes sense that if you have pain all of the time then it needs to be treated all of the time. Have you ever tried the Talwin with Naloxone? The two together word synergistically to give better relief. I have never been on it but as a nurse we used to use the two together.

I have changes in the skin on my RSD leg. The skin is shiny and mottled looking. It has a kind of bluish purple tinge to it too. Also the hair does not grow anymore and my toenails are very brittle and grow very slowly.

As far as amputation NO WAY!!! Don't walk but RUN as fast as you can from that doctor. If their is a cure found for RSD in the future then what would you do? Unless their is some other medical reason for amputation then don't even consider it. Also you have to consider the chance of developing phantom pain. This is a very real phenomenon and the pain can be just as bad as RSD pain.

Please have a great holiday season, Take care, Love Jai