Help! Need ankle advice :-( ... need a EDS ankle doctor

[Guest guest]

Hi all,

My left ankle has bee bugging me lately. But only when I walked to the local

store. Or, so I thought. So, I devised a trick to find the pain spot.

I wondered if I could find or touch the area that hurt so bad when I walk.

So, I closed my eyes and tried to touch the area on my right ankle. As it

happened, I touched above the known area and found the SPOT. OUCH! A big ouch. I

felt pain. I tried again and it really REALLY HURT LIKE *heck*.

What I seem to feel is a bunch of veins or arteries, or maybe just one vein

or artery ... that hurts. It reminds me of a thombosed vein you get when ....

Well, I got one from an infected injection once and from a too tight blood

pressure cuff. I can actually feel a straw like cord. More than one ... and a

mass

of tangled blood vessels ... or lumpy stuff under my skin at the ankle joint

:-(.

Anyway, it is right where my ankle bends in TOO MUCH when I walk. Can my own

bone be crushing my blood vessel? An inch away I do know I have a spot that

you can see pulsating. A circle like spot. When I complained years ago, the dumb

doctor would say let me see your other foot. She then said you have the same

spot on your left foot but <<smaller>> ... Next come the famous question of

did it hurt. And dismissal.

Well, I always had my foot bend inward problem. As I played with the area

tonight, I was able to determined that the spot is VERY VERY painful, and the

bone underneath it also hurts ... but <<only>> if I touch it. Or if I put

pressure on the spot. Worse, is if I move the ankle like in walking. The minute

I

stop the movement ... the pain stops. Typical of my pain insensitivity :-<. I

always had places I could touch and feel pain in that spot, so my body would

know it was there. Yes, that sounds stupid, which is why I never reported

painful

areas to my doctors. Typically, in the doctors office I would not be able to

find the spot. When I did, it did nothing when the doc pressed on it.

Well, I played with this area and it seems maybe the bone is the problem, or

the ligaments or I do not know what :-<. There is a nearby spot that is veins

or varicose veins. But in my foot? Also, the top of my feet is my area where I

heal slow and scar. [The rest of me heals rather fast.] I know this from

years of treating the top of my feet like gold.

My right foot, right side of the ankle, is the foot that I have ALWAYS hurt.

I twisted it, been on crutches with, etc., etc. It is the foot that turns too

much to the right or is a suspected corrected clubfoot. I also feel my ankles

are thicker than they should be but since they do not hurt ... what was I to

say to any doctor. He said, my ankles are getting bigger, so what.

Finally, when I move the ankle as in walking ... only then does it hurt like

hell. When I stop moving it ... HA! no pain. Woe is me. No wonder I dread

walking anywhere lately. Grrr. I will die of something because my body doesn't

hurt correctly. It seems my outer skin nerves works but not my insides. My right

foot that is bothering me is the side I normally feel pain fairly normally. So

when I go for walks I always ignored it. After all, whenever I stopped

walking the pain went away. Unless my BP dropped too low.

I determined, that this is the similiar pain that I feel when my BP stays low

for a time. I wonder is I got an old wound, abscess, infection or what!

Plan: I will get a podiatrist or foot doctor. If I can remember since most of

the time the foot never hurts. I need to touch it to see that it is still

sore.

Research: I tried to look up this problem about my stupid foot. It sounds

like I may have a neurogenic joint of the ankle. Common in people with diabetes

and people with insensitivity to pain. Eek! Bottom-line here is that it

triggers my BP spikes. I got BP of 261/188/92, 282/189/94, 265/184/110. Those

numbers are from pressing the sore spot on my foot or doing walking movements

with

the ankle I suppose. No wonder my latest BP in my doctors office has been

250/130. My feet doing this to me is as bad as the butt think. For those not use

to

me recall, my normal BP is 250/130 or 70/50 or less :-D. Caro

Wish me luck.

Caro

[Guest guest]

In a message dated 3/4/2004 12:16:40 AM Eastern Standard Time,

CDillardda@... writes:

What I seem to feel is a bunch of veins or arteries, or maybe just one vein

or artery ... that hurts. It reminds me of a thombosed vein you get when

Carol, perhaps you should go and get this looked at by the doctor. Could you

have a blood clot there? Yep, it's possible...call the dr., elevate and warm

compresses. Always better to be safe than sorry, right?

Hugs,

Helen

[Guest guest]

In a message dated 3/4/2004 9:20:53 AM Eastern Standard Time,

lukesgrace@... writes:

> blood clot there?

Thank, I will call the doctor. But, a blood clot in the ankle????

[Guest guest]

In a message dated 3/4/2004 9:20:53 AM Eastern Standard Time,

lukesgrace@... writes:

> blood clot there?

Thank, I will call the doctor. But, a blood clot in the ankle????

[Guest guest]

In a message dated 3/4/2004 9:20:53 AM Eastern Standard Time,

lukesgrace@... writes:

> blood clot there?

Thank, I will call the doctor. But, a blood clot in the ankle????