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As most of you know- Iv'e been manually formatting my computer- well- I ended up

giving up on saving anything more than I had- which means a huge loss in many

things and now the time consuming effort of getting drivers manually located and

placed in proper places. I have been doing the downloading of drivers since

yesterday evening........ some are quite huge-

I lost a lot of e-mail I had intended on saving and/or responding to but cant

recall them all right now and haven't the time to fly around in archives but

will do that soon.

One topic I do recall being mentioned that I have a curiousity about is hand

control.... Was there any financial help in getting this and,,,, where to begin

on getting one? Driving was my fav thing to do and now after 2 yrs of not being

able to, Id give anything to try - but dont want to endanger others.

Also on the medic bracelet, I had filled that out in past but never found the

EDS info...... Would really like to have something as such , I live alone with

my kids who know only bits and pieces of the info- so would want any emergecy

situations to have proper knowledge if I am for some reason unable to talk.....

Would appreciate all responses.

Hugs and Love- TJ

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Hi TJ

Regarding Hand Controls -

You can get portable hand controls:

http://www.spokesnmotion.com/products_shop/product_detail.asp?

product_id=101

5

or manufacturers installed ones like these:

http://www.infopoint.com/sc/health/access_options/hand.html

It seems to me that moving your legs about during a long trip is more

hazardous then having to get the left foot involved in the braking

process.

If you touch the brake at all while the cruise is on, the cruise

disengages.

The cruise engages when the car reaches a specified speed, so it

can't be

used as a replacement for your feet. Hand controls can and would

clearly be

a better choice if you were to look at the rate of decline in someone

with

EDS - the car may last you ten years, but it may not last you if you

aren't

careful to make the right choice. Perhaps you ought to arrange to sit

down

with a representative from the disability program at Toyota and see

what

modifications would be right for you. There are so many other

modifications

available to look at as well.

I hope this helps.

Love Lana

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TJ,

The website for the medic alert bracelet is http://www.medicalert.org

How to get a Medic Alert Bracelet

Medic Alert is a company that sells bracelets and necklaces and

offers a 24 hour hot line number that people can call and get

information on you based on the ID number they read off of your

bracelet. You could also just get a regular bracelet and have it

engraved with something like your name, phone number and condition

( " kidney transplant " would probably do).

You can enroll in Medic Alert by phone: 1-

Or you can check the Medic Alert web page for ordering information.

You need to give them a credit card number; medical information;

name, telephone number, and address of person or physician to contact

in emergency; and bracelet size. You can get a bracelet or a

necklace. They cost 35$ for stainless steel, and up to 115$ for

silver. For medical information most people specify the organ that

was transplanted, any major diseases like diabetes, and any severe

allergies. The advantage of the medicalert system is that more

information can be given by the hot line than can be engraved on the

emblem. No, I don't own stock in Medic Alert, it is a non-profit

organization!

Here's a couple more: http://www.medicid.com/ or

http://www.glacombe.com/medical.html

As far as what to put on the alert, that's a personal preference, and

some others may have some ideas for you. By the way, you can email

me at EDSLana@...

Love Lana

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Thanks - ok, I do recall now checking this site out but- the credit card stopped

me- I don't own one- and after what I went through x with one- I haven't had any

interest in obtaining one. There is no other way to get one without a credit

card?

Hugs and thanks again, TJ

Re: Morning all

TJ,

The website for the medic alert bracelet is http://www.medicalert.org

How to get a Medic Alert Bracelet

Medic Alert is a company that sells bracelets and necklaces and

offers a 24 hour hot line number that people can call and get

information on you based on the ID number they read off of your

bracelet. You could also just get a regular bracelet and have it

engraved with something like your name, phone number and condition

( " kidney transplant " would probably do).

You can enroll in Medic Alert by phone: 1-

Or you can check the Medic Alert web page for ordering information.

You need to give them a credit card number; medical information;

name, telephone number, and address of person or physician to contact

in emergency; and bracelet size. You can get a bracelet or a

necklace. They cost 35$ for stainless steel, and up to 115$ for

silver. For medical information most people specify the organ that

was transplanted, any major diseases like diabetes, and any severe

allergies. The advantage of the medicalert system is that more

information can be given by the hot line than can be engraved on the

emblem. No, I don't own stock in Medic Alert, it is a non-profit

organization!

Here's a couple more: http://www.medicid.com/ or

http://www.glacombe.com/medical.html

As far as what to put on the alert, that's a personal preference, and

some others may have some ideas for you. By the way, you can email

me at EDSLana@...

Love Lana

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

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Thanks - ok, I do recall now checking this site out but- the credit card stopped

me- I don't own one- and after what I went through x with one- I haven't had any

interest in obtaining one. There is no other way to get one without a credit

card?

Hugs and thanks again, TJ

Re: Morning all

TJ,

The website for the medic alert bracelet is http://www.medicalert.org

How to get a Medic Alert Bracelet

Medic Alert is a company that sells bracelets and necklaces and

offers a 24 hour hot line number that people can call and get

information on you based on the ID number they read off of your

bracelet. You could also just get a regular bracelet and have it

engraved with something like your name, phone number and condition

( " kidney transplant " would probably do).

You can enroll in Medic Alert by phone: 1-

Or you can check the Medic Alert web page for ordering information.

You need to give them a credit card number; medical information;

name, telephone number, and address of person or physician to contact

in emergency; and bracelet size. You can get a bracelet or a

necklace. They cost 35$ for stainless steel, and up to 115$ for

silver. For medical information most people specify the organ that

was transplanted, any major diseases like diabetes, and any severe

allergies. The advantage of the medicalert system is that more

information can be given by the hot line than can be engraved on the

emblem. No, I don't own stock in Medic Alert, it is a non-profit

organization!

Here's a couple more: http://www.medicid.com/ or

http://www.glacombe.com/medical.html

As far as what to put on the alert, that's a personal preference, and

some others may have some ideas for you. By the way, you can email

me at EDSLana@...

Love Lana

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

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Hi TJ --

Yes, you can call them toll-free () and they will send you a packet

of info and a membership form so you can pay by check/money order. I'm sending

my form in next week (gotta wait for the paycheck!!!).

Take care,

Love, Patti

Re: Morning all

TJ,

The website for the medic alert bracelet is http://www.medicalert.org

How to get a Medic Alert Bracelet

Medic Alert is a company that sells bracelets and necklaces and

offers a 24 hour hot line number that people can call and get

information on you based on the ID number they read off of your

bracelet. You could also just get a regular bracelet and have it

engraved with something like your name, phone number and condition

( " kidney transplant " would probably do).

You can enroll in Medic Alert by phone: 1-

Or you can check the Medic Alert web page for ordering information.

You need to give them a credit card number; medical information;

name, telephone number, and address of person or physician to contact

in emergency; and bracelet size. You can get a bracelet or a

necklace. They cost 35$ for stainless steel, and up to 115$ for

silver. For medical information most people specify the organ that

was transplanted, any major diseases like diabetes, and any severe

allergies. The advantage of the medicalert system is that more

information can be given by the hot line than can be engraved on the

emblem. No, I don't own stock in Medic Alert, it is a non-profit

organization!

Here's a couple more: http://www.medicid.com/ or

http://www.glacombe.com/medical.html

As far as what to put on the alert, that's a personal preference, and

some others may have some ideas for you. By the way, you can email

me at EDSLana@...

Love Lana

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

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Guest guest

Hi TJ --

Yes, you can call them toll-free () and they will send you a packet

of info and a membership form so you can pay by check/money order. I'm sending

my form in next week (gotta wait for the paycheck!!!).

Take care,

Love, Patti

Re: Morning all

TJ,

The website for the medic alert bracelet is http://www.medicalert.org

How to get a Medic Alert Bracelet

Medic Alert is a company that sells bracelets and necklaces and

offers a 24 hour hot line number that people can call and get

information on you based on the ID number they read off of your

bracelet. You could also just get a regular bracelet and have it

engraved with something like your name, phone number and condition

( " kidney transplant " would probably do).

You can enroll in Medic Alert by phone: 1-

Or you can check the Medic Alert web page for ordering information.

You need to give them a credit card number; medical information;

name, telephone number, and address of person or physician to contact

in emergency; and bracelet size. You can get a bracelet or a

necklace. They cost 35$ for stainless steel, and up to 115$ for

silver. For medical information most people specify the organ that

was transplanted, any major diseases like diabetes, and any severe

allergies. The advantage of the medicalert system is that more

information can be given by the hot line than can be engraved on the

emblem. No, I don't own stock in Medic Alert, it is a non-profit

organization!

Here's a couple more: http://www.medicid.com/ or

http://www.glacombe.com/medical.html

As far as what to put on the alert, that's a personal preference, and

some others may have some ideas for you. By the way, you can email

me at EDSLana@...

Love Lana

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

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Guest guest

Hi TJ --

Yes, you can call them toll-free () and they will send you a packet

of info and a membership form so you can pay by check/money order. I'm sending

my form in next week (gotta wait for the paycheck!!!).

Take care,

Love, Patti

Re: Morning all

TJ,

The website for the medic alert bracelet is http://www.medicalert.org

How to get a Medic Alert Bracelet

Medic Alert is a company that sells bracelets and necklaces and

offers a 24 hour hot line number that people can call and get

information on you based on the ID number they read off of your

bracelet. You could also just get a regular bracelet and have it

engraved with something like your name, phone number and condition

( " kidney transplant " would probably do).

You can enroll in Medic Alert by phone: 1-

Or you can check the Medic Alert web page for ordering information.

You need to give them a credit card number; medical information;

name, telephone number, and address of person or physician to contact

in emergency; and bracelet size. You can get a bracelet or a

necklace. They cost 35$ for stainless steel, and up to 115$ for

silver. For medical information most people specify the organ that

was transplanted, any major diseases like diabetes, and any severe

allergies. The advantage of the medicalert system is that more

information can be given by the hot line than can be engraved on the

emblem. No, I don't own stock in Medic Alert, it is a non-profit

organization!

Here's a couple more: http://www.medicid.com/ or

http://www.glacombe.com/medical.html

As far as what to put on the alert, that's a personal preference, and

some others may have some ideas for you. By the way, you can email

me at EDSLana@...

Love Lana

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

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Guest guest

Ok, will give that a shot- thanks Jill :-)

Re: Re: Morning all

You can always purchase anything without a credit card - simply print out

the form, fill it out and mail it in with your payment, or send them an

e-mail and tell them hat you do not have a credit card and they will tell

you how to purchase one.

Jill

To learn more about EDS, visit our website: http://www.ceda.ca

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Guest guest

Ok, will give that a shot- thanks Jill :-)

Re: Re: Morning all

You can always purchase anything without a credit card - simply print out

the form, fill it out and mail it in with your payment, or send them an

e-mail and tell them hat you do not have a credit card and they will tell

you how to purchase one.

Jill

To learn more about EDS, visit our website: http://www.ceda.ca

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Guest guest

Thanks Patty- Will give that # a call........

Hugs and Take Care- TJ

Re: Morning all

TJ,

The website for the medic alert bracelet is http://www.medicalert.org

How to get a Medic Alert Bracelet

Medic Alert is a company that sells bracelets and necklaces and

offers a 24 hour hot line number that people can call and get

information on you based on the ID number they read off of your

bracelet. You could also just get a regular bracelet and have it

engraved with something like your name, phone number and condition

( " kidney transplant " would probably do).

You can enroll in Medic Alert by phone: 1-

Or you can check the Medic Alert web page for ordering information.

You need to give them a credit card number; medical information;

name, telephone number, and address of person or physician to contact

in emergency; and bracelet size. You can get a bracelet or a

necklace. They cost 35$ for stainless steel, and up to 115$ for

silver. For medical information most people specify the organ that

was transplanted, any major diseases like diabetes, and any severe

allergies. The advantage of the medicalert system is that more

information can be given by the hot line than can be engraved on the

emblem. No, I don't own stock in Medic Alert, it is a non-profit

organization!

Here's a couple more: http://www.medicid.com/ or

http://www.glacombe.com/medical.html

As far as what to put on the alert, that's a personal preference, and

some others may have some ideas for you. By the way, you can email

me at EDSLana@...

Love Lana

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

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Guest guest

Thanks Patty- Will give that # a call........

Hugs and Take Care- TJ

Re: Morning all

TJ,

The website for the medic alert bracelet is http://www.medicalert.org

How to get a Medic Alert Bracelet

Medic Alert is a company that sells bracelets and necklaces and

offers a 24 hour hot line number that people can call and get

information on you based on the ID number they read off of your

bracelet. You could also just get a regular bracelet and have it

engraved with something like your name, phone number and condition

( " kidney transplant " would probably do).

You can enroll in Medic Alert by phone: 1-

Or you can check the Medic Alert web page for ordering information.

You need to give them a credit card number; medical information;

name, telephone number, and address of person or physician to contact

in emergency; and bracelet size. You can get a bracelet or a

necklace. They cost 35$ for stainless steel, and up to 115$ for

silver. For medical information most people specify the organ that

was transplanted, any major diseases like diabetes, and any severe

allergies. The advantage of the medicalert system is that more

information can be given by the hot line than can be engraved on the

emblem. No, I don't own stock in Medic Alert, it is a non-profit

organization!

Here's a couple more: http://www.medicid.com/ or

http://www.glacombe.com/medical.html

As far as what to put on the alert, that's a personal preference, and

some others may have some ideas for you. By the way, you can email

me at EDSLana@...

Love Lana

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

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Guest guest

Thanks Patty- Will give that # a call........

Hugs and Take Care- TJ

Re: Morning all

TJ,

The website for the medic alert bracelet is http://www.medicalert.org

How to get a Medic Alert Bracelet

Medic Alert is a company that sells bracelets and necklaces and

offers a 24 hour hot line number that people can call and get

information on you based on the ID number they read off of your

bracelet. You could also just get a regular bracelet and have it

engraved with something like your name, phone number and condition

( " kidney transplant " would probably do).

You can enroll in Medic Alert by phone: 1-

Or you can check the Medic Alert web page for ordering information.

You need to give them a credit card number; medical information;

name, telephone number, and address of person or physician to contact

in emergency; and bracelet size. You can get a bracelet or a

necklace. They cost 35$ for stainless steel, and up to 115$ for

silver. For medical information most people specify the organ that

was transplanted, any major diseases like diabetes, and any severe

allergies. The advantage of the medicalert system is that more

information can be given by the hot line than can be engraved on the

emblem. No, I don't own stock in Medic Alert, it is a non-profit

organization!

Here's a couple more: http://www.medicid.com/ or

http://www.glacombe.com/medical.html

As far as what to put on the alert, that's a personal preference, and

some others may have some ideas for you. By the way, you can email

me at EDSLana@...

Love Lana

To learn more about EDS, visit our website: http://www.ceda.ca

------------------------------------------------------------------------------

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