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Hi barbara,

Thankyou for your note.

The reason for their leaning to mental health issue is

because the peditriacain is a old school dr who dosnt

still dispite pain clinic letters, reconise CRPS as a

real disease.

Yes the pain was driving her mad!!!!!So yes anixety

was a issue.But logically when she is not in pain she

is the sainist person i know!!!!!

A xray showed when we rushed her back in yesterday she

had a blockage in her bowel low down.

This was not read by specalist till a registra whose

very up with things pointed it out.

Vicki emptyied out this morning she had better colour

and less nausea.So what does that tell the drs? What

dunny all as they still think its anixety!

I had a appointment at the hospital with the bowel

surgeon, for -jane a reveiw of her op and i asked

him about vicki he is prepared to see her and moniter

her!! He agress that its physical but he is not a

pedetricain only a bowel surgeon but hes knowen vicki

for 6 years and knows her bowel.He knows three of my

girls have bowel problems.I expect in years to come

zoe will have to got hrough the mental health system

because its mental not physical lol!!!!

Yes my 7 yr old has the same bowel problem but we are

aware alot earlier so are working on resolving it.

So its been a very hectic few days life is truly never

dull.

School holidays start tomorrow for nz so kids home so

sleep in tomorrow vicki and havent aslept at all in 4

nights.

take care

regards

lois and tribe

ps bowel dr says our gentics are not compatable but

blood groups are.hence the multiple bowel disease in

the family.I have a bowel disease but i never say much

mums cant afford to give in right!

--- BARBARA TORREY wrote:

> Lois - What a struggle! I can't understand why the

> docs keep leaning towards a psychiatric diagnosis

> for Vicki unless they see something going that

> you're not picking up on. The only thing that I can

> think of is that perhaps her lab and other test

> results are coming back in the normal range so that

> they can't arrive at an easy " This must be..... "

> sort of thing. While there are psychiatric

> diagnoses where the criteria involves somatic

> complaints that the body develops in response to

> emotional disturbance, I'm not hearing anything in

> your letter that points in that direction. Could it

> be that they are recommending psychiatric care

> because of her emotional response (e.g, depression

> and anxiety) to what her body is experiencing? In

> any event, my very best wishes to you and a warmly

> felt hope that everything will start to resolve. It

> must be so painful for you to watch your daughter

> going through all of this. Barbara

>

> Lois Coulter wrote:

> Hi all

> Feel guilty asking for advice but i sure needed

> it.This month vicki has had 7 adominal migranes.She

> has had pethadine and anti nausea stuff.These pain

> spasms were about 3 monthly till till two months ago

> then they started comming thick and fast.

>

> I took the paper on rsd/crps and internal organs

> found

> out today GP hasnt read the info.

> Yesterday morning vicki came to me with a very tight

> chest and throat she couldnt speak in normal voice

> and

> was rapid breathing.Took her to the Dr they said

> maybe

> allergy to something and gave aniothistimine

> injection

> and antiinflamitry.we came home she settle

> kinda.After

> lucnh she ate a small bag of pretzels, with in

> minutes

> same symptoms back only worse, straight back to GP,

> she had two nebulisers, anit histinmine, sent home

> and

> to abvoid pretzels at all cost.

>

> We were home about half an hour and her breathing

> became rapid and she had a choking sensation again,

> rang Gp told to get a ambulance.So off we went in

> ambulance, got to hospital heart was 160 beats a

> minute.All extremtiys were low circulation,They

> monitered her for a while then settled for cotiszone

> injection it helped alittle.we were moved to over

> night observation.

>

> My girl was crying all night having massive nausea

> and

> choking feeling by 4am thismorning they gave her

> morphin.For the tummy pain.

>

> My problem is guys they are telling me it looks like

> a

> mentle health issue!!! Sent her home with a referal

> to

> a shrink.Also to take anitspamotic drug for bowel.So

> if they thinks its totally mind over matter why

> prescribe somthing?????

>

> I got her home and wow major spasm and nausea hit

> agin, she begged for a anti nausea injection took

> her

> to my GP, she gave her pain injection and antinausea

> vicki didnt respond as dr thought she would and then

> decided vicki needed to be admitted to a phsyc

> hospital.

> I picked vicki up and brought her home.

>

> If my GP had read the info she would know this is a

> sign of rsd in the internal organs and she needs to

> change from beta blockers to alpha blockers.

> I just couldnt deal with it this afternoon.I rang

> the

> shrink SJ has been seeing and told him what was

> happening we see him tomorrow, and he was really

> understanding as to how hard this is for all the

> family.

>

> I want to say to the hospital look at the info but

> i,m

> worried they will change everything and make her

> worse

> by saying no its not a chronic pain problem, but

> behaviol.I went down this road 3 years ago.We spent

> 2

> years in mentle health she was discharged and drs

> were

> told her pain was making her depressed not the other

> way round.I couldnt going through that again.

>

> Vicki is at breaking point only because they wont do

> somthign for pain.She said this is not the way she

> wants to live.

>

> ANY ADVICE would be so greatful.Yes i do believ a

> element of panic attacks make thigns worse but if

> that

> the case why dont they up her meds???

>

> help please guys.

>

>

> thankyou.

>

>

> lois and tribe

>

>

>

>

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>

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Yes the pain was driving her mad!!!!!So yes anixetywas a issue.But logically when she is not in pain sheis the sainist person i know!!!!!A xray showed when we rushed her back in yesterday shehad a blockage in her bowel low down.This was not read by specalist till a registra whosevery up with things pointed it out.Vicki emptyied out this morning she had better colourand less nausea.So what does that tell the drs? Whatdunny all as they still think its anixety!

I tell you Lois that, some of these doctors need to go back to school to learn compassion. I am sure that Vicki is feeling much better and I know for a fact that it is genetics, I inherited my Mother's oh joy, I am on constant medication so I won't hopefully have a blockage, anxiety does play a part only as a factor to make things worse, I think I have heard of another disease, that is also affected by stress.

I am sorry that she had to go through all of that, and I hope she can get the right help for this problem.

take care,

Lin

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