Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 Thanks Ginny. I've come to find out that nothing can go easily. She's comfortable right now, so I guess that's something to be thankful for. Right now, she's waiting for the mail to come. She was featured in the Children's Hospital Radiothon, and since she was too sick to attend and only got to hear the tail end of it, they've made her a CD. It depicts her story of survival, and is set to the music 'Don't Give Up.' I'm sure hoping it's in today's mail because she already asked twice. In a message dated 11/26/2004 9:48:23 AM Eastern Standard Time, RSD-CRPSofAmerica writes: Message: 3 Date: Thu, 25 Nov 2004 15:28:42 -0800 (PST) Subject: Re: ...Sorry that your daughter ended up having to have surgery yesterday..seems nothing can go easily when you need it to. I hope at next weeks drs appt they will come up with something that will help you more. Hoping you had a Great Thanksgiving..Hugs..GinnyKM86@... wrote:LinSorry to hear that your pain hasn't decreased any. Hoping the doc will have some answers for you on Thurs.I'm not getting any more rest because she's needing pain meds about every 1-2 hrs, plus my pain is off the scale. She, at least, is getting some rest, and I see a forward movement into pain control for Her.Of course, life can't go smoothly, she had emergency surgery yesterday. I took her to the hospital to have her central IV line checked. It had been giving me fits, I couldn't get her meds or Iv nutrition to go in easily, and we hit the okay guys enough is enough stage. Well they x-rayed, and it didn't look right. We ended up putting dye into it which showed it wasn't in her heart where it belonged; it had flipped upward and out. She went to surgery immediately---actually they did it in Interventional Radiology using IV conscious sedation. Because of her pain issues and pain meds she's on, they weren't able to keep her totally comfortable, but luckily she doesn't remember too much. The doc had promised her that I could go with her and stay, and he held true to his promise. That, in itself, made a great impression on her. She's doing ok now, and her pain meds seem to be helping again. I just hope the manipulation on the left side of her chest doesn't cause any spread to thatside.Somebody stop this world---I want OFF Quote Link to comment Share on other sites More sharing options...
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