Re: Barb is my hero!!!! - Was: Re: Aase Marit! Cheers to my hero!!

[Guest guest]

> It made me feel so good that I sort of could try to re-pay what I had

> received myself from Barb Uggen...

Gosh, I had forgotten all about that being how we met! It just feels like

I've known you for ages, even though we never have met in person.

It is truly amazing how the Internet has made these connections possible. I

was diagnosed before there was a single website about EDS. I remember the

very first EDS website ever. Not long after that, I learned to make web

pages myself and I did the Seattle EDS website. Both of those early

websites are long gone and so is that original EDS list.

Now, there are over 60 email lists for people with EDS. I just updated this

list last week.

http://www.edstoday.org/support/internet.htm I remember when the very first

list was created. I think I was the 5th person to join back in 1995. The

EDS Community has made tremendous growth through the Internet over the last

9 years. I'm just glad to have played a small part.

-Barb

[Guest guest]

Hi Aase Marit,

Wow! What a story! Now I feel kind of like I am related to you and to Barb in

some new, strange way,,, you know, like passing down the torch from Barb to

you to me has made us all related! )

I hope that some day, I will get the opportunity to meet you in person also.

I think that it is so wonderful that you are able to come....or at least are

able to swing it all...all the way from Norway to the conference. Never having

been there, it must be a great time and one of lots of all-nighters staying up

til the wee hours of dawn talking to " old " new friends.

Boo hoo hoo, I wanna come too!!

I loved reading your letter and am so glad that you are back!

[Guest guest]

Hi Aase Marit,

Wow! What a story! Now I feel kind of like I am related to you and to Barb in

some new, strange way,,, you know, like passing down the torch from Barb to

you to me has made us all related! )

I hope that some day, I will get the opportunity to meet you in person also.

I think that it is so wonderful that you are able to come....or at least are

able to swing it all...all the way from Norway to the conference. Never having

been there, it must be a great time and one of lots of all-nighters staying up

til the wee hours of dawn talking to " old " new friends.

Boo hoo hoo, I wanna come too!!

I loved reading your letter and am so glad that you are back!