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A Novel that talks about EDS

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The Beauty: A Novel

by Gloria Nagy

There is a character in this book with EDS. It is only mentioned once and I

get the impression that perhaps the character with EDS is the " bad guy " but

I don't know enough without reading the book. Here is the text regarding

EDS:

Page 191-192

" There was a bill for emergency room services and medications attached to a

lab report with a lot of medical numbers and mumbo jumbo that I couldn't

understand. But one thing stood out, the diagnosis:

Fees and services for hip dislocation

caused by Ehlers-Danlos syndrome, type III

hypermobility.

The room was too cold and I shuddered. I blew out the candle, switched off

the AC, turned on the desk light, and thanked God for the Internet. It took

a bit of time to find, but finally up it came. I scanned, scrolling through

pages of medical technology.

Ehlers-Danlos syndrome, also known as India rubber man's

disease. The severity of Ehlers-Danlos syndrome can range

from having loose joints which may dislocate easily with few

other complications to... The underlying features of all

forms of EDS is a defect in the molecule which makes

up the connective tissues (skin, ligaments, tendons)... All

forms of EDS are inherited and appear early in childhood...

The defects are in the collagen molecules... Type III, benign

hypermobility: Skin may be soft and velvety. Joint hyper-

mobility is generalized, affecting large (elbows, knees hips)

and small (fingers, toes)... joint dislocations are common

and can be done at will.

She did it on purpose. "

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