Re: Donna and a question about concentration

[Guest guest]

Gees, Tonia. It's a shame that they don't have public transportation or disability vans out where you are. Although getting approved for the disability van was a mixed blessing for me, I'm sure I will be grateful for it since it will allow me to get back to work earlier than if I had to wait until I was able to drive. BarbaraTonia wrote:

Donna,

Good luck.....

I wish I was lucky enough to be able to go and find ANY kind of job that I could do that would work with me and the restrictions that I have. I could really use the money right now, plus just being able to get out of my house and be able to be around ADULTS during the day would be a Dream come true for me. Unfortunately, no matter what I do, I would have to drive 30 minutes to get anywhere......and that's the biggest problem that I have in front of me. I can't handle the drive, and living where I do, there is no such thing as public transportation.....no taxi's, no bus's, no handicaped transportation....nothing. It's called either I have to drive myself, or Gene would have to drive me unless I found a job where there was someone else from my town that works at the same place and would drive all the time.

And, if Gene would have to drive me there........that would mean he'd have to drive me 25 miles there, 25 back, 25 to pick me up, 25 back........that's a lot of gas and time for him just driving himself. It would be easier for him to just get a job instead and me to just stay home as usual. Which, would be just as depressing as it is now.......

As you can tell, I'm so depressed about having to stay at home all the time, having no money and no outside contact with anyone. Being able to work would be the greatest thing possible for me right now, but, it's impossible.

Just make sure that you follow your doctor's restrictions and don't do anything that you don't have to do!

Tonia

-------Original Message-------

I am happy to be returning to work part time but my pain dr has limited my restrictions greatly so that if they want to accept them as they are written then I wont be doing much more at work than I am at home. I have hrs as tolerated and a 5 pound max lifting restrictions. The restriction has no time listed on it and probably wont for quite awhile. They have to accept that I have OT and PT appts, neurological appts and pain clinic appts and that I will schedule my work around them not the other way around. Seeing people outside of home will be nice but I know its going to be a strain on my system which is already miserable because of the weather, the change in burning and the fac that Im weaning off of Ultram and switching to percocet.

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[Guest guest]

Thank you Lin, Ginny and I were chatting about it this morning and

she promises to keep me in line since of everyone I come in contact

with, shes the only one who truly understands and sees the stree I

tend to put my body under. Feeling like I do tonight really puts

things into perspective...Im going up on Neurontin and Zoloft at the

same time Im coming off of Ultram..so with almost no pain med in me

its really doing a number on me and places that have never burned

before are rearing their ugly heads at me, so all that combined has

made me very irritable and very sore, Im headed to bed shortly

because sleep once it comes brings moments of relief.

Im going away tomorrow morning to the Cape over night and Im hoping

to at least enjoy the day and rest well at night.

I hope that everyone has a wonderful weekend and I'll chat with you

all soon.

Hugs

Donna

I really hope that it

> is not going to prove to overwhelming for you.

> With my job I had to come back at full time or not at all, and with

the concentration I had before. > Take care Donna and I hope you a

have a low pain weekend.

[Guest guest]

Tonia, I am too faced with that problem, that it would have to be a job that I could do when able and be off when need be. Plus there may be some jobs around here the best jobs are in Portland which is 45 minutes one way, and with my right now going to be as bad as my left in a week or so, each day it seems to be getting worse, I am in a major flare today, I went shopping with my daughter to 2 stores but I used my walker and not wheel chair, and I knew we forgot it when we were just about to the stores but I did get some more Christmas and birthdays presents gotten. We have birthdays in Nov on the 22 which is my sister's and 1 of my son-in-law is the 29th. The in DEC we have Dwight's on the 14th and the most important one is Katelin's which is on the 27th, and last but not least 's birthday is the 14th of January. After that we space things out a little better. Dean's is in Feb. Mine is in March and 's is in Sept. So while I am Christmas shopping I also have to birthday shop. But I have all the birthday presents bought or are on the way

Anyway back to the flare up, Dwight and I got into a fight , or rather he got upset with me because I sent a bill or ours sown to and Ronnie and they called me and low and behold I forgot about so there is a late fee on it. So last night and all night I have had l level 9 pain with terrible cramping and jumping in my legs.

Donna I wish you well and I hope that this will be a good change for and that it won't too taxing on you so you will be able to keep doing it so I am saying to

Lin

Donna,

Good luck.....

I wish I was lucky enough to be able to go and find ANY kind of job that I could do that would work with me and the restrictions that I have. I could really use the money right now, plus just being able to get out of my house and be able to be around ADULTS during the day would be a Dream come true for me. Unfortunately, no matter what I do, I would have to drive 30 minutes to get anywhere......and that's the biggest problem that I have in front of me. I can't handle the drive, and living where I do, there is no such thing as public transportation.....no taxi's, no bus's, no handicaped transportation....nothing. It's called either I have to drive myself, or Gene would have to drive me unless I found a job where there was someone else from my town that works at the same place and would drive all the time.

And, if Gene would have to drive me there........that would mean he'd have to drive me 25 miles there, 25 back, 25 to pick me up, 25 back........that's a lot of gas and time for him just driving himself. It would be easier for him to just get a job instead and me to just stay home as usual. Which, would be just as depressing as it is now.......

As you can tell, I'm so depressed about having to stay at home all the time, having no money and no outside contact with anyone. Being able to work would be the greatest thing possible for me right now, but, it's impossible.

Just make sure that you follow your doctor's restrictions and don't do anything that you don't have to do!

Tonia

[Guest guest]

Ginny,

I can't read a book for even I hour, and the last Harry Potter I sat down one Saturday morn and finished by

Sunday afternoon. I think I slept some, but I am not sure.

About forgetting things , if you read an earlier e-mail then you know what i forgot and it cost us a 35 dollar late fee.

I am always going into another room and have to stand there to think up why I was in the room to get. I thought all day on Wednesday that it was Thursday and I even got mad when I went to turn on my favorite show CSI Vegas and it wasn't until I saw something that said Wednesday that if finally clicked. This is the most frustrating aspect for me of this disease, I hate my mind not being as sharp as it was, but thank you for sharing your frustrating it is always nice to know that you have a person who knows what you are talking about, and now I don't feel alone.

Thank you,

Ginny

-- Re: Donna and a question about concentration

Lin,

Yes I used to fall asleep at 3pm no matter what I was doing...cleaning someone's teeth...writing checks..didn't matter if i didn't think i was tired or not I was asleep at 3pm. I have a very hard time concentrating...even when reading a book I love. I also have short term memory loss..someone can tell me to get something from the other room and I get there and can't remember what i was supposed to get. I have trouble remember simple words or names of things that i should know. I sometimes get the wrong name for something but it's in the same catergory...like I can't wait til christmas when meaning halloween..but at least it was a holiday I named. I think it is a combo of the disease and medication...cause I had memory loss now for 4 yrs and it has just gotten worse with each year...and that was way before I was on any med I am now on. you are definetly not alone...Hugs..Ginny

[Guest guest]

Lin...it would be a funny segment if it was aired on court TV. A bad who's on first act...lol. I would tell the prosecuter I don't remember what I had for breakfast How am I to remember such and such date and what I did then. Dr S..never heard of him...I think...maybe I do know him...was he on the Cosby show...oh no that was dr Huxtable...hm dr S...nope don't remember a dr S...oh wait did he do a medical examiner's show..nope I think that was dr Quincy...hmmm...nope don't remember a Dr S...lol. Did he treat me? Did he write a self help book? Was he ever on Oprah? It would be funny...bet court tv would have a blast with our trial..lol..Hugs..Ginny wrote:

Ginny,

We would be on the stand and the Prosecutor would ask us did you on such and such a day kidnap Dr. S. and we would say I don't remember, who is this Dr. S., was I a patient of his?

We would have the poor prosecutor so confused he wouldn't know which was up.

Lin

We could always say we don't remember kidnapping dr S...and most likely we won't remember..lmao. I think we wouldn't have to be cell mates bet we would definetly get off if we could remember what our defense was..lol..Hugs..Ginny