Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 > Lyn, I am sorry that your RSD came back. I guess there is no escaping it. The positive is you did have remission for a while. I guess we should take advantage of every good day. I live in North Louisiana and it seeems that everyone in this group lives so far away. JoAnn lives about 6 -7 hours away and I don't know if I can make that drive alone. I wish I had someone here, just as you said to hug and cry with me. Thank goodness for this group. They have helped me so much. I am still having a flare-up and in a lot of pain. I would cry but it doesn't help, does it? I am on new anti-depressant and have been on it for one week maybe two, time flies. HAHA! Have you ever taken CYMBALTA? It is supposed to be a rather new drug. I don't think it's doing as well as the Lexapro was but I gotta give it time. Thank you so much for writing I needed to hear from someone today. You are a blessing. Let's talk again soon. I am still embarrassed about the cane and wearing flat shoes but did go to work like that THursday and survived but now my daughter is in a wedding and I am about to go and everyone will see me. I almost chickened out but decided this was one of those dragons I must slay. I have to get over fear and learn to relax and accept myself. I could write a book. I am going to get a map and start doing the pins or dots so I can keep up with everyone also. Do you know of anyway of getting everyone's birthdays, addresses, phone numbers,etc.? I feel like this group is my only group of friends. All my others have moved on. I gotta go for now. Love you and thanks again, Debbie > > Date: 2004/11/13 Sat PM 06:42:34 EST > To: RSD-CRPSofAmerica > Subject: Debbie Ducote > > Hello, my name is Lyn. We haven't met yet so I'd like to introduce myself. I have RSD originally from a horse accident involving a crush and compound fracture of my left foot/leg 10 years ago. After 6 six years of pain I went in to remission for 4 years. Just recently it came back full force and more. You wrote: " I have a cane I started using this week and I feel scared. I have to rest and I am going to listen to some ocean music and turn off the lights and just be quiet. I am hoping that works. I went to the psychologist today and he says that I have to acknowledge that I am sick and sometimes must rest. Have you ever felt just defeated? That's where I am now. " I think everyone here has or is having their own version of this scene and feels deeply for you. I know that I want to transport myself to your front porch in LA and give you a tender hug. I just came out of one whopper of a downer and just want to encourage you to continue to take care of yourself. Where in LA do you live? I live in Central Oregon (where it snows). I'd like to put a pin in my map for you so I can really see you when I read your posts. My love to you, Lyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Debbie, I see birthday reminders posted but I'm not sure how that is handled. And there is a page for contacts however only a few posted so I'm thinking it is something to develop privately and then share when appropriate. I do know what you are saying about the cane, the flat shoes, all the " things " that go along with managing.....the change in the outer self image. It sounds like you are moving through this with bravery. Even though I thought I knew myself and my values I wasn't prepared for the feelings of being no longer worthy. Don't ask me worthy of what because I can't tell you anything that would make sense. I was ashamed and I didn't know why. Now what I see is that everyone in their own life time struggles with the ageless question of Who AM I? and then they busily seek outside of themselves to prove who they are maybe spending years running around in the wrong field looking for the answers. For us with the debilitating nature of RSD must cut to the chase. Everything is taken from us and all we have left is our insides. And there is where we do our battle. Until I went through it I didn't realize that I had an image that was wrapped up in the " doing " of life. It seems that my worth was hinged entirely on what I did. Apparently the answer to the question of " Who Am I? " was not in the best shape. RSD changed me big time and it is still doing its work. I'd like to think it is changing me for the good. For me sometimes having a good cry is a release. Other times it is not. I don't know what makes the difference but sometimes in my body I feel it make a change for the better. Maybe it is just letting go of bracing against the pain. I haven't taken Cymbalta. I haven't started any meds except pain meds this time. I was on Trazadone and Zoloft for years. Did your DR tell you how long it takes to work? I am glad you and I have this group. I have a unique situation in that I know what it was like to have RSD for years and never have anyone truly understand what I was experiencing and then get better. Even sharing the success of remission could not be understood. People said " Oh, that's nice. " It was a very lonely place. What a blessing this time to have a place to come and really feel understood and heard. Hang in there, my dear, we will help each other grow. I can give you the names and towns I have if you want to locate them on your own map. What is the name of your town in North Louisiana? Lots of love to you, Lyn <ducotedm@b...> wrote: > > > Lyn, I am sorry that your RSD came back. I guess there is no escaping it. The positive is you did have remission for a while. I guess we should take advantage of every good day. I live in North Louisiana and it seeems that everyone in this group lives so far away. JoAnn lives about 6 -7 hours away and I don't know if I can make that drive alone. I wish I had someone here, just as you said to hug and cry with me. Thank goodness for this group. They have helped me so much. I am still having a flare-up and in a lot of pain. I would cry but it doesn't help, does it? I am on new anti- depressant and have been on it for one week maybe two, time flies. HAHA! Have you ever taken CYMBALTA? It is supposed to be a rather new drug. I don't think it's doing as well as the Lexapro was but I gotta give it time. Thank you so much for writing I needed to hear from someone today. You are a blessing. Let's talk again soon. I am still embarrassed about the cane and wearing flat shoes but did go to work like that THursday and survived but now my daughter is in a wedding and I am about to go and everyone will see me. I almost chickened out but decided this was one of those dragons I must slay. I have to get over fear and learn to relax and accept myself. I could write a book. I am going to get a map and start doing the pins or dots so I can keep up with everyone also. Do you know of anyway of getting everyone's birthdays, addresses, phone numbers,etc.? I feel like this group is my only group of friends. All my others have moved on. I gotta go for now. > Love you and thanks again, > Debbie > > From: " lynlorraine " <lynlorraine@y...> > > Date: 2004/11/13 Sat PM 06:42:34 EST > > To: RSD-CRPSofAmerica > > Subject: Debbie Ducote > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2004 Report Share Posted November 13, 2004 Debbie, I see birthday reminders posted but I'm not sure how that is handled. And there is a page for contacts however only a few posted so I'm thinking it is something to develop privately and then share when appropriate. I do know what you are saying about the cane, the flat shoes, all the " things " that go along with managing.....the change in the outer self image. It sounds like you are moving through this with bravery. Even though I thought I knew myself and my values I wasn't prepared for the feelings of being no longer worthy. Don't ask me worthy of what because I can't tell you anything that would make sense. I was ashamed and I didn't know why. Now what I see is that everyone in their own life time struggles with the ageless question of Who AM I? and then they busily seek outside of themselves to prove who they are maybe spending years running around in the wrong field looking for the answers. For us with the debilitating nature of RSD must cut to the chase. Everything is taken from us and all we have left is our insides. And there is where we do our battle. Until I went through it I didn't realize that I had an image that was wrapped up in the " doing " of life. It seems that my worth was hinged entirely on what I did. Apparently the answer to the question of " Who Am I? " was not in the best shape. RSD changed me big time and it is still doing its work. I'd like to think it is changing me for the good. For me sometimes having a good cry is a release. Other times it is not. I don't know what makes the difference but sometimes in my body I feel it make a change for the better. Maybe it is just letting go of bracing against the pain. I haven't taken Cymbalta. I haven't started any meds except pain meds this time. I was on Trazadone and Zoloft for years. Did your DR tell you how long it takes to work? I am glad you and I have this group. I have a unique situation in that I know what it was like to have RSD for years and never have anyone truly understand what I was experiencing and then get better. Even sharing the success of remission could not be understood. People said " Oh, that's nice. " It was a very lonely place. What a blessing this time to have a place to come and really feel understood and heard. Hang in there, my dear, we will help each other grow. I can give you the names and towns I have if you want to locate them on your own map. What is the name of your town in North Louisiana? Lots of love to you, Lyn <ducotedm@b...> wrote: > > > Lyn, I am sorry that your RSD came back. I guess there is no escaping it. The positive is you did have remission for a while. I guess we should take advantage of every good day. I live in North Louisiana and it seeems that everyone in this group lives so far away. JoAnn lives about 6 -7 hours away and I don't know if I can make that drive alone. I wish I had someone here, just as you said to hug and cry with me. Thank goodness for this group. They have helped me so much. I am still having a flare-up and in a lot of pain. I would cry but it doesn't help, does it? I am on new anti- depressant and have been on it for one week maybe two, time flies. HAHA! Have you ever taken CYMBALTA? It is supposed to be a rather new drug. I don't think it's doing as well as the Lexapro was but I gotta give it time. Thank you so much for writing I needed to hear from someone today. You are a blessing. Let's talk again soon. I am still embarrassed about the cane and wearing flat shoes but did go to work like that THursday and survived but now my daughter is in a wedding and I am about to go and everyone will see me. I almost chickened out but decided this was one of those dragons I must slay. I have to get over fear and learn to relax and accept myself. I could write a book. I am going to get a map and start doing the pins or dots so I can keep up with everyone also. Do you know of anyway of getting everyone's birthdays, addresses, phone numbers,etc.? I feel like this group is my only group of friends. All my others have moved on. I gotta go for now. > Love you and thanks again, > Debbie > > From: " lynlorraine " <lynlorraine@y...> > > Date: 2004/11/13 Sat PM 06:42:34 EST > > To: RSD-CRPSofAmerica > > Subject: Debbie Ducote > > > > Quote Link to comment Share on other sites More sharing options...
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