Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Aww, . This is breaking my heart. As if Stacey didn't have enough struggles already. I will keep her in my thoughts and prayers....Someone needs to look down here and pay attention to the need to distributing troubles more evenly. Barbara KM86@... wrote: Hey guys Wanted to let you know that my daughter saw the pain doc today. He's also seeing her again next week to be sure things are going okay. Said he'd be going out of town the following week and wanted to be sure we had some comfort and plans in place. It about broke my heart, and his too, when they slightly touched her side and she jumped up and started crying. We're starting a Gabapentin, Amitriptylene, Ketamine, and Lidocaine gel to her side three times a day. Some of the things we discussed for down the road were increasing the Duragesic, going to Methadone, increasing the morphine, and epidermal to break the pain cycle so that we could regain control. He said he could take care of getting control of the pain and treating it, but that he would like to leave it up to you to investigate the cause from a neuro standpoint, and GI to figure out possible cause from their standpoint. For now---he's trying desperately to not confirm RSD/CRPS. He's pushing for her neuro and GI to step in and help come up with some answers too. Somehow deep down, I don't think I want to know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Aww, . This is breaking my heart. As if Stacey didn't have enough struggles already. I will keep her in my thoughts and prayers....Someone needs to look down here and pay attention to the need to distributing troubles more evenly. Barbara KM86@... wrote: Hey guys Wanted to let you know that my daughter saw the pain doc today. He's also seeing her again next week to be sure things are going okay. Said he'd be going out of town the following week and wanted to be sure we had some comfort and plans in place. It about broke my heart, and his too, when they slightly touched her side and she jumped up and started crying. We're starting a Gabapentin, Amitriptylene, Ketamine, and Lidocaine gel to her side three times a day. Some of the things we discussed for down the road were increasing the Duragesic, going to Methadone, increasing the morphine, and epidermal to break the pain cycle so that we could regain control. He said he could take care of getting control of the pain and treating it, but that he would like to leave it up to you to investigate the cause from a neuro standpoint, and GI to figure out possible cause from their standpoint. For now---he's trying desperately to not confirm RSD/CRPS. He's pushing for her neuro and GI to step in and help come up with some answers too. Somehow deep down, I don't think I want to know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 > > Hey guys > > Wanted to let you know that my daughter saw the pain doc today. He's also > seeing her again next week to be sure things are going okay. Said he'd be > going out of town the following week and wanted to be sure we had some comfort > and plans in place. > > It about broke my heart, and his too, when they slightly touched her side > and she jumped up and started crying. Hi - I don't have anything even remotely helpful or comforting to say to you...the best thing I know how to do for you is pray. I have been and will continue to keep praying for you and yours, that you might get some relief. Love, Cliff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 > > Hey guys > > Wanted to let you know that my daughter saw the pain doc today. He's also > seeing her again next week to be sure things are going okay. Said he'd be > going out of town the following week and wanted to be sure we had some comfort > and plans in place. > > It about broke my heart, and his too, when they slightly touched her side > and she jumped up and started crying. Hi - I don't have anything even remotely helpful or comforting to say to you...the best thing I know how to do for you is pray. I have been and will continue to keep praying for you and yours, that you might get some relief. Love, Cliff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 , I am so glad that, if nothing else, you have such a wonderful Dr. taking care of your daughter. Deb (debgena) has been using the compounding gels for several years and, I believe, is satisfied with the way they work, so hopefully, this will be the case with your daughter as well. My thoughts and prayers are with you both.... Are you taking care of YOU? Hugs, Jo Quote Link to comment Share on other sites More sharing options...
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