Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 1. If you are interested in learning a bit about some of the folks here, we have a bio page. This biopage is open for new people as well, if you'd like to share a bit about yourself, please send me your bio! Our biopage is located here: http://members.rogers.com/ceda/photopage/biopage.htm 2. Are you interested in seeing what we look like? We have a photopage, which anyone is welcome to contribute to! http://members.rogers.com/ceda/photopage/ If you have a bio or a picture up on one of these pages already and you'd like to change it, please let me know! Some pictures seem to have gone missing from the photopage. If this is you, please let me know and send along another photo if you can! Sorry about the inconvenience... 3. We have a chatroom, that is open 24 hours a day, but has organized chats on Wednesdays and Saturday nights from 8:00 pm eastern standard time (GMT-5:00). All are welcome! To get there, login with your yahoo ID to: http://groups.yahoo.com/group/ceda/ And click on the 'chat' button to your left. Don't have a Yahoo ID? No worries, you can get one here: http://help.yahoo.com/help/us/groups/groups-48.html Having a Yahoo ID is useful, as it will allow you to access features attached to our list, like polls, databases, files and of course, our chatroom! It will also allow you to establish your mail preferences, permit you to remove yourself for vacation, etc. 4. Our birthday list is a way to help us celebrate something positive. If you have a birthday and would like us to share in your happiness, please let me know and I'll post your day on our calendar. When your day arrives, an announcement will be sent to the list to mark the event. 5. Our physicians list is a useful tool for people looking for doctors who are familiar with EDS in their area. This list is compiled by the generous people on this list, and although the doctors listed in it are not experts in EDS, they have treated it before and have been recommended by a fellow person with EDS. If you are looking for a doctor, please let me know where you live and I will hopefully have a doctor in your area that you can see. If not in your area, perhaps in a surrounding area? If you are willing to travel, please let me know where and perhaps there will be someone elsewhere for you to consult. 6. Annually we have a postcard program that runs in the late spring/early summer. This program is a fun one, where participants submit their mailing addresses and exchange them with others in the program and we sent one another postcards from the areas we live in. It's a fun and cheap way to travel! Plenty of notice is given to allow for greater participation for all. 7. Annually we have a greeting card program in December, which works the same way that the greeting card program functions. Plenty of notice is given to allow for greater participation for all. 8. There is a secret sender program here, which involves sending of inexpensive gifts to a person, who is oblivious to your identity! In exchange, you too receive gifts from an anonymous participant. At the end of the program, all participants reveal who they sent their gifts to and the secret is revealed! This program is great fun. I am not sure when te next round of this will start again, keep watching for it! 9. Occasionally we have polls on the list. These polls are anonymous when you particpate (your e-mail address is not logged when you vote) and are solely for the purpose of information gathering about a specific topic, statistics which may benefit others ultimately if we can see that we are common in a symptom or issue. You can see past polls be logging in with your yahooID and going here: http://groups.yahoo.com/group/ceda/polls If you have an idea for a poll, or just want to poll us for something in particular, please feel free to create your own poll! That may cover us, please feel free to jump in and say hello, the water is warm here and no one bites! Beth for Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Beth Just wondering how come I couldn't access the bio page??? Betty A Bit About This List > 1. If you are interested in learning a bit about some of the folks here, we > have a bio page. This biopage is open for new people as well, if you'd like > to > share a bit about yourself, please send me your bio! > > Our biopage is located here: > > http://members.rogers.com/ceda/photopage/biopage.htm > > > > 2. Are you interested in seeing what we look like? We have a photopage, > which anyone is welcome to contribute to! > > http://members.rogers.com/ceda/photopage/ > > If you have a bio or a picture up on one of these pages already and you'd > like > to change it, please let me know! Some pictures seem to have gone missing > from > the photopage. If this is you, please let me know and send along another > photo > if you can! Sorry about the inconvenience... > > > > 3. We have a chatroom, that is open 24 hours a day, but has organized chats > on Wednesdays and Saturday nights from 8:00 pm eastern standard time > (GMT-5:00). All are welcome! > > To get there, login with your yahoo ID to: > > http://groups.yahoo.com/group/ceda/ > > And click on the 'chat' button to your left. > > Don't have a Yahoo ID? No worries, you can get one here: > > http://help.yahoo.com/help/us/groups/groups-48.html > > Having a Yahoo ID is useful, as it will allow you to access features > attached > to our list, like polls, databases, files and of course, our chatroom! It > will > also allow you to establish your mail preferences, permit you to remove > yourself for vacation, etc. > > > > 4. Our birthday list is a way to help us celebrate something positive. If > you have a birthday and would like us to share in your happiness, please let > me > know and I'll post your day on our calendar. When your day arrives, an > announcement will be sent to the list to mark the event. > > > > 5. Our physicians list is a useful tool for people looking for doctors who > are familiar with EDS in their area. This list is compiled by the generous > people on this list, and although the doctors listed in it are not experts > in > EDS, they have treated it before and have been recommended by a fellow > person > with EDS. If you are looking for a doctor, please let me know where you live > and I will hopefully have a doctor in your area that you can see. If not in > your area, perhaps in a surrounding area? If you are willing to travel, > please > let me know where and perhaps there will be someone elsewhere for you to > consult. > > > 6. Annually we have a postcard program that runs in the late spring/early > summer. This program is a fun one, where participants submit their mailing > addresses and exchange them with others in the program and we sent one > another > postcards from the areas we live in. It's a fun and cheap way to travel! > Plenty of notice is given to allow for greater participation for all. > > > > 7. Annually we have a greeting card program in December, which works the > same way that the greeting card program functions. Plenty of notice is given > to allow for greater participation for all. > > > > 8. There is a secret sender program here, which involves sending of > inexpensive gifts to a person, who is oblivious to your identity! In > exchange, > you too receive gifts from an anonymous participant. At the end of the > program, all participants reveal who they sent their gifts to and the secret > is > revealed! This program is great fun. I am not sure when te next round of > this will start again, keep watching for it! > > > > 9. Occasionally we have polls on the list. These polls are anonymous when > you > particpate (your e-mail address is not logged when you vote) and are solely > for > the purpose of information gathering about a specific topic, statistics > which > may benefit others ultimately if we can see that we are common in a symptom > or > issue. You can see past polls be logging in with your yahooID and going > here: > > http://groups.yahoo.com/group/ceda/polls > > If you have an idea for a poll, or just want to poll us for something in > particular, please feel free to create your own poll! > > > > That may cover us, please feel free to jump in and say hello, the water is > warm > here and no one bites! > > Beth for > > Jill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Beth Just wondering how come I couldn't access the bio page??? Betty A Bit About This List > 1. If you are interested in learning a bit about some of the folks here, we > have a bio page. This biopage is open for new people as well, if you'd like > to > share a bit about yourself, please send me your bio! > > Our biopage is located here: > > http://members.rogers.com/ceda/photopage/biopage.htm > > > > 2. Are you interested in seeing what we look like? We have a photopage, > which anyone is welcome to contribute to! > > http://members.rogers.com/ceda/photopage/ > > If you have a bio or a picture up on one of these pages already and you'd > like > to change it, please let me know! Some pictures seem to have gone missing > from > the photopage. If this is you, please let me know and send along another > photo > if you can! Sorry about the inconvenience... > > > > 3. We have a chatroom, that is open 24 hours a day, but has organized chats > on Wednesdays and Saturday nights from 8:00 pm eastern standard time > (GMT-5:00). All are welcome! > > To get there, login with your yahoo ID to: > > http://groups.yahoo.com/group/ceda/ > > And click on the 'chat' button to your left. > > Don't have a Yahoo ID? No worries, you can get one here: > > http://help.yahoo.com/help/us/groups/groups-48.html > > Having a Yahoo ID is useful, as it will allow you to access features > attached > to our list, like polls, databases, files and of course, our chatroom! It > will > also allow you to establish your mail preferences, permit you to remove > yourself for vacation, etc. > > > > 4. Our birthday list is a way to help us celebrate something positive. If > you have a birthday and would like us to share in your happiness, please let > me > know and I'll post your day on our calendar. When your day arrives, an > announcement will be sent to the list to mark the event. > > > > 5. Our physicians list is a useful tool for people looking for doctors who > are familiar with EDS in their area. This list is compiled by the generous > people on this list, and although the doctors listed in it are not experts > in > EDS, they have treated it before and have been recommended by a fellow > person > with EDS. If you are looking for a doctor, please let me know where you live > and I will hopefully have a doctor in your area that you can see. If not in > your area, perhaps in a surrounding area? If you are willing to travel, > please > let me know where and perhaps there will be someone elsewhere for you to > consult. > > > 6. Annually we have a postcard program that runs in the late spring/early > summer. This program is a fun one, where participants submit their mailing > addresses and exchange them with others in the program and we sent one > another > postcards from the areas we live in. It's a fun and cheap way to travel! > Plenty of notice is given to allow for greater participation for all. > > > > 7. Annually we have a greeting card program in December, which works the > same way that the greeting card program functions. Plenty of notice is given > to allow for greater participation for all. > > > > 8. There is a secret sender program here, which involves sending of > inexpensive gifts to a person, who is oblivious to your identity! In > exchange, > you too receive gifts from an anonymous participant. At the end of the > program, all participants reveal who they sent their gifts to and the secret > is > revealed! This program is great fun. I am not sure when te next round of > this will start again, keep watching for it! > > > > 9. Occasionally we have polls on the list. These polls are anonymous when > you > particpate (your e-mail address is not logged when you vote) and are solely > for > the purpose of information gathering about a specific topic, statistics > which > may benefit others ultimately if we can see that we are common in a symptom > or > issue. You can see past polls be logging in with your yahooID and going > here: > > http://groups.yahoo.com/group/ceda/polls > > If you have an idea for a poll, or just want to poll us for something in > particular, please feel free to create your own poll! > > > > That may cover us, please feel free to jump in and say hello, the water is > warm > here and no one bites! > > Beth for > > Jill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Beth Just wondering how come I couldn't access the bio page??? Betty A Bit About This List > 1. If you are interested in learning a bit about some of the folks here, we > have a bio page. This biopage is open for new people as well, if you'd like > to > share a bit about yourself, please send me your bio! > > Our biopage is located here: > > http://members.rogers.com/ceda/photopage/biopage.htm > > > > 2. Are you interested in seeing what we look like? We have a photopage, > which anyone is welcome to contribute to! > > http://members.rogers.com/ceda/photopage/ > > If you have a bio or a picture up on one of these pages already and you'd > like > to change it, please let me know! Some pictures seem to have gone missing > from > the photopage. If this is you, please let me know and send along another > photo > if you can! Sorry about the inconvenience... > > > > 3. We have a chatroom, that is open 24 hours a day, but has organized chats > on Wednesdays and Saturday nights from 8:00 pm eastern standard time > (GMT-5:00). All are welcome! > > To get there, login with your yahoo ID to: > > http://groups.yahoo.com/group/ceda/ > > And click on the 'chat' button to your left. > > Don't have a Yahoo ID? No worries, you can get one here: > > http://help.yahoo.com/help/us/groups/groups-48.html > > Having a Yahoo ID is useful, as it will allow you to access features > attached > to our list, like polls, databases, files and of course, our chatroom! It > will > also allow you to establish your mail preferences, permit you to remove > yourself for vacation, etc. > > > > 4. Our birthday list is a way to help us celebrate something positive. If > you have a birthday and would like us to share in your happiness, please let > me > know and I'll post your day on our calendar. When your day arrives, an > announcement will be sent to the list to mark the event. > > > > 5. Our physicians list is a useful tool for people looking for doctors who > are familiar with EDS in their area. This list is compiled by the generous > people on this list, and although the doctors listed in it are not experts > in > EDS, they have treated it before and have been recommended by a fellow > person > with EDS. If you are looking for a doctor, please let me know where you live > and I will hopefully have a doctor in your area that you can see. If not in > your area, perhaps in a surrounding area? If you are willing to travel, > please > let me know where and perhaps there will be someone elsewhere for you to > consult. > > > 6. Annually we have a postcard program that runs in the late spring/early > summer. This program is a fun one, where participants submit their mailing > addresses and exchange them with others in the program and we sent one > another > postcards from the areas we live in. It's a fun and cheap way to travel! > Plenty of notice is given to allow for greater participation for all. > > > > 7. Annually we have a greeting card program in December, which works the > same way that the greeting card program functions. Plenty of notice is given > to allow for greater participation for all. > > > > 8. There is a secret sender program here, which involves sending of > inexpensive gifts to a person, who is oblivious to your identity! In > exchange, > you too receive gifts from an anonymous participant. At the end of the > program, all participants reveal who they sent their gifts to and the secret > is > revealed! This program is great fun. I am not sure when te next round of > this will start again, keep watching for it! > > > > 9. Occasionally we have polls on the list. These polls are anonymous when > you > particpate (your e-mail address is not logged when you vote) and are solely > for > the purpose of information gathering about a specific topic, statistics > which > may benefit others ultimately if we can see that we are common in a symptom > or > issue. You can see past polls be logging in with your yahooID and going > here: > > http://groups.yahoo.com/group/ceda/polls > > If you have an idea for a poll, or just want to poll us for something in > particular, please feel free to create your own poll! > > > > That may cover us, please feel free to jump in and say hello, the water is > warm > here and no one bites! > > Beth for > > Jill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Betty, Unfortunately, the website is still down due to the isp problems that Jill is currently having. Once those are resolved, then the page will be back up. Beth Re: A Bit About This List > Beth > Just wondering how come I couldn't access the bio page??? > Betty > ----- Original Message ----- > > To: <ceda > > Sent: Monday, January 26, 2004 8:42 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Betty, Unfortunately, the website is still down due to the isp problems that Jill is currently having. Once those are resolved, then the page will be back up. Beth Re: A Bit About This List > Beth > Just wondering how come I couldn't access the bio page??? > Betty > ----- Original Message ----- > > To: <ceda > > Sent: Monday, January 26, 2004 8:42 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Betty, Unfortunately, the website is still down due to the isp problems that Jill is currently having. Once those are resolved, then the page will be back up. Beth Re: A Bit About This List > Beth > Just wondering how come I couldn't access the bio page??? > Betty > ----- Original Message ----- > > To: <ceda > > Sent: Monday, January 26, 2004 8:42 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Thanks so much. Re: A Bit About This List > > > > Beth > > Just wondering how come I couldn't access the bio page??? > > Betty > > ----- Original Message ----- > > > > To: <ceda > > > Sent: Monday, January 26, 2004 8:42 AM > > > To learn more about EDS, visit our website: http://www.ceda.ca > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Thanks so much. Re: A Bit About This List > > > > Beth > > Just wondering how come I couldn't access the bio page??? > > Betty > > ----- Original Message ----- > > > > To: <ceda > > > Sent: Monday, January 26, 2004 8:42 AM > > > To learn more about EDS, visit our website: http://www.ceda.ca > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Thanks so much. Re: A Bit About This List > > > > Beth > > Just wondering how come I couldn't access the bio page??? > > Betty > > ----- Original Message ----- > > > > To: <ceda > > > Sent: Monday, January 26, 2004 8:42 AM > > > To learn more about EDS, visit our website: http://www.ceda.ca > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Top link doesn't workk for me. Robin Beth Patton wrote: 1. If you are interested in learning a bit about some of the folks here, we have a bio page. This biopage is open for new people as well, if you'd like to share a bit about yourself, please send me your bio! Our biopage is located here: http://members.rogers.com/ceda/photopage/biopage.htm 2. Are you interested in seeing what we look like? We have a photopage, which anyone is welcome to contribute to! http://members.rogers.com/ceda/photopage/ If you have a bio or a picture up on one of these pages already and you'd like to change it, please let me know! Some pictures seem to have gone missing from the photopage. If this is you, please let me know and send along another photo if you can! Sorry about the inconvenience... 3. We have a chatroom, that is open 24 hours a day, but has organized chats on Wednesdays and Saturday nights from 8:00 pm eastern standard time (GMT-5:00). All are welcome! To get there, login with your yahoo ID to: http://groups.yahoo.com/group/ceda/ And click on the 'chat' button to your left. Don't have a Yahoo ID? No worries, you can get one here: http://help.yahoo.com/help/us/groups/groups-48.html Having a Yahoo ID is useful, as it will allow you to access features attached to our list, like polls, databases, files and of course, our chatroom! It will also allow you to establish your mail preferences, permit you to remove yourself for vacation, etc. 4. Our birthday list is a way to help us celebrate something positive. If you have a birthday and would like us to share in your happiness, please let me know and I'll post your day on our calendar. When your day arrives, an announcement will be sent to the list to mark the event. 5. Our physicians list is a useful tool for people looking for doctors who are familiar with EDS in their area. This list is compiled by the generous people on this list, and although the doctors listed in it are not experts in EDS, they have treated it before and have been recommended by a fellow person with EDS. If you are looking for a doctor, please let me know where you live and I will hopefully have a doctor in your area that you can see. If not in your area, perhaps in a surrounding area? If you are willing to travel, please let me know where and perhaps there will be someone elsewhere for you to consult. 6. Annually we have a postcard program that runs in the late spring/early summer. This program is a fun one, where participants submit their mailing addresses and exchange them with others in the program and we sent one another postcards from the areas we live in. It's a fun and cheap way to travel! Plenty of notice is given to allow for greater participation for all. 7. Annually we have a greeting card program in December, which works the same way that the greeting card program functions. Plenty of notice is given to allow for greater participation for all. 8. There is a secret sender program here, which involves sending of inexpensive gifts to a person, who is oblivious to your identity! In exchange, you too receive gifts from an anonymous participant. At the end of the program, all participants reveal who they sent their gifts to and the secret is revealed! This program is great fun. I am not sure when te next round of this will start again, keep watching for it! 9. Occasionally we have polls on the list. These polls are anonymous when you particpate (your e-mail address is not logged when you vote) and are solely for the purpose of information gathering about a specific topic, statistics which may benefit others ultimately if we can see that we are common in a symptom or issue. You can see past polls be logging in with your yahooID and going here: http://groups.yahoo.com/group/ceda/polls If you have an idea for a poll, or just want to poll us for something in particular, please feel free to create your own poll! That may cover us, please feel free to jump in and say hello, the water is warm here and no one bites! Beth for Jill Quote Link to comment Share on other sites More sharing options...
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