Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Congratulations Joy!!!!! Woohoo!!!!! So how are the girls? Talk soon. Hugs,Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Congratulations Joy!!!!! Woohoo!!!!! So how are the girls? Talk soon. Hugs,Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Congratulations Joy!!!!! Woohoo!!!!! So how are the girls? Talk soon. Hugs,Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 This is for everyone who has applied for or is considering applying for disability in the US. Don't give up!! I've always considered myself somewhat mildly affected by EDS (denial, perhaps?) but applied for disability in July 2001, when I was pregnant with Anne. I was denied initially and met some fairly unpleasant people in the social security department along the way. I went ahead and talked to an attorney in May of 2002 when I got my initial denial. His office handled all the appeals. I got my last denial in August of 2002. Then spent a year having the attorney gather medical records while I waited for a hearing to be scheduled. The hearing didn't come until Dec 3, 2003. But I had lots of dr visits during the course of the year with my new rheumatologist and some other drs. The thing that helped the most was the form filled out by the rheumy stating what I could and could not do for any length of time. Last week I received the letter saying that the decision on my case was " fully favorable " . Now I am waiting to hear from social security to hear what the award will be. This will be such a help to my family. My husband has a good job and good benefits but the past year has been a struggle. The first thing I am going to do is find someone who will come every two weeks and do some house cleaning for me. That is one of the hardest things for me to do and my husband usually works anywhere from 12-15 hour days with one day off a week unless it is his weekend off. So now maybe he can cut back some on his hours. So hang in there and don't give up. I was sure that my case wasn't strong enough and that my symptoms were not strong enough. The approval letter listed 3 things that contribute to my disability: Ehlers Danlos Syndrome, fibromyalgia and depression. Apparently the psychologist I saw at Social Security's request said that I am depressed and have had life long problems with it. The life long part is true but I thought I was doing pretty well otherwise! Keep strong and keep good records. Anything you send to Social Security, make copies of it! I found out the hardway when they lost my entire file and I had to redo everything. Joy Sedgley Quote Link to comment Share on other sites More sharing options...
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