Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 My daughter was diagnosed with asymetrical brachy at around 5 months. We have been using a helmet that was cast. I see many people using the DOC bands (not covered under my insurance but the helmet was) The specialist I saw in LA, Dr. Graham, recommends the helmet over the DOC band. I have no reason to disbelieve him as he has written many articles on the subject but the helmet has been such a huge pain. She has developed oozing sores due to the helmet. A couple of questions - What is the difference between the two and are the results the same? Has anyone else has to deal with foul smelling sores? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Oh my goodness there should not be any sores at all. There are big diferences between the doc band and other bands/helmets. I don't know Dr. Graham but there should not be open foul smelling sores. Helmets are not supposed to do that. Haylee mom to andre doc band grad > > My daughter was diagnosed with asymetrical brachy at around 5 months. > We have been using a helmet that was cast. I see many people using > the DOC bands (not covered under my insurance but the helmet was) The > specialist I saw in LA, Dr. Graham, recommends the helmet over the DOC > band. I have no reason to disbelieve him as he has written many > articles on the subject but the helmet has been such a huge pain. She > has developed oozing sores due to the helmet. A couple of questions - > > What is the difference between the two and are the results the same? > Has anyone else has to deal with foul smelling sores? > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 We have been using Lehrman and Sons in LA and they make their own helmets. She has been in this helmet for only a week and the sores showed up. This is her second helmet as the first one was not sized properly and the specialist requested that they make a new one. (but there were no sores with that helmet) I have been pretty unhappy with this experience but I have already spent the money ($1500!!) and the insurance will not cover another one if I go with a different brand. -----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of DSent: Tuesday, May 09, 2006 1:36 PMPlagiocephaly Subject: Re: Helmet questionsI agree with Haylee there should not be any open sores what so ever. This needs to be addressed by your ortho IMMEDIATLY, and if he says that this is normal he is wrong. Sores are caused from a helmet that needs to be adjusted and if it is oozing and foul smelling the helmet needs to be left off until the sores heal. Your daughter has probably had a skin breakdown. Does your ortho make his own helmets or what brand is it? ANY red marks that do not fade within an hour need to be addressed by your ortho, red marks that go unaddressed can possibly lead to a skin breakdown with open sores. Your doctor should have told you these things. How long had your daughter been wearing this helmet??Isabelle 9 mos STARband 1/31/06> >> > My daughter was diagnosed with asymetrical brachy at around 5 months.> > We have been using a helmet that was cast. I see many people using> > the DOC bands (not covered under my insurance but the helmet was) The> > specialist I saw in LA, Dr. Graham, recommends the helmet over the > DOC> > band. I have no reason to disbelieve him as he has written many> > articles on the subject but the helmet has been such a huge pain. > She> > has developed oozing sores due to the helmet. A couple of > questions - > > > > What is the difference between the two and are the results the same?> > Has anyone else has to deal with foul smelling sores? > > > > Thanks!> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 This is called skin breakdown. It is extremely bad. Take the helmet off and do not put it back on until they have healed. I imagine it will take a few days to heal so you will need an adjustment before putting it back on him. If you even put it back on or they can even adjust it enough to not cause a new sore. You do not want them to become infected or cause scars. If Dr. Graham thinks they are ok then run away fast. This is just not acceptable. The DOC band is the only product that has FDA trials to show effectiveness. Take some pictures of the helmet (inside and out) and the sores. If you want to go to a different provider send the pics to insurance. Tell them it didn't work - gave him sores and you want your money back and want them to stop payment. Also tell them you want them to provide the same coverage for an out of network provider. If you would like some specific help just email me off-line filyaw @ bellsouth.net (remove the spaces). if you do choose to go to a different provider you may need a new RX. Will Dr. Graham give you one? You are your babies only advocate. na, DOC Grad Kiersten, DOC Grad www.thefilyaws.com/plagio/plagio.html > > My daughter was diagnosed with asymetrical brachy at around 5 months. > We have been using a helmet that was cast. I see many people using > the DOC bands (not covered under my insurance but the helmet was) The > specialist I saw in LA, Dr. Graham, recommends the helmet over the DOC > band. I have no reason to disbelieve him as he has written many > articles on the subject but the helmet has been such a huge pain. She > has developed oozing sores due to the helmet. A couple of questions - > > What is the difference between the two and are the results the same? > Has anyone else has to deal with foul smelling sores? > > Thanks! > Quote Link to comment Share on other sites More sharing options...
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