I'm Back

[Guest guest]

Nothing much to say, except to check in and let you all know I

haven't forgotten you. We have had major computer problems, but

they are solved for the time being. In the meantime, I have

thought of you all, as I would special friends, and I have hoped

for the best for each of your children. It just floors me to log

back on to this site and see the tremendous battles being fought.

Aren't we an amazing group of parents?

, I am glad to see Langan is feeling better, smiling and eating

her meals. I'm so hoping you can still put off the medicine for

awhile, especially after your intitial try with trileptal. But

really, having our kids feel good and be happy is the most important

thing of all, and she has been through so much pain. I'm hoping

your trials can help Stella's family find an approach to the diet

that works for her.

, I'm glad to see is successfully moving to a lower

ratio. We are headed in that direction, too. It turns out that

Ethan's daily seizures actually stopped a month or so after the diet

started (other than the withdrawal from medicine seizures). What he

is having now used to be called PsuedoSiezures, but they don't use

this term anymore because it implies the kids are faking. I think

they came on as a result of the stress of the diet. Being 11, it

was very hard for him to start the diet, emotionally. Also, the

med withdrawal was hellish, to say the least. He will start

counseling this week to try to stop these daily episodes, which

still are quiet debilitating, but at this point, the prognosis is

good.

Wishing you all well,

Gretchen

(mom to EThan, 11, keto-kid since Feb 04, med free since May 04.

Free of daily seziures; Considered giving up on keto at one point,

but this group kept me going. Thanks!)