Re: back from the hospital - again!

[Guest guest]

Hi,

Thanks. I was actually thinking about that myself. I really don't feel the

anxiety too much. Just sometimes I get the feeling like I can't breath well. I

have had panic attacks in the past, and have learned to control them pretty

good, except for when I fly or go to the dentist. I'm thinking all the stress

is making my pain worse. My pain dr thinks proabaly too.

My daughter takes celexa, and just started taking buspar as well. She has OCD

and generalized anxiety. Her anxiety has been worse lately, with all her health

problems, and the celexa only helps the OCD about 70%. So, we are hoping with

the buspar, she'll get to 100% with her OCD control, and get her anxiety under

control as well.

I see my dr this morning, and I will ask her what she thinks. She had me on

wellbutrin (with the hopes it would stop my smoking - no luck there) a while ago

for about a year. But, I didn't really notice a difference. I know that you

have to find just the right med for you, so maybe it wasn't the right one.

I decided to see the phsycologist, on the suggestion from my pain dr. He isn't

insisting - leaving it up to me - but I am willing to try anything to get off

the pain meds and start feeling better. My only worry is that he will have me

talk about my childhood, which pretty much sucked. I don't want to re-live

that!

I'll see what my dr says.

I don't really feel depressed any more. But I'm still sleeping every afternoon.

I don't feel sad. I lay down from the pain, and end up falling asleep. My new

meds are making me feel less tired, so maybe I'll be able to get through the day

without a nap soon. Maybe buspar would help.

I have had chronic fatigue since I was about 15, so I'll try anything to feel

better!

Thanks. I'll let you know what my dr says today.

[Guest guest]

Hi,

Thanks. I was actually thinking about that myself. I really don't feel the

anxiety too much. Just sometimes I get the feeling like I can't breath well. I

have had panic attacks in the past, and have learned to control them pretty

good, except for when I fly or go to the dentist. I'm thinking all the stress

is making my pain worse. My pain dr thinks proabaly too.

My daughter takes celexa, and just started taking buspar as well. She has OCD

and generalized anxiety. Her anxiety has been worse lately, with all her health

problems, and the celexa only helps the OCD about 70%. So, we are hoping with

the buspar, she'll get to 100% with her OCD control, and get her anxiety under

control as well.

I see my dr this morning, and I will ask her what she thinks. She had me on

wellbutrin (with the hopes it would stop my smoking - no luck there) a while ago

for about a year. But, I didn't really notice a difference. I know that you

have to find just the right med for you, so maybe it wasn't the right one.

I decided to see the phsycologist, on the suggestion from my pain dr. He isn't

insisting - leaving it up to me - but I am willing to try anything to get off

the pain meds and start feeling better. My only worry is that he will have me

talk about my childhood, which pretty much sucked. I don't want to re-live

that!

I'll see what my dr says.

I don't really feel depressed any more. But I'm still sleeping every afternoon.

I don't feel sad. I lay down from the pain, and end up falling asleep. My new

meds are making me feel less tired, so maybe I'll be able to get through the day

without a nap soon. Maybe buspar would help.

I have had chronic fatigue since I was about 15, so I'll try anything to feel

better!

Thanks. I'll let you know what my dr says today.

[Guest guest]

,

Did they check for a pulmonary embolism? That can cause chest pain and

shortness of breath. They can diagnosis it through a nulcear study or a CT of

the chest.

Sincerely, S.

back from the hospital - again!

Well, just back from the hospital again. was having chest

pains and trouble breathing, which got worse this afternoon.

The xray showed no pneumothorax this time, thankfully.

But, nothing to explain the pain and breathing difficulty.

The er dr said she may be getting asthma.

And, her lung dr said the pain could be due to the inflamation they

caused during her operation, or the scar tissue. The inflamation

was caused on purpose to sort of " hold " her lung. They also removed

part of her lung, so that may be another reason for the shortness of

breath.

But, she's had the pain and shortness of breath since the operation

in June, and one pneumothorax since then, and it's gotten worse.

So we just don't know what's going on.

She also has a fever, and maybe a sinus infection. We learned she

has a deviated septum from her brain MRI which she got for her

chronic migraines.

So, now 's sick again, is sick again, and is in

bed with back pain again.

Dad is just starting to be a bit more understanding. At least he is

right this moment. Everyone is right, I guess it takes dad's longer

when they don't have to deal with it all - meaning he goes off to

work and I'm left to nurse them and take them to their dr appts.

I just can't believe it all. I keep thinking " ok, this will be the

last time we see a dr for a while " but it never happens. Between

the 4 of us, we see a doctor at least once a week, usually more.

I don't know what a person has to go through before they have a

nervous breakdown, but I can't imagine going through any more than

we have been through in the last couple of years, and I'm no was

near breaking down. Maybe it will sneak up on me when I least

expect it. I think all this $#* & is making my pain worse, instead

of giving me a breakdown.

When will it ever end? Well, if we get that EDS diagnosis in Feb, I

suppose it never will. So, as Cindy said to me on the phone today -

this is my life, these are the cards I've been dealt, and I have to

play them.

I'm so glad I have you all to vent to. It really helps.

To learn more about EDS, visit our website: http://www.ceda.ca

[Guest guest]

,

Did they check for a pulmonary embolism? That can cause chest pain and

shortness of breath. They can diagnosis it through a nulcear study or a CT of

the chest.

Sincerely, S.

back from the hospital - again!

Well, just back from the hospital again. was having chest

pains and trouble breathing, which got worse this afternoon.

The xray showed no pneumothorax this time, thankfully.

But, nothing to explain the pain and breathing difficulty.

The er dr said she may be getting asthma.

And, her lung dr said the pain could be due to the inflamation they

caused during her operation, or the scar tissue. The inflamation

was caused on purpose to sort of " hold " her lung. They also removed

part of her lung, so that may be another reason for the shortness of

breath.

But, she's had the pain and shortness of breath since the operation

in June, and one pneumothorax since then, and it's gotten worse.

So we just don't know what's going on.

She also has a fever, and maybe a sinus infection. We learned she

has a deviated septum from her brain MRI which she got for her

chronic migraines.

So, now 's sick again, is sick again, and is in

bed with back pain again.

Dad is just starting to be a bit more understanding. At least he is

right this moment. Everyone is right, I guess it takes dad's longer

when they don't have to deal with it all - meaning he goes off to

work and I'm left to nurse them and take them to their dr appts.

I just can't believe it all. I keep thinking " ok, this will be the

last time we see a dr for a while " but it never happens. Between

the 4 of us, we see a doctor at least once a week, usually more.

I don't know what a person has to go through before they have a

nervous breakdown, but I can't imagine going through any more than

we have been through in the last couple of years, and I'm no was

near breaking down. Maybe it will sneak up on me when I least

expect it. I think all this $#* & is making my pain worse, instead

of giving me a breakdown.

When will it ever end? Well, if we get that EDS diagnosis in Feb, I

suppose it never will. So, as Cindy said to me on the phone today -

this is my life, these are the cards I've been dealt, and I have to

play them.

I'm so glad I have you all to vent to. It really helps.

To learn more about EDS, visit our website: http://www.ceda.ca

[Guest guest]

No they didn't say anything about a pulminary embolism. I don't even know what

that is. I guess I'll look it up on the net.

She is feeling a bit better today, but has a nasty sinus infection.

I'm wondering if her breathing problem may be due to anxiety. They told us she

would probably get it, as just about everyone who has had a spontnaeous

pneumothorax does.

I'm sorry to hear that they don't know yet which type of EDS you have. But, I'm

glad you have some answers.

I'm sure you have many thought running through your head.

I think Cindy told me that Bonnie and her daughter have the variant.

Maybe you should talk with her. She has been very helpful to me with the kids

school stuff.

I hope you are feeling at least a little better than the last time I talked with

you.

I just can't seem to get my head around all the things that are happening with

this condition. I'm at a loss for words now.

But, I just wanted to thank you again, and to send my hugs. I hope your feeling

better.

[Guest guest]

No she hasn't had a recent ct scan.

Her lung doctor, who she's seeing on wednesday, said ct scans don't always show

the blebs. She had one after it collapsed the first time, and it didn't show

anything. But, a week and a half later, it collaped again.

He also looked at her whole lung during the surgery, and said it all looked

healthy.

But, I don't know if those bleb can show up later, or if you are born with them.

I am under the impression that you are born with them.

I don't know, but we'll find out on wednesday.