Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 How could one not unsub properly? I hit unsubscribe and went to yahoo and unsubbed there as well. CEDA Family > > > Hi Everybody, > > I would like to take this oppourtunity to remind everyone of one simple > thought that I have always shared about this list and all of my EDS friends whether > they are on this list or not. We are a family......and just like a family we > have good times, arguments, shared views and differences of opinions. Some > of us have good days, and some of us have bad days. But a family always sticks > together no matter what. Everyone, please consider this. > > Hugs, > Sue > > > To learn more about EDS, visit our website: http://www.ceda.ca > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Hi everyone, We are a family and I would just like to take this opportunity to thank you all for everything. I do not always post, but every day i read the posts and it helps me to get through the day knowing that there are people out there who understand what i am going through, and who support me and eachother in our daily struggle to live our lives. I really do not know what I would do without this list and support group. So THANKS! I agree with Sue we are a family and need to stick together. We have to remember that the reason we are all here is to support eachother, to be there for eachother. If you want to leave the group I understand but remember that we are here if you ever need us. Hugs, Jen > Hi Everybody, > > I would like to take this oppourtunity to remind everyone of one simple > thought that I have always shared about this list and all of my EDS friends whether > they are on this list or not. We are a family......and just like a family we > have good times, arguments, shared views and differences of opinions. Some > of us have good days, and some of us have bad days. But a family always sticks > together no matter what. Everyone, please consider this. > > Hugs, > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Betty, I would love to give you a great answer; but I cannot, and I have Hypermobile EDS. But in reading your post, this quote came to mind (I don't remember who said it): " Candles melt away as they are used. We often feel we are the same-burning up, burning out, burning down. What we must remember, though is how we light the room of this world in the time allotted to us. " My thought is to try and forget this could happen. We all could get hit by a beer truck tomorrow. If we allow ourselves to worry over problems we have no control over, it seems useless. Make the most of each and every moment, try to do everything you enjoy doing as much as possible, and let everyone know how much you love them. That's what I TRY to do, and I hope when I pass, when ever that may be (10 years, 40 years, 4 days...) that I will have many, many beautiful memories and the love of hundreds of people to take with me on my journey; as that is all we leave this world with. Take care, and know that others are praying for you! Love Lana " 'Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.' " Dr. Suess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 I am so sorry for you. I wish I could say something to make the pain go away. I just don't know what to say, but I want you to know that I'm thinking of you, and hoping something will happen soon that will get you back on your feet. Big Hugs, Mon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 I am so sorry for you. I wish I could say something to make the pain go away. I just don't know what to say, but I want you to know that I'm thinking of you, and hoping something will happen soon that will get you back on your feet. Big Hugs, Mon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Dear Betty, Funny you should say this, but I voiced the same thing to my dear friend, Beth, but in a private email.....everytime we lose someone in our EDS family it hits too close to home for us. I, too, have been a little worse with anxiety since I heard the news. I have just received a healing relaxation/positive affirmation tape specifically for the arteries...it is really neat, and helps me to relax and think I am doing positive things for my health....our minds can do so much to help heal. Let me know if you would like me to make a copy for you and I will send it along. I also try to focus on breathing, and prayer. It helps me too. The problem I have been having, is a lot of what they give for anxiety is not working any longer for me, so I must find soemthing else to help. Its a vicious circle sometimes. Everyone needs to find what works for them, so these are merely suggestions. Hope you feel better soon. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 I have just received a healing relaxation/positive affirmation tape specifically for the arteries...it is really neat, and helps me to relax and think I am doing positive things for my health....our minds can do so much to help heal. COOL, SUE!!! I once went to a therapy group, and the leader taught us visualizations, and I then bought a couple relaxation tapes. I think they're GREAT, especially if you have a hard time doing something like this on your own. I know you can get some that talk you through visualizations and affirmations, or you can get ones that are just music that are supposed to have the same beat as a normal heartbeat. I'd totally forgotten about that, Sue!!! You were right in your email yesterday, it IS NO WONDER that we get along so well!!! LOL! Love Lana " 'Be who you are and say what you feel because those who mind don't matter and those who matter don't mind.' " Dr. Suess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 This is so great -- I have a relaxation tape also. My counselor and I did it to help with anxiety. It's a visualization tape and really helps me alot. Patti Re: CEDA Family I have just received a healing relaxation/positive affirmation tape specifically for the arteries...it is really neat, and helps me to relax and think I am doing positive things for my health....our minds can do so much to help heal. COOL, SUE!!! I once went to a therapy group, and the leader taught us visualizations, and I then bought a couple relaxation tapes. I think they're GREAT, especially if you have a hard time doing something like this on your own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Hi Betty -- What works for me is a combination of things. I find that the more that I can involve myself in things that interest me, the better I can handle it. At first it was only small things -- like I love music, so I decided last year that I would get CD's of the music I love and then play it and dance around the house (kinda hokie but it helps me keep my mind from running in circles!!) I also decided last fall to start seeing a counselor - luckily we clicked so it has been a very positive experience for me. She has helped me put things in perspective which helps with the anxiety - talking to someone like this, at least for me, is one of the best things I have done for myself. In the beginning I had to constantly force my mind to think of other things. It is easier now, but sometimes the anxiety still sneaks in. The other one is joining this group. As you know, the people here are wonderful and it does help so much to not be alone. Dialogues like this really help, too. Another one for me is research. I am always looking into anything I think will help -- sending info to my doctors, asking questions, etc. (some say I bug them -- but as I told one of the docs, maybe thats what the medical profession needs to help some of them stay " human " ). For me, this also helps to lessen my anxiety - I feel that I am contributing in my health care and can do some positive things. I hope this helps. Please let me know if there is anything else I can do. Take care, Love, Patti CEDA Family > > > Hi Everybody, > > We are a family......and just like a family we > have good times, arguments, shared views and differences of opinions. Some > of us have good days, and some of us have bad days. But a family always sticks > together no matter what. Everyone, please consider this. > > Hugs, > Sue > > > To learn more about EDS, visit our website: http://www.ceda.ca > > > > Quote Link to comment Share on other sites More sharing options...
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