Re: Digest Number 2167

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Ketogenic Diet Survey:

1:Is your child:

[x] Male

[ ] Female

2:What form of the ketgenic diet is/was your child on?

[x] Classical [ ] MCT [ ] Other (specify)....

[ ] Radcliffe [ ] Not known

3:How long has/was your child on the Ketogenic diet?

[x] 0 - 3 months [ ] 3 - 6 months

[ ] 6 to 12 months [ ] 1 to 2 years

[ ] 2 - 3 years [ ] 3+ years

4:Is your child still on The Ketogenic Diet?

[x] Yes [ ] No

5:How many siezures approximatley was your child having a week before

he/she was on the diet?

[ ] 1 - 10 [ ] 10 - 20

[ ] 20 - 30 [ ] 30 - 40

[] 40 - 50 [x] 50+ [ ] Other

6:Can you please tick how many regular daily medications your child

was on before he started the Ketogenic diet?

[x] 0 [ ] 1

[ ] 2

[] 3 [ ] 3+

7:Have you ever tried any of the treatments below for your child's

epilepsy, if so could you tell me its effectiveness? (leave blank if

not applicable)

We didn't try any of the following treatments, but tried 2 meds with terrible

results (more and worse szs plus other horrid problems)

V. Good /Good /No Change /Got worse

Surgery

Vagal Nerve Stimulation

Siezure Alert Dogs

Behaviourhal Therapy/Biofeedback

Aromatherapy

Acupuncture

Other (specify).

8:Is your child fed oraly or by gastrostomy?

[x] Oraly [ ] Gastrostomy

9:Did your child find it easy to adjust to using the diet?

[x] very easy Mom did not adjust easily though :0 [ ]

easy

[ ] a minor hassle

[ ] hard [ ] very hard

10:Since your child has started the diet, how many siezures is he/she

having in a week?

[x] 1 - 10 [ ] 10 - 20

[ ] 20 - 30 [ ] 30 - 40

[ ] 40 - 50 [ ] 50+ [ ] Other

11:Can you please tick how many regular daily medications your child

is on after being on the ketogenic diet?

[x] 0 [ ] 1

[ ] 2

[ ] 3 [ ] 3+

12:Has your child shown a general improvement in his learning

ability, alertness and interest in activities since starting the diet?

[x]Yes a big improvement! [ ]yes a little

[ ] none at all.

13:Has your child experienced any of the following side effects of

the diet?

[ ] Nausea [ ] Constipation

[ ] weight gain

[ ] kidney stones [ ] increased cholesteral

14:Do you think The Ketogenic diet should be more of a mainline

treatment for epilepsy?

[x] Yes [ ] No [ ] Not sure

Thank you for your time, please write any further comments you may

wish to add about the survey or your personal experiences with the

diet below:

We did a very strict high fat Atkins diet for 6 months prior to starting the

keto. We had great sz control in the beginning, but we had huge energy and mood

swings. With keto, 's evergy and mood is always constant. He is always

happy!

hth

Pam, mom to keto kid age 8 (and mom to 9 others)

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