Hello! Starting July 19th~ne

[Guest guest]

ne.

Welcome!

Youe story sounds very much like ours!

My 3 year old daughter, Sydney started Keto in March and is not seizure free,

but is 90% better! All of her oral motor dyspraxia, language disorders, sensory

integration and physical dysfunctions are 100% better!! She is only 1 wean away

from being drug free.

What part of the country are you in? We are in Cincinnati OH.

Help is near and better days are ahead!

You are in good hands here!

Keeping you in my prayers

Dina

Hello! Starting diet on July 19th

Hi Everyone,

We're so glad to discover this group! We are starting our 4 year old

daughter, , on the ketogenic diet on Monday, July 19th, and would

appreciate any information to help us along the way.

Our beautiful and healthy daughter, , had her first seizures in Dec. 2003

with 2 T/Cs within 1 week of each other. She was started on Tegretal but

switched to Depakote in March 2004 due to onset of myoclonic;atonic seizures (up

to a dozen/day). 24 hour VEEG confirmed dx of mixed generalized seizure

disorder (intractable)--capturing multiple clinical seizures and 40-50

subclinical seizures daily over a 3 day period. Since that time she has

experienced more T/Cs and most recently eyelid myoclonic seizures--with the time

between seizure activity diminishing in a rather rapid pattern (longest seizure

free period 20 days; now only 6 days). And I suspect daily subclinical seizures

(due to changes in her behavior and bluish coloration of her eyelids and a

recent EEG confirmed continuing spike wave patterns). While you'd never notice

with a casual glance, has also been diagnosed with mild hypotonia, oral

motor dyspraxia, a language disorder, and sensory integration dysfunction and is

currently in weekly OT and SLT and is showing improvement.

is on Depakote (1125mg/day), Keppra (125mg) and carnitine supplements.

She has moved beyond the therapeutic range with Depakote and is beginning to

experience more side affects--upset stomach, slight tremor (more like a

" jerkiness " ) when tired, and tends to sleep more (not necessarily a bad

thing-ha).

Because she is on such a high dose of Depakote a day, I have been closely

reading any posts regarding the interaction of Depakote and the diet. Any

suggestions with things to watch for while initiating the diet would be greatly

appreciated.

ne