Re: Home from a long ER visit.

[Guest guest]

Thanks Lana, I which I knew why I have so much trouble with DRs. They all say

they don't know what else to do for him. We live in Michigan. After Mike gets

here and teaches me, maybe he will do a bit better. We can hope. I've made allot

of calls today, so maybe I can find a Dr that will try. Thanks Cindy C

Re: Home from a long ER visit.

God, Cindy, my heart aches for both of you! I cannot believe that doctors

would do that! Where do you live again??

[Guest guest]

Thanks Lana, I which I knew why I have so much trouble with DRs. They all say

they don't know what else to do for him. We live in Michigan. After Mike gets

here and teaches me, maybe he will do a bit better. We can hope. I've made allot

of calls today, so maybe I can find a Dr that will try. Thanks Cindy C

Re: Home from a long ER visit.

God, Cindy, my heart aches for both of you! I cannot believe that doctors

would do that! Where do you live again??

[Guest guest]

Thanks Lana, I which I knew why I have so much trouble with DRs. They all say

they don't know what else to do for him. We live in Michigan. After Mike gets

here and teaches me, maybe he will do a bit better. We can hope. I've made allot

of calls today, so maybe I can find a Dr that will try. Thanks Cindy C

Re: Home from a long ER visit.

God, Cindy, my heart aches for both of you! I cannot believe that doctors

would do that! Where do you live again??

[Guest guest]

You're a fighter and that is what he

> needs to help get him the help he deserves. I can only imagine how

you must

> feeling right about now and how tired and angry you just have to

be. It just isn't fair. It is just so hard to constantly be

fighting just to get our kids the medical care that they need and

that is owed them. If you ever want to talk, please let me know. >

Well some days I'm a fighter, and some days I feel so defeited, but

then I fight again. I will contact you when things settle down

again. Thanks much. Cindy C

[Guest guest]

You're a fighter and that is what he

> needs to help get him the help he deserves. I can only imagine how

you must

> feeling right about now and how tired and angry you just have to

be. It just isn't fair. It is just so hard to constantly be

fighting just to get our kids the medical care that they need and

that is owed them. If you ever want to talk, please let me know. >

Well some days I'm a fighter, and some days I feel so defeited, but

then I fight again. I will contact you when things settle down

again. Thanks much. Cindy C

[Guest guest]

Home from a long ER visit.

Cindy C. said " I have to say, this is the best pass the buck case I have

seen yet. Tonight, Sleep, Tomorrow Fight. "

Hi Cindy this is Tia.

Oh my God I am so sorry for all that pain Dylan has to go through and I

am sorry too for this unsuccessful trip. I totally understand what you

are going through since once (as a child) my parents and I went through

it too and of course I'm still having serious trouble finding the right

doctor.

I just wish to God that one day a cure could be discovered for us EDSrs

and mostly for those kids suffering from it. Give him a gentle hug and a

kiss from me and tell him that someone from faaaaaaaar away is praying

for him.

((((HUGS))))

Tia

[Guest guest]

Home from a long ER visit.

Cindy C. said " I have to say, this is the best pass the buck case I have

seen yet. Tonight, Sleep, Tomorrow Fight. "

Hi Cindy this is Tia.

Oh my God I am so sorry for all that pain Dylan has to go through and I

am sorry too for this unsuccessful trip. I totally understand what you

are going through since once (as a child) my parents and I went through

it too and of course I'm still having serious trouble finding the right

doctor.

I just wish to God that one day a cure could be discovered for us EDSrs

and mostly for those kids suffering from it. Give him a gentle hug and a

kiss from me and tell him that someone from faaaaaaaar away is praying

for him.

((((HUGS))))

Tia