Re: Should We Sit Tight for a While? Ketosis still?

[Guest guest]

I don't know enough to have any answers for you... but I have a question. With

the lower ratio is she still in ketosis? Is that what you are testing? I know

some children are on low ratios with control... or partial control, and always

wonder if they still test as being in ketosis.

Shan, Rhonda's daughter is on a 1:1 ratio keto/atkins diet, so I am wondering

how this works.

When I lowered 's ratio (she was on 4:1 and now is on 3:1) it did not cause

seizures, but when I lowered calories she had a hard time. Bill told me that

was because with the lowering of calories there was a change, but with the

lowered ratio it was just she was getting her calories from a different source -

real food, not fats and oils. I think, like Langan, tends towards

acidosis, and even at 3:1 fluids are very critical to her well-being. Were

they for Langan, too?

Hope you get your answers. As Bill also shared with me, this diet is " more art

than science " , and I have come to believe it!

Blessings... ... mum to

langansmom tuckerwing@...> wrote:

Hello all. Well, per the neuro's ok, we lowered Langan to a 2:1

ratio on Saturday. Wow! What a difference in food! But for the

scale, I would swear she wasn't even on keto any more. She gets more

fruit now than I think she ate BEFORE the diet. And she is loving it!

On to the not so great part: After 13 days seizure free (on 3:1

ratio and small amount of trileptal), she had a sz Saturday night.

She spit out most of her trileptal dose a few hours before, so I have

no idea whether it was that or the new ratio or her adjusting to the

new ratio. Ugh. Last night, she woke up and looked like she was

going to have a sz, but she seemed to " shake it off " and went back to

sleep. So who knows. I don't want to increase the meds, esp. since

she is also waking up at night with what appears to be tummy pain and

I worry that it is the meds, but at the same time I am not sure what

to do. We are coming off keto b/c of the acidosis, so it is only a

matter of time, but when it comes to the meds I am all about delay,

delay, delay.

I took BHB levels and they are strange- really low before bed and

then large in the morning????? That is the total opposite of how

they have been. I wonder if they are low at night b/c of all the

extra carbs during the day and then are getting higher overnight when

she's not eating??? Any thoughts from the keto experts out there?

Also, do you get withdrawal when coming down off of keto, like you do

with the meds? I am trying to decide whether the sz and the almost

sz last night could be withdrawal or whether we need to up the

trileptal. Should I just hold tight for a week and see if things

settle? That 13 days spoiled me....

Thanks!

, mom to Langan, 2 yrs old and keto kid since 11/03; med free

4/2/04 until this month, now coming off keto due to metabolic

acidosis and on 2:1 ratio and small amount of trileptal.

" The Ketogenic Diet....a realistic treatment option, NOT just a last resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional keto

team!

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