Re: and Satnam and gushes about this group/Gretchen

[Guest guest]

Hi Gretchen, Kristan is hanging in there and doing ok. She's having

anywhere from 1 to 8 seizures a day. Gretchen, it was 's

who had the seizures return after 5 months, I know it's hard to keep

track of all the kids on here.

You are so right about the joy and happiness our kids bring us even

with the battles they have. We celebrate every little thing Kristan

is able to accomplish.

I hope Ethan is doing well.

Satnam

> HI and Satnam,

> First of all, I hope things are still going well for . I

> hope more seizure free days have followed since Wednesday.

> I was really struck by our recent correspondence. I rememeber

> feeling so worried and alone when Ethan was on high medication and

> things just kept getting worse. It was such a frightening time.

> Now, to have connected with you two, and others on in this group,

> and to realize many of us went through the same thing is just

> incredible.

> This is just another example of how we all understand eachother

in

> this group. Satnam, you didn't even have to mention how

devestating

> it must have been when 's seizures returned after 5 months.

> We have all been through those dashed hopes. Another reaction I

> don't get from this group, and I am really glad, is the

> overwhellming sense of sympathy some people extend when they learn

> of our struggles. It is just so nice to understand and to be

> understood without having to spell everything out, or to see

> disheartening looks of pity.

> Though we have our share of sadnesses, I think most of us tend

to

> look on the bright side of things, to notice the times our kids

> smile, etc. Others might look at our lives and just see the

> struggles; but we have learned to find joy and happiness in the

> midst of it all. I am so greatful for finding you all!

> Grertchen