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Hi everyone,

It is through tears that I write this e-mail. Many you knew Chris

Bell. lived in Ontario, and had vascular EDS. Her husband phoned me

this morning. died this morning from a ruptured aorta. They had a

son die in 1996 from the same thing. We first met through e-mail and

then in Philadelphia at the EDNF conference. We remained close friends

since.

Please keep her husband and her 3 year old son and their families in your

prayers.

kindest regards,

Joyce R

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Oh this is shocking news, this is so shockingly sad!

did indeed lose her first child, a 13 year old son. Her diagnosis

came as a result of her son's passing. It was with such mixed news that she

became pregnant with a second child three years ago and she battled blood

clots during her pregnancy at the time, thankfully though, her new son does

not have EDS.

attended a CEDApicnic three years ago when she was pregnant and looked

radiant, but frightened. Her family is simply fantastic and so loving, this

is such a terrible day to know that we have lost two such vital sisters.

Jill

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Oh this is shocking news, this is so shockingly sad!

did indeed lose her first child, a 13 year old son. Her diagnosis

came as a result of her son's passing. It was with such mixed news that she

became pregnant with a second child three years ago and she battled blood

clots during her pregnancy at the time, thankfully though, her new son does

not have EDS.

attended a CEDApicnic three years ago when she was pregnant and looked

radiant, but frightened. Her family is simply fantastic and so loving, this

is such a terrible day to know that we have lost two such vital sisters.

Jill

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I am so saddened to hear of the loss of two CEDA family members in

recent days. I was not fortunate enough to come to know these people

sadly, but any loss hits us all in such a close family like group.

My thoughts and prayers are with both families and with this family

too.

With love and hugs....Jo

xxx

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