Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 My daughter who is 5 has been on the diet for one year. She has a very rare disesae GLUT1 DS. There are only 72 in the world. It is vital that Whitney remain on the diet aand have consistant large ketones. She is starting kindergarten and the nurse has refused to give her the fat through her feeding tube. I'm at a loss for what to do next. Just wondering what everyone else does at school? Does anyone else have a G tube? Thanks Christi Quote Link to comment Share on other sites More sharing options...
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