Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Faith Fibro is an immune disease and attacks muscles, ligaments joints, and often causes arthritis, can be from light, mild to very severe. You start off feeling like have big case of flu. You ache all over, body aches, do think stress makes us hurt more, can cause all sorts of spasms, swelling, and pain that feels like down into bone. Think the aches, perhaps are, at my best guess and only a guess on my part, about 50% of those on here have Fibro with other things going on ! For me the muscles, ligaments, tendons tear and tear from bone, knees, hips where did 5 surgeries trying to get bones smaller and keep me able to walk which can do but walk with awkward looking walk for sure! My body gets large knots especially in neck, shoulders, shoulder blades where Rhuematologist injects with a cortisone med and something else. He does help me also as reads alot and reads all medical things to help me. Gets group of patients together to test new treatments. None work yet for me, but at least sure worth try. Have many types arthritis, chronic fatigue and perhaps few other things that eventually seem to go with this disease but not always. I just am one that it happened to. Take good care and never feel cannot ask about these sicknesses. I ask alot also as just do not understand why happens in first place.. Well that is short version of Fibro. Is alot more but think if I could find a great pamphlet at doctors office this Friday will mail it to you, okay? Take good care my friend. Know your body is just acting up and you may never understand the reason why happened to your body. Many hugs and know I will be praying for you. I am sorry you hurt so much. JoAnn s Momma Re: Re: N , So far I've gone 2 1/2 years with no speading, but every time I start to hurt somewhere else, I think 'ok, is this it? is it spreading on me now?' I do wonder about a couple of spots on my body, but I have no idea what's going on. I haven't seen my duck drs since Feb. No sense in going when they don't do anything anyway. I've been wondering about maybe this Fibro that I hear everyone else talking about, but I'm not sure what it is exactly. Or maybe it's just like my primary said and it's just from using the crutches for so long. Heaven forbid anyone do some tests and find out. That would be too intelligent. Can anyone tell that I'm having bad night? I sure am doing a lot of venting. I hurt tonight and my stepson is having some minor surgery in the morning and my husband will be there with the boys mom. I thought that I would ok with that because it is his son after all, but I guess maybe I'm not. It's my birthday and he's going to be spending half of it with her. I would go if I could, but it's way too cold for me to go out that early and then spend half the day sitting in those hard chairs. I won't be allowed back in his room anyway, only 2 people at a time allowed in the short procidure unit rooms, so I would be out in the waiting room all day by myself anyway. I might as well stay home where it's warm and I can prop my foot up if I need to. But then again, if I didn't have 'duck drs' who won't give me any meds, then maybe I could've went. I hate this disease!!!! Oh well, I've ranted enough, for now. Thanks for listening. Hugs, Faith You're probably right. I know we had a couple people come to the local support group, and when they found out that it can spread, or saw someone with a cane, etc., they admitted that they couldn't handle that type of information yet. It was pretty scary for them to think it could spread--and it is! When mine went to the right foot this year, I'm thinking "oh my gosh, will it go somewhere else now?" Had gone nearly 4 years and thought maybe it wouldn't do that. > >Love, > > N. Find the music you love on MSN Music. Start downloading now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Faith Fibro is an immune disease and attacks muscles, ligaments joints, and often causes arthritis, can be from light, mild to very severe. You start off feeling like have big case of flu. You ache all over, body aches, do think stress makes us hurt more, can cause all sorts of spasms, swelling, and pain that feels like down into bone. Think the aches, perhaps are, at my best guess and only a guess on my part, about 50% of those on here have Fibro with other things going on ! For me the muscles, ligaments, tendons tear and tear from bone, knees, hips where did 5 surgeries trying to get bones smaller and keep me able to walk which can do but walk with awkward looking walk for sure! My body gets large knots especially in neck, shoulders, shoulder blades where Rhuematologist injects with a cortisone med and something else. He does help me also as reads alot and reads all medical things to help me. Gets group of patients together to test new treatments. None work yet for me, but at least sure worth try. Have many types arthritis, chronic fatigue and perhaps few other things that eventually seem to go with this disease but not always. I just am one that it happened to. Take good care and never feel cannot ask about these sicknesses. I ask alot also as just do not understand why happens in first place.. Well that is short version of Fibro. Is alot more but think if I could find a great pamphlet at doctors office this Friday will mail it to you, okay? Take good care my friend. Know your body is just acting up and you may never understand the reason why happened to your body. Many hugs and know I will be praying for you. I am sorry you hurt so much. JoAnn s Momma Re: Re: N , So far I've gone 2 1/2 years with no speading, but every time I start to hurt somewhere else, I think 'ok, is this it? is it spreading on me now?' I do wonder about a couple of spots on my body, but I have no idea what's going on. I haven't seen my duck drs since Feb. No sense in going when they don't do anything anyway. I've been wondering about maybe this Fibro that I hear everyone else talking about, but I'm not sure what it is exactly. Or maybe it's just like my primary said and it's just from using the crutches for so long. Heaven forbid anyone do some tests and find out. That would be too intelligent. Can anyone tell that I'm having bad night? I sure am doing a lot of venting. I hurt tonight and my stepson is having some minor surgery in the morning and my husband will be there with the boys mom. I thought that I would ok with that because it is his son after all, but I guess maybe I'm not. It's my birthday and he's going to be spending half of it with her. I would go if I could, but it's way too cold for me to go out that early and then spend half the day sitting in those hard chairs. I won't be allowed back in his room anyway, only 2 people at a time allowed in the short procidure unit rooms, so I would be out in the waiting room all day by myself anyway. I might as well stay home where it's warm and I can prop my foot up if I need to. But then again, if I didn't have 'duck drs' who won't give me any meds, then maybe I could've went. I hate this disease!!!! Oh well, I've ranted enough, for now. Thanks for listening. Hugs, Faith You're probably right. I know we had a couple people come to the local support group, and when they found out that it can spread, or saw someone with a cane, etc., they admitted that they couldn't handle that type of information yet. It was pretty scary for them to think it could spread--and it is! When mine went to the right foot this year, I'm thinking "oh my gosh, will it go somewhere else now?" Had gone nearly 4 years and thought maybe it wouldn't do that. > >Love, > > N. Find the music you love on MSN Music. Start downloading now! Quote Link to comment Share on other sites More sharing options...
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