Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Hello. I hope you do not mind me putting my survey up on here. I have a son with intractable epilepsy and will be starting the ketogenic diet in feb 05 at Great Ormond Street Hospital in London. I am also studying to go to uni next year to do a childrens nursing course. For my final health project i have decided to do a survey on the keto diet as it is a subject close to my heart. There is a a copy of the survey below in the hope that some of you who i have not emailed personally maybe so kind as to fill it in and either post it on here or if you would prefer email it to me at: kazmum2boys@... ...... It would be a big help to me, Thank you in advance and all the best Karina Choat/ Survey Below: Ketogenic Diet Survey: 1:Is your child: [ ] Male [ ] Female 2:What form of the ketgenic diet is/was your child on? [ ] Classical [ ] MCT [ ] Other (specify)………… [ ] Radcliffe [ ] Not known 3:How long has/was your child on the Ketogenic diet? [ ] 0 – 3 months [ ] 3 – 6 months [ ] 6 to 12 months [ ] 1 to 2 years [ ] 2 – 3 years [ ] 3+ years 4:Is your child still on The Ketogenic Diet? [ ] Yes [ ] No 5:How many siezures approximatley was your child having a week before he/she was on the diet? [ ] 1 – 10 [ ] 10 – 20 [ ] 20 – 30 [ ] 30 – 40 [] 40 – 50 [ ] 50+ [ ] Other 6:Can you please tick how many regular daily medications your child was on before he started the Ketogenic diet? [ ] 0 [ ] 1 [ ] 2 [] 3 [ ] 3+ 7:Have you ever tried any of the treatments below for your child's epilepsy, if so could you tell me its effectiveness? (leave blank if not applicable) V. Good /Good /No Change /Got worse Surgery Vagal Nerve Stimulation Siezure Alert Dogs Behaviourhal Therapy/Biofeedback Aromatherapy Acupuncture Other (specify)… 8:Is your child fed oraly or by gastrostomy? [] Oraly [ ] Gastrostomy 9:Did your child find it easy to adjust to using the diet? [ ] very easy [ ] easy [ ] a minor hassle [ ] hard [ ] very hard 10:Since your child has started the diet, how many siezures is he/she having in a week? [ ] 1 – 10 [ ] 10 – 20 [ ] 20 – 30 [ ] 30 – 40 [ ] 40 – 50 [ ] 50+ [ ] Other 11:Can you please tick how many regular daily medications your child is on after being on the ketogenic diet? [ ] 0 [ ] 1 [ ] 2 [ ] 3 [ ] 3+ 12:Has your child shown a general improvement in his learning ability, alertness and interest in activities since starting the diet? [ ]Yes a big improvement! [ ]yes a little [ ] none at all. 13:Has your child experienced any of the following side effects of the diet? [ ] Nausea [ ] Constipation [ ] weight gain [ ] kidney stones [ ] increased cholesteral 14:Do you think The Ketogenic diet should be more of a mainline treatment for epilepsy? [ ] Yes [ ] No [ ] Not sure Thank you for your time, please write any further comments you may wish to add about the survey or your personal experiences with the diet below: Quote Link to comment Share on other sites More sharing options...
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