Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 Hello... I noticed that you both were talking about tingly fingers. I wanted to give you some relief. I took Topamax for what they now are giving out by our doctors for weight loss. I took the opportunity to see what exactly my daughter is feeling for at least one of the meds. I did take this for a weight loss option under a doctors care, but had more of an interest when I heard Topamax was and option. I know it sounds strange, but knowing what she was feeling, was important to us. With all these meds, we just wondered how much was her control or the meds???? I took it VERY slowly like directed. The tingly fingers were the first side effect I felt. It was also very hard to keep a thought and I couldn't remember simple words and answers. It was a bit like you're drunk. You stumble for words and it's extremely frustrating. I am almost 40 years old and never have been sick in ways to need medicine. It did get better after a while, but the tingly fingers (4 months that I was on it) was almost the worst. It was also in my feet. I wanted to let you know that I don't have seizures and the tingly fingers and toes are a side effect that I decided was too much to continue the drug. It was more that I couldn't hold a thought. Now I understand that my daughter (6) can't tell me things sometimes quickly. She has to think and then she gets frustrated. It was a very spacey feeling that I didn't like at all. The sooner I get her off these drugs the better! I hope I helped you guys understand that I don't think the tingly fingers was a sign of an onset of a seizure. I'm only speaking for us, of course, but if you knew the feeling...I hope I helped. Take care.... - Sheridan's Mom At 05:29 AM 8/1/2004, you wrote: >Thanks - I was nosily reading your post to and was relieved >to hear >the bit about tingly hands. Ben gets tingly fingers quite often (only >since we started >withdrawal), and these odd feelings are part of the reason he is doing a >lot of >panicking. So this morning I was able to tell him about , to try to >make him >understand that it doesn't necessarily signal the onset of a seizure. > >Take care >Rose Toms > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 Thankyou - once again you guys have been extremely helpful. The easiest thing to do actually is to worry that the drugs or the epilepsy have screwed up the nervous system but I am now much more calm inside about it. I never ever let Ben see me panic about anything but little does he know what agony goes on in my heart sometimes. Lots of love Rose Quote Link to comment Share on other sites More sharing options...
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