Re: Kristan is able to sit independently! - Emma

[Guest guest]

Thanks Emma, it has brought tears to my eyes. Every time she is able

to do something for some reason the seizures start to creep up again

and it is so frustrating, but she is still able to sit for a few

hours even with the bad days she has been having. It's always my

fear she will " unlearn " what she has figured out to do when the

seizures pick up, but so far so good.

Satnam

> > Hi all, I just wanted to share that since the end of June Kristan

> is

> > able to sit on her own for an hour or two. She is always trying

to

> > balance herself and is wiggling while sitting but can pretty much

> > hold it real well with her back straight and all. When she tips

> over

> > she doesn't know how to get back up, but does try to lift her

head

> > and trunk and isn't strong enough to come all the way up.

> >

> > She also is using her voice more now so we have commenced speech

> > therapy, she mostly does " hmm " " um " and my favourite " ma " . She

> still

> > won't reach for toys and still has vision problems but has

recently

> > started to track food - this kid won't track any toys, but will

> track

> > her food, at least it's something that has interested her.

> >

> > The seizures are up again and we are still in the process of

> raising

> > calories and was doing well with solid meals but lately has only

> > wanted to bottle feed.

> >

> > Anyways, just thought I would share some good news.

> >

> > Satnam, mom to Kristan, 19 months

> > Keto kid since August 2003