Re: MEDS MAKING THINGS WORSE--Barbara

[Guest guest]

Barbara,

I know the exact feelings you had. First, feeling you'd lost your

child through drugs and Seizures, and Second, getting her back! I

just can't stop smiling these days. Doctors are often wrong; maybe

the diagnosis is wrong. But, even with that diagnosis, I think

things can turn out OK through keto. I'm not sure on that point; it

is just what I think I have heard. One great thing you have going

for you is your daughter's age. There is still so much growing and

developing for her brain to go through.

My son was never daignosed with LG,but his intractable seizures

and cognitive struggles on meds stumped many nueros. They just

would not admit it could be the drugs causing all the problems. I

have no idea what would happen if we took my son off keto now.

Would he be fine? Would he start having seizures again? I don't

even know what will happen in 18 months when he comes off keto. But,

boy am I sure enjoying this time and the tremendous strides he is

making.

I would sure love to see some posts by people whose children have

come off the diet successfully. Especially, parents of older kids

(10 and up or so. Does it work?

Gretchen

>

> > My daughter is 7 and i believe the meds she is on are making

things

> > worse.

> > One diagnosis she has gotten is LGS, and it is said to get

> > progressively worse,

> > but what if all the meds is what makes it worse?

> > a had a definate experience with lamictal. As soon as she

started

> > it,

> > she started getting myoclonic jerks, i took her off after one

week,

> > and the

> > jerks stopped. She has started with the jerks again when she

started

> > dilantin in

> > November. I kept her on dilantin, because of a status scare, but

am

> > now weaning

> > her.

> > There are some great studies and articles that have proven over

and over

> > again about meds making seizures worse especially LGS at Pub

Med.

> > Mostly tegretal

> > and trileptal. Even dilantin.

> > The site is:

> > http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

db=PubMed&cmd=Retrieve&list_uids

> > http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

db=PubMed&cmd=Retrieve&list_uids>

> > =9578007&dopt=Abstract

> > You can click on the link for related articles and see a whole

bunch.

> > My daughter is on trileptal, and has gotten alot worse since she

> > started, so

> > im starting to wonder.

> > Also i have heard seizures are a sign of the brain trying to

heal itself.

> > That is why alot of kids can grow out of them, but if there are

kids

> > that are

> > really doped up, how can their brain even try?

> > I wish i had the answeres i needed, and i wish there were

definates in

> > diagnosing the epilepsys.

> > It sucks.

> >

> >

> >

> >