Re: Been gone too long zanaflex & BACLOFEN

[Guest guest]

LORI, I KNOW I'M VERY LATE ON RESPONSES BUT WANTED TO TELL YOU I'M

ON BOTH ZANAFLEX & BACLOFEN & THEY DO HELP ME. YOU DIDN'T SAY WHAT

MG'S SO I'LL TELL YOU WHAT I TAKE: ZANAFLEX 20MG 6 X DAILY & BACLOFEN

30 MG'S DAILY. HOPE I WASN'T TOOOO LATE IN ANSWERING. BEV FRM GA

> Hey Everyone!

> It has been way too long since I " ve talked to most of you or read

any

> posts...I've missed everyone. After my vacation things got so

crazy at work I

> barely had time to unpack! Then I asked to get mail last week but

something else

> came up at work and long story short, I'm finally back but I'm

starting fresh

> today, so I have no idea what is going on with anyone...sorry! I

know, the

> dreaded word, but I had to say it. I did see alot of posts with I

think

> recipes, so thank you all who posted them, I'm always looking for

new recipes. I

> don't cook much but I like to and if it doesn't take too much time

or chopping I

> can do it.

> Well I went to s Hopkins and they wanted to run a few more

tests but so

> far everything is coming back negative so I think they will

eventually agree

> with the RSD diagnosis. They said my lower half is definitely RSD

but he's

> not sure about the upper body. I finally got the cast off last

Friday but my

> foot is still crooked and I can't put any weight on it. Now it's

in a big boot

> brace which I have to keep on 24/7 <sigh> The foot doctor said to

try therapy

> but I probably won't be able to handle the pain. I went to the RSD

> specialist last Monday and he said my foot is fairly common among

people with my stage

> of RSD. He said it is called dystonia - has anyone heard of that?

Basically

> my muscles are spasming and flexing, and the calf muscle is

pulling my foot

> inward...kind of makes sense when you think about it! So he said

to try

> therapy but he doesn't think I will handle the pain, nor does he

think it will help

> since there is nothing medically wrong with my foot. He put me on

a new

> muscle relaxer - Zanaflex - has anyone tried this? I just started

and you have to

> start slow and work up to full dose, so I don't notice a

difference yet. He

> also put me on Clonodin patches - again has anyone used these? And

if the

> Zanaflex doesn't work we will try Baclofen. He also said to give

it about a

> month and if there is no improvement we will talk about the

intra=thecal pump.

> It's all so frustrating as you all know.

> Anyway, I've gone on long enough, just wanted to catch everyone up

on my

> situation since I've been gone so long. I can't wait to talk with

everyone and

> see how you are all doing. I'd like to say hi to all the new

people and happy

> birthday if I missed anyone's b-day while I was away. Also I pray

that

> everyone made it through the last hurricane ok. But most of all I

hope everyone is

> feeling well and still fighting this thing. Talk to you all soon!

> <hugs> Lori