Re: Overly ketotic? Sleepy baby...

[Guest guest]

,

Thanks! I think caloric intake is probably at least part of the cause, too.

Daphne's nutritionist was hesitant to go up on the calories before, even

though she was losing weight, because of their inconsistancy and the lack of

seizure control. I really feel the depakote was the cause of the inconsistancy

(if not the lack of seizure control) and now that's out of the picture, she's

probably gone in the other direction and needs more calories.

At least I'm hoping that's what it is. Daphne's had lots of metabolic testing

(she's had all kinds of blood tests, had two spinal taps and will next be

getting

muscle biopsies to rule some mito disorders out), but I also worry if she has

some sort of undiscovered disorder the diet is making worse. I drive myself

crazy with worry!!!

It was so nice the first week of seizure control and weaning depakote, she

was so energetic, interactive and happy. While I'm thrilled her seizures are

gone, it's very dissappointing that her energy is so low.

--

> Hi ,

> My daughter is 7 months and on the diet. Those nasty infantile seizures! My

guess would be the caloric intake in addition to perhaps a little dehydrated.

The little ones grow so quickly and it is my understanding she should be

maintaining her body weight until she reaches the 50th%ile for her height (not

her age). I weigh and measure Hannah daily at home and then twice a week

she is weighed and measured at the pediatrician's office for more accuracy.

The pediatrician talks to the dietician if there any changes in weight that

could

mean a change in the diet.

> Hope this helps~

>

> Overly ketotic? Sleepy baby...

>

>

> My daughter's been on the ketogenic diet for over a month. In the

beginning,

> we couldn't get her to have consistant ketones, and she was sleeping all

the

> time. She was still having seizures, and we went up from a 3:1 ratio to a

> 3.5:1 ratio, with still no changes. After reading some posts about Depakote

> interfering with the diet, we started a new med and started weaning the

> Depakote. Her ketones, almost magically became higher, she had tons of

> energy and her seizures stopped the very next day (she's been seizure

free

> 14 days, don't know if it's the high ketones or the new med, though.)

>

> She's lost over a pound since she started the diet, and continues to lose a

> couple of ounces a week. Now, her ketones are ALWAYS in the large

range,

> and in the last few days she's been sleeping a lot again.

>

> Her Depakote is now down to 100mg per day (it was a whopping 500mg

per

> day before we weaned). Do you think the sleepiness could be caused by

too

> high a ratio? Maybe she needs more calories?

>

> Thanks for any insight you can give me!

>

> (Mom to Daphne -- 9 months old, dx with infantile spasms at 3

months)

>

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

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