Re: Digest Number 2054

[Guest guest]

,

Thanks for your email. is taking Calcimix. He is taking lots of mag

and Vitamin D and polycitra K to help him absorb the calcium better. I will try

to give it to him in smaller doses though. I have tried to wean the depakote

but it made things bad. We have tried 7 other meds but nothing else worked for

. I'm glad your daughter is seizure free. That is great. Is she doing

the Pamidronate infusions to help with her osteoporosis? I don't know if she's

old enough? does every 3 months for 3 days. So far it has helped keep

him from getting fractures for 10 months. He had 3 before we started infusions

and one was his femur bone. He got stepped on my a friend. Thanks for the

support.

You can email me anytime at mbhammett45@...

Thanks,

Bobbi

[Guest guest]

Bobbi,

Wow... it sounds like you are really doing everything. It can be so tough when

you are trying to balance the problems caused by seizure meds and/ or the

diet with the benefits of having less seizures. It is hard to know what is

the

right thing to do. It's good, at least, that he hasn't had any fractures

recently.

Daphne hasn't received Pamidronate infusions, yet. She hasn't had any

fractures, and I think they're hoping that she might make some improvement

now that she's no longer on sterroids. She's still been on antiepileptic

drugs,

though, not to mention the diet, so we'll see how it goes.

>

> ,

> Thanks for your email. is taking Calcimix. He is taking lots of mag

and Vitamin D and polycitra K to help him absorb the calcium better. I will try

to give it to him in smaller doses though. I have tried to wean the depakote

but it made things bad. We have tried 7 other meds but nothing else worked

for . I'm glad your daughter is seizure free. That is great. Is she

doing

the Pamidronate infusions to help with her osteoporosis? I don't know if she's

old enough? does every 3 months for 3 days. So far it has helped

keep him from getting fractures for 10 months. He had 3 before we started

infusions and one was his femur bone. He got stepped on my a friend.

Thanks for the support.

> You can email me anytime at mbhammett45@a...

> Thanks,

> Bobbi