Re: Doing Disney on Keto...ne

[Guest guest]

,

I'm glad to hear your trip went well (although it sounds exhausting

as well-ha). I'm glad to hear how you planned the meals worked well

for your family--you've confirmed for me that my ideas so far

regarding meal prep, portable scale and laptop with our meal planner

should work out for us while traveling with . Thanks for all

your great ideas! I've haven't looked through all the posts yet but

hope that 's depakote wean is going well. has been off

depakote for 3 weeks now and we plan to wean the keppra beginning

next week! She's been seizure free now for over 3 months--

absolutely amazing to me, but exactly what my " mom instinct " told me

could happen for her--I'm ever so thankful that she is responding so

well. And I also want to thank you for the ever informative posts

you make to this board--there have been countless that have helped

me with questions for and made our journey so much easier.

ne

> Hi ne,

> We haven't done Disney, but we did travel overseas last week and

visited some theme parks in Australia with the same sorts of issues,

and we went for a fully contained apartment nearby (we hired a

rental car for the week) with a full kitchen etc. That is mainly

because 2 of 's usual meals (breakfast and dinner) are fried

pancakes, and a microwave alternative (well, when I cook anyway...)

doesn't give the same result - his pancake comes out like soggy

scrambed egg - yuk. I also wanted a decent size freezer capacity for

ice packs to pack round food, frozen ingredients we bought over

there etc.

> We took our scales and basically prepared a day's worth of meals

each morn or the night before we headed out on each day trip. We had

a laptop with the mealplanner and some menus saved in, so if I

needed to buy diff ingredients (like ham etc that only stays fresh

for 2 days) I could adjust the values as I had to. We bought fresh

eggs, cream, oil etc the first day there at a local supermarket,

kept them in the (large..) fridge and just adjusted the values (sl

diff values to what we have here in NZ) as I had to on the

mealplanner. No diff from being at home really.

> We took a big cooler bag with us as hand luggage on the plane

from home with the meals we needed in transit (had to time them so

that he didn't have any meals to be carried thru Customs at the

other end) for the plane journey (3 hrs) and then used that same bag

with ice packs etc in packed round his days meals whenever we went

out of the hotel.

> I also had with me 's last official hospital clinic letter

that listed his medications and the diet as his current epilepsy

treatments, as some of those places prohibit taking your own food

in. Only one of the theme parks questioned the packed lunch, and I

pulled that clinic letter out to show he was on a medically

calculated diet, and we were fine. Same deal with taking meals on

the plane.

> It was do-able, but to be honest - I felt about half way thru

the week away that I wouldn't care if I never saw another

mealplanner and set of scales again. It was a pain having to worry

about it all, rather than just getting up and going and eating where

and when we wanted like everyone else around us

> But - obviously the other side of the coin is that was

even able to go away on a holiday fullstop, and for that I am

eternally grateful - seeing him on the rides with his brother and

sister, swimming in the hotel pool, chatting to new kids he met over

there etc, meant it was worth all the keto hassle.

> Oh - and the scales we took over there (fairly lightweight and

small) had battery back up, so if we had broken down say from the

airport to the hotel, anything like that, I could use the laptop and

scales on the road, and buy ingredients to make a meal in an

emergency.

> Not sure about internal US flights, but any flights here

(domestic or international) have nuts of any kind prohibited because

of the allergy risk for other passengers, so we couldn't use

's usual macadamia nut fat top up to travel with. The packs we

took over had to stay sealed, but we used a syringe of oil as a fat

top up during the flights which isn't a problem with , he

doesn't mind taking straight canola oil if needed, so that was a

bonus.

>

> Good luck

>

>

>

> ----- Original Message -----

> From: smclague

>

>

> Mike,

>

> I'm jumping in on this one--would love it if you could post

some

> information directly here on the board as we are planning a

trip to

> Disney World in January or February. We've been to WDW before

(many

> years ago), but are struggling with accomodation issues--ie,

can you

> get by with reserving a fridge and microwave or should you

really

> get a room with a kitchenette. We'd love to stay " on

property " to

> avoid transportation issues--any ideas? Oh, and we will be

> flying. . .

>

> Thanks! Hope you had a fabulous time!

>

> ne

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