Re: Gamma globulins/Hallie

[Guest guest]

Hello Hallie,

Your Tanner has had gamma globulins treatment...I was wondering for Nath if

it would be a solution...once, when Nath was little, I've asked doctors about

this but they said no, it's too dangerous...so could you tell me about it for

your son please?

aël is still very bab, a lot of tonico clonic seizures all night long

even during the day.

Thanks a lot

Carolyn, aël's mum

Re: Re:Carolyn and Satnam check this out... low

ketones and seizures!

Satnam and all the others so helpfull for me!

I come back from hospital but without aël.....He's bad and there

is no understanding so I'm desesperated and I want to believe in tha diet, it's

our last chance ! Yes it is, I don't want and I can't go further it's too

paintful for my little angel and for me too.

I'm separated from Nath's dad, we aren't very friends but for once he'll

stay at night becase I'm very tired , there's at least 3 months I didn't sleep

at all because Nath have too many seizures...

I'll tell you a little more later on if you're interested!!!!!

I'll try to sleep for a while and go back early tomorrow morning.

Doctors still don't really believe in that diet!

Nath's urinary ketones are better today but they don't want to check

blood levels ketones, they said they don't need to!!!!!!!!

Nath is under clonazepam again!They don't know diastat here!!!we have

valium intra rectal but not gel or suppository but liquid....is it the same

effect?

Thank you for beeing there

I hope Kristan is better, how is he doing with carnitor?

Lots of loves to all children

Carolyn , aël's mum

[Guest guest]

Carolyn,

I live in the United States and our Nuerologist suggested the Gamma Gobulin

treatment. Tanner did well on it for a week after, no seizures, and then the

seizures came back and he had it again when they put him on the ketogenic diet.

The diet is doing so well that they are not going to do the Gamma Gobulin again.

You could do a search and look it up if you like. It is a blood product from

many doners and they have to screen it to make sure it is safe, I understand,

and I had some apprehensions myself but seizures are also dangerous so we went

with what the doctor said.

Hallie.

Re: Re:Carolyn and Satnam check this out... low

ketones and seizures!

Satnam and all the others so helpfull for me!

I come back from hospital but without aël.....He's bad and there

is no understanding so I'm desesperated and I want to believe in tha diet, it's

our last chance ! Yes it is, I don't want and I can't go further it's too

paintful for my little angel and for me too.

I'm separated from Nath's dad, we aren't very friends but for once

he'll stay at night becase I'm very tired , there's at least 3 months I didn't

sleep at all because Nath have too many seizures...

I'll tell you a little more later on if you're interested!!!!!

I'll try to sleep for a while and go back early tomorrow morning.

Doctors still don't really believe in that diet!

Nath's urinary ketones are better today but they don't want to check

blood levels ketones, they said they don't need to!!!!!!!!

Nath is under clonazepam again!They don't know diastat here!!!we have

valium intra rectal but not gel or suppository but liquid....is it the same

effect?

Thank you for beeing there

I hope Kristan is better, how is he doing with carnitor?

Lots of loves to all children

Carolyn , aël's mum