Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Hi all I went to see the neurologist that the insurance company wanted me to se to evaluate whether I should or shouldnt receive the SCS that my pain dr wants to implant. After having gone thru the usual neurological evaluation and questions Im guessing were asked to evaluate my mental status he asked me if I had ever researched RSD on the internet. Of course I said I'd been familiar with some of the sites but was never sure what was accurate and what was way off base..so he hands me the name of two websites RSDS.org and forgrace.org and basically told me that they were two good websites for RSD information. At the end of the exam he gave me only one peice of advice and that was not to let any dr tell me NOT to use my arm and to keep as active as possible (like I really need to be told this) so I'm assuming from his words that he has given a definitive diagnosis (that makes 2 no wait 3 drs). Question is where do I go from here as I dont think he liked the idea of the SCS..but if not that, then what? It makes me wonder what hes going to report ot my insurance company and what they are going to do with me from here. He didnt say anything about work whether he would suggest sending me back to some sort of light duty (thats a joke), whether I was meeting maximum medical improvement. I dont know. All of this just leaves me with more questions and less answers. *SIGH* Oh well, at least he didnt think I was crazy LOL!! Hugs to all and hope you all had a good day! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Donna, I guess you can't do much other than wait and see. The fact that he is aware that there are good RSD organizations on the internet is a positive thing and since he gave you those sites, I have to assume, like you did, that he agrees with the diagnosis of RSD. What types of questions did he ask you about the SCS? Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 > What types of questions did he ask you about the SCS? > He didnt really ask me about the SCS ..for the most part he just kind of looked displeased at the thought of me having one placed. I could be wrong, he was hard to read for the most part, but he was pleasent so I have no complaints..he was your typical IME dr..no suggestions offered, no judgements made. I will call the case manager tomorrow and get her thoughts on this. Other than that, I'll just have to wait until I see the pain dr next week. Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 I dont know. All of this just leaves me with more questions and less answers. *SIGH* Oh well, at least he didnt think I was crazy LOL!!Hugs to all and hope you all had a good day!Donna Donna, Yes I have often come out from some doctors with more questions than answers. Then I had a receptionist at a Neurologist's office tell me that they don't believe in this disease, and they do not treat it. I got off the phone going well goody goody for you LOL I am in a good mood today, not sure why, maybe I am losing my grip on reality, because I am in an awful lot of pain on my left side and my left knee is 2x the size of my other knee. take care, Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Donna, At least your IME agree's that it's RSD. That's a Point for your side which is a good thing. You are luckier than most......because most IME's will say that it's something other than RSD, or will throw a fit over the fact that you have gone online to check out information. I know that when I went to my IME, I got yelled at for even going online to read up on RSD, I got yelled at for joining a support group online......and even yelloed at for it by other doctors that I went to see that wasn't IME's! Now, I have a great pain doc that knows that I check out info online, am in a support group iand is happy about it and everything. All he tells me is that I need to be careful when writing to Senator's and Reps about getting an Awareness going here in Iowa because I'm on Medicaid....I could lose it because I'm standing up for my Medical Rights and the State doesn't like people that does that. Tonia -------Original Message------- Hi allI went to see the neurologist that the insurance company wanted me to se to evaluate whether I should or shouldnt receive the SCS that my pain dr wants to implant. After having gone thru the usual neurological evaluation and questions Im guessing were asked to evaluate my mental status he asked me if I had ever researched RSD on the internet. Of course I said I'd been familiar with some of the sites but was never sure what was accurate and what was way off base..so he hands me the name of two websites RSDS.org and forgrace.org and basically told me that they were two good websites for RSD information. At the end of the exam he gave me only one peice of advice and that was not to let any dr tell me NOT to use my arm and to keep as active as possible (like I really need to be told this) so I'm assuming from his words that he has given a definitive diagnosis (that makes 2 no wait 3 drs). Question is where do I go from here as I dont think he liked the idea of the SCS..but if not that, then what? It makes me wonder what hes going to report ot my insurance company and what they are going to do with me from here. He didnt say anything about work whether he would suggest sending me back to some sort of light duty (thats a joke), whether I was meeting maximum medical improvement. I dont know. All of this just leaves me with more questions and less answers. *SIGH* Oh well, at least he didnt think I was crazy LOL!!Hugs to all and hope you all had a good day!Donna ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Donna, At least your IME agree's that it's RSD. That's a Point for your side which is a good thing. You are luckier than most......because most IME's will say that it's something other than RSD, or will throw a fit over the fact that you have gone online to check out information. I know that when I went to my IME, I got yelled at for even going online to read up on RSD, I got yelled at for joining a support group online......and even yelloed at for it by other doctors that I went to see that wasn't IME's! Now, I have a great pain doc that knows that I check out info online, am in a support group iand is happy about it and everything. All he tells me is that I need to be careful when writing to Senator's and Reps about getting an Awareness going here in Iowa because I'm on Medicaid....I could lose it because I'm standing up for my Medical Rights and the State doesn't like people that does that. Tonia -------Original Message------- Hi allI went to see the neurologist that the insurance company wanted me to se to evaluate whether I should or shouldnt receive the SCS that my pain dr wants to implant. After having gone thru the usual neurological evaluation and questions Im guessing were asked to evaluate my mental status he asked me if I had ever researched RSD on the internet. Of course I said I'd been familiar with some of the sites but was never sure what was accurate and what was way off base..so he hands me the name of two websites RSDS.org and forgrace.org and basically told me that they were two good websites for RSD information. At the end of the exam he gave me only one peice of advice and that was not to let any dr tell me NOT to use my arm and to keep as active as possible (like I really need to be told this) so I'm assuming from his words that he has given a definitive diagnosis (that makes 2 no wait 3 drs). Question is where do I go from here as I dont think he liked the idea of the SCS..but if not that, then what? It makes me wonder what hes going to report ot my insurance company and what they are going to do with me from here. He didnt say anything about work whether he would suggest sending me back to some sort of light duty (thats a joke), whether I was meeting maximum medical improvement. I dont know. All of this just leaves me with more questions and less answers. *SIGH* Oh well, at least he didnt think I was crazy LOL!!Hugs to all and hope you all had a good day!Donna ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Donna, At least your IME agree's that it's RSD. That's a Point for your side which is a good thing. You are luckier than most......because most IME's will say that it's something other than RSD, or will throw a fit over the fact that you have gone online to check out information. I know that when I went to my IME, I got yelled at for even going online to read up on RSD, I got yelled at for joining a support group online......and even yelloed at for it by other doctors that I went to see that wasn't IME's! Now, I have a great pain doc that knows that I check out info online, am in a support group iand is happy about it and everything. All he tells me is that I need to be careful when writing to Senator's and Reps about getting an Awareness going here in Iowa because I'm on Medicaid....I could lose it because I'm standing up for my Medical Rights and the State doesn't like people that does that. Tonia -------Original Message------- Hi allI went to see the neurologist that the insurance company wanted me to se to evaluate whether I should or shouldnt receive the SCS that my pain dr wants to implant. After having gone thru the usual neurological evaluation and questions Im guessing were asked to evaluate my mental status he asked me if I had ever researched RSD on the internet. Of course I said I'd been familiar with some of the sites but was never sure what was accurate and what was way off base..so he hands me the name of two websites RSDS.org and forgrace.org and basically told me that they were two good websites for RSD information. At the end of the exam he gave me only one peice of advice and that was not to let any dr tell me NOT to use my arm and to keep as active as possible (like I really need to be told this) so I'm assuming from his words that he has given a definitive diagnosis (that makes 2 no wait 3 drs). Question is where do I go from here as I dont think he liked the idea of the SCS..but if not that, then what? It makes me wonder what hes going to report ot my insurance company and what they are going to do with me from here. He didnt say anything about work whether he would suggest sending me back to some sort of light duty (thats a joke), whether I was meeting maximum medical improvement. I dont know. All of this just leaves me with more questions and less answers. *SIGH* Oh well, at least he didnt think I was crazy LOL!!Hugs to all and hope you all had a good day!Donna ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 > Donna, > At least your IME agree's that it's RSD. That's a Point for your side which > is a good thing. > You are luckier than most......because most IME's will say that it's > something other than RSD, or will throw a fit over the fact that you have > gone online to check out information. > I am happy with his findings though part of me hoped that maybe it would be something that maybe someone overlooked and it would be fixed but oh well at least my insurance co. cant gripe now and will realize they need to pay now. I've been trying to reach my case manager for 2 days now with no call back...grrr.... Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 > Donna, > At least your IME agree's that it's RSD. That's a Point for your side which > is a good thing. > You are luckier than most......because most IME's will say that it's > something other than RSD, or will throw a fit over the fact that you have > gone online to check out information. > I am happy with his findings though part of me hoped that maybe it would be something that maybe someone overlooked and it would be fixed but oh well at least my insurance co. cant gripe now and will realize they need to pay now. I've been trying to reach my case manager for 2 days now with no call back...grrr.... Hugs Donna Quote Link to comment Share on other sites More sharing options...
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