Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Welp, as I said, I'm back from the great siuthern states. Man alive do they need to turn down the thermostat down there. Thought I was like to die. Anyway.. a good time was had by all. I still haven't downloaded the pictures from the camera yet but I promise more pics soon. Now on to the doc visit we had today about the diet. For the past month or so and then increasingly on vacation, was having more and more seizures. Pre diet, he would have one a week and only while sleeping. The last 3 weeks if it wasn't every day, it was every other. I talk ed a lot today to the dietitian about s growth (and the fact that he wasn't having any) and the fact that the poor kid didn't poop but once every 12 days. He wasn't constipated mind you, when it did finally come it was normal. He just didn't. We decided to ween the diet starting today. I think the final straw was when he had a day, the only day mind you in the last 2 months, with really low ketones (someone fed the poor bugger) and he didn't have a seizure but when he got back up to 80+, he had 5 days in a row with them. I know a lot of you have had tremendous luck with the diet and I'm glad. is just the other end of the spectrum. I had such hopes. Anyway, I'll stick around since I have some good recipies and cookbooks and the like. Just thought you should know. Ally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Maybe you just need some fine-tuning; in this case increase calories. Bill Allyson Kulinski wrote: > Welp, as I said, I'm back from the great siuthern states. Man alive do they need to turn down the thermostat down there. Thought I was like to die. Anyway.. a good time was had by all. I still haven't downloaded the pictures from the camera yet but I promise more pics soon. Now on to the doc visit we had today about the diet. > > For the past month or so and then increasingly on vacation, was having more and more seizures. Pre diet, he would have one a week and only while sleeping. The last 3 weeks if it wasn't every day, it was every other. I talk ed a lot today to the dietitian about s growth (and the fact that he wasn't having any) and the fact that the poor kid didn't poop but once every 12 days. He wasn't constipated mind you, when it did finally come it was normal. He just didn't. We decided to ween the diet starting today. I think the final straw was when he had a day, the only day mind you in the last 2 months, with really low ketones (someone fed the poor bugger) and he didn't have a seizure but when he got back up to 80+, he had 5 days in a row with them. I know a lot of you have had tremendous luck with the diet and I'm glad. is just the other end of the spectrum. I had such hopes. Anyway, I'll stick around since I have some good recipies and cookbooks and the like. Ju st thought you should know. > > Ally > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Maybe you just need some fine-tuning; in this case increase calories. Bill Allyson Kulinski wrote: > Welp, as I said, I'm back from the great siuthern states. Man alive do they need to turn down the thermostat down there. Thought I was like to die. Anyway.. a good time was had by all. I still haven't downloaded the pictures from the camera yet but I promise more pics soon. Now on to the doc visit we had today about the diet. > > For the past month or so and then increasingly on vacation, was having more and more seizures. Pre diet, he would have one a week and only while sleeping. The last 3 weeks if it wasn't every day, it was every other. I talk ed a lot today to the dietitian about s growth (and the fact that he wasn't having any) and the fact that the poor kid didn't poop but once every 12 days. He wasn't constipated mind you, when it did finally come it was normal. He just didn't. We decided to ween the diet starting today. I think the final straw was when he had a day, the only day mind you in the last 2 months, with really low ketones (someone fed the poor bugger) and he didn't have a seizure but when he got back up to 80+, he had 5 days in a row with them. I know a lot of you have had tremendous luck with the diet and I'm glad. is just the other end of the spectrum. I had such hopes. Anyway, I'll stick around since I have some good recipies and cookbooks and the like. Ju st thought you should know. > > Ally > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Maybe you just need some fine-tuning; in this case increase calories. Bill Allyson Kulinski wrote: > Welp, as I said, I'm back from the great siuthern states. Man alive do they need to turn down the thermostat down there. Thought I was like to die. Anyway.. a good time was had by all. I still haven't downloaded the pictures from the camera yet but I promise more pics soon. Now on to the doc visit we had today about the diet. > > For the past month or so and then increasingly on vacation, was having more and more seizures. Pre diet, he would have one a week and only while sleeping. The last 3 weeks if it wasn't every day, it was every other. I talk ed a lot today to the dietitian about s growth (and the fact that he wasn't having any) and the fact that the poor kid didn't poop but once every 12 days. He wasn't constipated mind you, when it did finally come it was normal. He just didn't. We decided to ween the diet starting today. I think the final straw was when he had a day, the only day mind you in the last 2 months, with really low ketones (someone fed the poor bugger) and he didn't have a seizure but when he got back up to 80+, he had 5 days in a row with them. I know a lot of you have had tremendous luck with the diet and I'm glad. is just the other end of the spectrum. I had such hopes. Anyway, I'll stick around since I have some good recipies and cookbooks and the like. Ju st thought you should know. > > Ally > > Quote Link to comment Share on other sites More sharing options...
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