Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 In a message dated 10/11/04 12:13:03 PM Pacific Daylight Time, RSD-CRPSofAmerica writes: .. Lori - I looked that the website and what they are referring to is more than just the dystonic symptoms that occur with RSD. The dystonia that they are discussing is a full-blown disease process of its own. There is both the dystonia that occurs as a symptom of a disorder (like the RSD we have) and the dystonia that is a totally separate disease process (not what we have). So let's keep breathing here, folks. While the info that is on the net is helpful, it can also lead us astray and scare the dickens out of us. Hope that this helps. Barbara Barbara,this is so true!!!!! everything read on the net should be taken with a grain of salt..........do not take it for gospel. See a reputable MD and let them sort it out. It is scary reading all of this stuff so don't take it to heart. We all would be basket cases LOL!!!!!!! Lori, if you are really concerned about the dystonia, write to me in private, Ill give you my story, and it has a happy ending! Love Jai write to me at: jaismonkey@... or moderndaypirate@... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.