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Re: - glucose levels-

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used to have high ones like that (actually, don't think he ever got as

high as 7.0 though??) when his cals were deficient and he wasn't in the correct

'fat burning process', both after fasting and after excercise.

Same process both times in his case, body went searching for energy, didn't

find any calories left, didn't burn any body fat (which he did have enough of to

burn btw, his body just wasn't 'doing it right', prob from being metabolically

deranged) didn't find any glucose in the blooodstream, next port of call was

using muscle mass. Muscle mass converted to protein and then glucose in the

bloodstream = high glucose readings and what were prob sub clincial seizures as

a result while he was using it for energy/fuel.

I used to panic when he even tried to climb stairs when he was in that state -

excercise (so having to find energy from somewhere) saw him drooling afterwards,

dilated pupils, and now and then when he was particulary unstable, a clincial

seizure :(

Those days have left me so paranoid that I still won't let him participate in

Phys ed at school, won't let him walk to school either, er actually I go so far

as to make sure we are allowed to park right by his class when I take him to

school every day, even the sloped school driveway has me break out in a cold

sweat...

They are doing cross country training right now at school as a matter of fact,

I wrote a big fat note in red writing with 'no runnng allowed' at his last IEP.

We are building excercise tolerance levels up more thru physio and resistance

type excercises striving to get his lean muscle mass back up with the play. Once

he shows to be doing ok in that dept, I will start stretching him to walking and

then running, little steps....

If glucose had been in the normal ranges at those times I might have been

swaying more to carnitne deficiency as a cause, (excercise intolerance and

seizures being 2 of those symptoms) but BS was always high, and this wouldn't be

affected by carnitine levels, well I don't think so anyways...

----- Original Message -----

From: mmc@...

When Jess was on diet, once or twice we had glucose measurements of 7

which I figured was absoloutely nuts on diet, thought my machine was out

of whack. But I think I got one on old macine, and one on new one.

Other than that her levels ran usually in the 3s to mid 4s, except for

her periodic levels of going too low. Both times the 7 readings occured

in the afternoon, after school, once after exercise (cross country

running). Any thoughts on the 7s?

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