Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 I'm fascinated by the current posts on osteoporosis, as there is a history of osteoporosis in my family. I am due a doc's appointment on Monday morning, following a recent bone density scan and my doctor's letter said " the recent bone density scan suggests you need some treatment " . I was expecting it, since my Mum has recently been diagnosed and my late grandmother had it too. I figured I'd best find out sooner rather than later and I'm rather glad I did now... Anyway, my concern is now for Francesca. Her last tests showed a slightly high calcium:creatinine ratio from her urine (and I subsequently discovered from the Multistix that she had blood in her urine), so my concern was for kidney stones. She has a kidney ultrasound booked for 17th September. I feel confident this shouldn't be a problem as she drinks plenty, so I hope it'll just be a routine 'strike it off the list' situation. However, her blood calcium level was 2.17 against a range of 2.22 to 2.51. Is this to be concerned about? She takes a calcium supplement, but does this show it's not being absorbed as well as it should? Should we change to a more absorbable form??? How likely is osteoporosis? She has been on the diet for 10 months (6 months at the time of the test results) and has been drug free since May (previously was on depakote/Epilim for 3 and a half years). Should I request a bone density scan or am I being paranoid??? , Mum to Francesca, Keto Kid since Sept 03, and frankly just having a few myoclonic jerks each day, which I'd like to get rid of but feel are liveable with, so long as the tonic clonics never come back... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 So has she ever had one done? Given the family history and the fact that the diet increases the risk, it wouldn't hurt to do one, at least to have a baseline to compare to. We did them once per year while on diet once we discovered Jess was peeing out 5 times normal amount of calcium. But you say her calcium/creatine ratio was only slightly elevated, so that sounds good. Kids who pee out high levels of calcium (hypercalcuria I think its called) usually have normal blood calcium levels our nephrologist said. I think high blood calcium levels are called hypercalcemia, so low must be hypocalcemia?? Anyway I don't think hers are that low to worry about but given family history and all, why not ask for referral to nephrologist? Should hopefully ease your mind and make sure you cover all the bases. Definitely an area where its better to be safe than sorry in my opinion , 's mom wendymmw wrote: > I'm fascinated by the current posts on osteoporosis, as there is a > history of osteoporosis in my family. I am due a doc's appointment > on Monday morning, following a recent bone density scan and my > doctor's letter said " the recent bone density scan suggests you need > some treatment " . I was expecting it, since my Mum has recently been > diagnosed and my late grandmother had it too. I figured I'd best > find out sooner rather than later and I'm rather glad I did now... > > Anyway, my concern is now for Francesca. Her last tests showed a > slightly high calcium:creatinine ratio from her urine (and I > subsequently discovered from the Multistix that she had blood in her > urine), so my concern was for kidney stones. She has a kidney > ultrasound booked for 17th September. I feel confident this > shouldn't be a problem as she drinks plenty, so I hope it'll just be > a routine 'strike it off the list' situation. > > However, her blood calcium level was 2.17 against a range of 2.22 to > 2.51. Is this to be concerned about? She takes a calcium > supplement, but does this show it's not being absorbed as well as it > should? Should we change to a more absorbable form??? > > How likely is osteoporosis? She has been on the diet for 10 months > (6 months at the time of the test results) and has been drug free > since May (previously was on depakote/Epilim for 3 and a half > years). Should I request a bone density scan or am I being > paranoid??? > > , Mum to Francesca, Keto Kid since Sept 03, and frankly just > having a few myoclonic jerks each day, which I'd like to get rid of > but feel are liveable with, so long as the tonic clonics never come > back... > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 AED's are known to cause osteoporosis. Bill mmc@... wrote: > So has she ever had one done? Given the family history and the fact that > the diet increases the risk, it wouldn't hurt to do one, at least to > have a baseline to compare to. We did them once per year while on diet > once we discovered Jess was peeing out 5 times normal amount of calcium. > > But you say her calcium/creatine ratio was only slightly elevated, so > that sounds good. Kids who pee out high levels of calcium (hypercalcuria > I think its called) usually have normal blood calcium levels our > nephrologist said. I think high blood calcium levels are called > hypercalcemia, so low must be hypocalcemia?? Anyway I don't think hers > are that low to worry about but given family history and all, why not > ask for referral to nephrologist? Should hopefully ease your mind and > make sure you cover all the bases. Definitely an area where its better > to be safe than sorry in my opinion > , 's mom > > wendymmw wrote: > > >> I'm fascinated by the current posts on osteoporosis, as there is a >>history of osteoporosis in my family. I am due a doc's appointment >>on Monday morning, following a recent bone density scan and my >>doctor's letter said " the recent bone density scan suggests you need >>some treatment " . I was expecting it, since my Mum has recently been >>diagnosed and my late grandmother had it too. I figured I'd best >>find out sooner rather than later and I'm rather glad I did now... >> >>Anyway, my concern is now for Francesca. Her last tests showed a >>slightly high calcium:creatinine ratio from her urine (and I >>subsequently discovered from the Multistix that she had blood in her >>urine), so my concern was for kidney stones. She has a kidney >>ultrasound booked for 17th September. I feel confident this >>shouldn't be a problem as she drinks plenty, so I hope it'll just be >>a routine 'strike it off the list' situation. >> >>However, her blood calcium level was 2.17 against a range of 2.22 to >>2.51. Is this to be concerned about? She takes a calcium >>supplement, but does this show it's not being absorbed as well as it >>should? Should we change to a more absorbable form??? >> >>How likely is osteoporosis? She has been on the diet for 10 months >>(6 months at the time of the test results) and has been drug free >>since May (previously was on depakote/Epilim for 3 and a half >>years). Should I request a bone density scan or am I being >>paranoid??? >> >>, Mum to Francesca, Keto Kid since Sept 03, and frankly just >>having a few myoclonic jerks each day, which I'd like to get rid of >>but feel are liveable with, so long as the tonic clonics never come >>back... >> >> >> >> " The Ketogenic Diet....a realistic treatment option, NOT just a last >>resort! " >> >> List is for parent to parent support only. >> It is important to get medical advice from a >>professional keto team! >> Subscribe: ketogenic-subscribe >> Unsubscribe: ketogenic-unsubscribe >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Hi, . I was wondering who ordered the tests you wrote about? That doctor might be the best one to ask about any necessary testing. If he/she is aware of your family history, it might also bring some perspective. In my daughter's case, the onset of osteoporosis was pretty quick. She was on a high, high dose of ACTH for 8 weeks for infantile spasms. After we weaned her she stopped eating completely, and vomitted up all her food, which required a hospitilazation. They did a chest x-ray, among other tests, and found that her bone density looked very low (even though an x-ray isn't the best test). It's not common for young children, even those on the diet, to develop osteoporosis. Still, even if Fransesca doesn't have it now, she's clearly at risk for developing it when older, and good calcium absorbtion now seems very important. I would ask her doctors about the low calcium blood level, and tell them that want to make sure that you are doing everything to encourage maximal absorbsion. I'm sure they could refer you to a nutritionist, or other specialist, who could give you tips (ie giving smaller doses throughout day, using elemental form, ensuring its balanced with vitamin d, magnesium and vitamin k). Also, if you do find calcium buildup in Fransesca's kidneys in the ultrasound, it might be a clue that you should get her bones checked, too. Good luck! (mom to Daphne -- 10 months old today > I'm fascinated by the current posts on osteoporosis, as there is a > history of osteoporosis in my family. I am due a doc's appointment > on Monday morning, following a recent bone density scan and my > doctor's letter said " the recent bone density scan suggests you need > some treatment " . I was expecting it, since my Mum has recently been > diagnosed and my late grandmother had it too. I figured I'd best > find out sooner rather than later and I'm rather glad I did now... > > Anyway, my concern is now for Francesca. Her last tests showed a > slightly high calcium:creatinine ratio from her urine (and I > subsequently discovered from the Multistix that she had blood in her > urine), so my concern was for kidney stones. She has a kidney > ultrasound booked for 17th September. I feel confident this > shouldn't be a problem as she drinks plenty, so I hope it'll just be > a routine 'strike it off the list' situation. > > However, her blood calcium level was 2.17 against a range of 2.22 to > 2.51. Is this to be concerned about? She takes a calcium > supplement, but does this show it's not being absorbed as well as it > should? Should we change to a more absorbable form??? > > How likely is osteoporosis? She has been on the diet for 10 months > (6 months at the time of the test results) and has been drug free > since May (previously was on depakote/Epilim for 3 and a half > years). Should I request a bone density scan or am I being > paranoid??? > > , Mum to Francesca, Keto Kid since Sept 03, and frankly just > having a few myoclonic jerks each day, which I'd like to get rid of > but feel are liveable with, so long as the tonic clonics never come > back... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Hi, . I was wondering who ordered the tests you wrote about? That doctor might be the best one to ask about any necessary testing. If he/she is aware of your family history, it might also bring some perspective. In my daughter's case, the onset of osteoporosis was pretty quick. She was on a high, high dose of ACTH for 8 weeks for infantile spasms. After we weaned her she stopped eating completely, and vomitted up all her food, which required a hospitilazation. They did a chest x-ray, among other tests, and found that her bone density looked very low (even though an x-ray isn't the best test). It's not common for young children, even those on the diet, to develop osteoporosis. Still, even if Fransesca doesn't have it now, she's clearly at risk for developing it when older, and good calcium absorbtion now seems very important. I would ask her doctors about the low calcium blood level, and tell them that want to make sure that you are doing everything to encourage maximal absorbsion. I'm sure they could refer you to a nutritionist, or other specialist, who could give you tips (ie giving smaller doses throughout day, using elemental form, ensuring its balanced with vitamin d, magnesium and vitamin k). Also, if you do find calcium buildup in Fransesca's kidneys in the ultrasound, it might be a clue that you should get her bones checked, too. Good luck! (mom to Daphne -- 10 months old today > I'm fascinated by the current posts on osteoporosis, as there is a > history of osteoporosis in my family. I am due a doc's appointment > on Monday morning, following a recent bone density scan and my > doctor's letter said " the recent bone density scan suggests you need > some treatment " . I was expecting it, since my Mum has recently been > diagnosed and my late grandmother had it too. I figured I'd best > find out sooner rather than later and I'm rather glad I did now... > > Anyway, my concern is now for Francesca. Her last tests showed a > slightly high calcium:creatinine ratio from her urine (and I > subsequently discovered from the Multistix that she had blood in her > urine), so my concern was for kidney stones. She has a kidney > ultrasound booked for 17th September. I feel confident this > shouldn't be a problem as she drinks plenty, so I hope it'll just be > a routine 'strike it off the list' situation. > > However, her blood calcium level was 2.17 against a range of 2.22 to > 2.51. Is this to be concerned about? She takes a calcium > supplement, but does this show it's not being absorbed as well as it > should? Should we change to a more absorbable form??? > > How likely is osteoporosis? She has been on the diet for 10 months > (6 months at the time of the test results) and has been drug free > since May (previously was on depakote/Epilim for 3 and a half > years). Should I request a bone density scan or am I being > paranoid??? > > , Mum to Francesca, Keto Kid since Sept 03, and frankly just > having a few myoclonic jerks each day, which I'd like to get rid of > but feel are liveable with, so long as the tonic clonics never come > back... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Hi, . I was wondering who ordered the tests you wrote about? That doctor might be the best one to ask about any necessary testing. If he/she is aware of your family history, it might also bring some perspective. In my daughter's case, the onset of osteoporosis was pretty quick. She was on a high, high dose of ACTH for 8 weeks for infantile spasms. After we weaned her she stopped eating completely, and vomitted up all her food, which required a hospitilazation. They did a chest x-ray, among other tests, and found that her bone density looked very low (even though an x-ray isn't the best test). It's not common for young children, even those on the diet, to develop osteoporosis. Still, even if Fransesca doesn't have it now, she's clearly at risk for developing it when older, and good calcium absorbtion now seems very important. I would ask her doctors about the low calcium blood level, and tell them that want to make sure that you are doing everything to encourage maximal absorbsion. I'm sure they could refer you to a nutritionist, or other specialist, who could give you tips (ie giving smaller doses throughout day, using elemental form, ensuring its balanced with vitamin d, magnesium and vitamin k). Also, if you do find calcium buildup in Fransesca's kidneys in the ultrasound, it might be a clue that you should get her bones checked, too. Good luck! (mom to Daphne -- 10 months old today > I'm fascinated by the current posts on osteoporosis, as there is a > history of osteoporosis in my family. I am due a doc's appointment > on Monday morning, following a recent bone density scan and my > doctor's letter said " the recent bone density scan suggests you need > some treatment " . I was expecting it, since my Mum has recently been > diagnosed and my late grandmother had it too. I figured I'd best > find out sooner rather than later and I'm rather glad I did now... > > Anyway, my concern is now for Francesca. Her last tests showed a > slightly high calcium:creatinine ratio from her urine (and I > subsequently discovered from the Multistix that she had blood in her > urine), so my concern was for kidney stones. She has a kidney > ultrasound booked for 17th September. I feel confident this > shouldn't be a problem as she drinks plenty, so I hope it'll just be > a routine 'strike it off the list' situation. > > However, her blood calcium level was 2.17 against a range of 2.22 to > 2.51. Is this to be concerned about? She takes a calcium > supplement, but does this show it's not being absorbed as well as it > should? Should we change to a more absorbable form??? > > How likely is osteoporosis? She has been on the diet for 10 months > (6 months at the time of the test results) and has been drug free > since May (previously was on depakote/Epilim for 3 and a half > years). Should I request a bone density scan or am I being > paranoid??? > > , Mum to Francesca, Keto Kid since Sept 03, and frankly just > having a few myoclonic jerks each day, which I'd like to get rid of > but feel are liveable with, so long as the tonic clonics never come > back... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Thank you - this group is so wonderful. You are absolutely right. I asked for the test on myself due to the family history, but in which case, my GP who agreed to me having the test would, I'm sure, agree to Francesca having it too - for all the obvious reasons. I will ask on Monday morning when I have my 'what to do next' appointment for myself. Re the absorbtion, we have the magnesium covered, but the vitamin D and K is just what's in the multi vitamin tablet, which interestingly, is not as high in vitamin A or zinc as our dietician believes (or if it is, it's not being absorbed???), so... We really do learn something new every day, don't we? Thanks heaps , Mum to Francesca, Keto Kid since Sept 03, drug free since May 04 > > I'm fascinated by the current posts on osteoporosis, as there is a > > history of osteoporosis in my family. I am due a doc's appointment > > on Monday morning, following a recent bone density scan and my > > doctor's letter said " the recent bone density scan suggests you need > > some treatment " . I was expecting it, since my Mum has recently been > > diagnosed and my late grandmother had it too. I figured I'd best > > find out sooner rather than later and I'm rather glad I did now... > > > > Anyway, my concern is now for Francesca. Her last tests showed a > > slightly high calcium:creatinine ratio from her urine (and I > > subsequently discovered from the Multistix that she had blood in her > > urine), so my concern was for kidney stones. She has a kidney > > ultrasound booked for 17th September. I feel confident this > > shouldn't be a problem as she drinks plenty, so I hope it'll just be > > a routine 'strike it off the list' situation. > > > > However, her blood calcium level was 2.17 against a range of 2.22 to > > 2.51. Is this to be concerned about? She takes a calcium > > supplement, but does this show it's not being absorbed as well as it > > should? Should we change to a more absorbable form??? > > > > How likely is osteoporosis? She has been on the diet for 10 months > > (6 months at the time of the test results) and has been drug free > > since May (previously was on depakote/Epilim for 3 and a half > > years). Should I request a bone density scan or am I being > > paranoid??? > > > > , Mum to Francesca, Keto Kid since Sept 03, and frankly just > > having a few myoclonic jerks each day, which I'd like to get rid of > > but feel are liveable with, so long as the tonic clonics never come > > back... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Thank you - this group is so wonderful. You are absolutely right. I asked for the test on myself due to the family history, but in which case, my GP who agreed to me having the test would, I'm sure, agree to Francesca having it too - for all the obvious reasons. I will ask on Monday morning when I have my 'what to do next' appointment for myself. Re the absorbtion, we have the magnesium covered, but the vitamin D and K is just what's in the multi vitamin tablet, which interestingly, is not as high in vitamin A or zinc as our dietician believes (or if it is, it's not being absorbed???), so... We really do learn something new every day, don't we? Thanks heaps , Mum to Francesca, Keto Kid since Sept 03, drug free since May 04 > > I'm fascinated by the current posts on osteoporosis, as there is a > > history of osteoporosis in my family. I am due a doc's appointment > > on Monday morning, following a recent bone density scan and my > > doctor's letter said " the recent bone density scan suggests you need > > some treatment " . I was expecting it, since my Mum has recently been > > diagnosed and my late grandmother had it too. I figured I'd best > > find out sooner rather than later and I'm rather glad I did now... > > > > Anyway, my concern is now for Francesca. Her last tests showed a > > slightly high calcium:creatinine ratio from her urine (and I > > subsequently discovered from the Multistix that she had blood in her > > urine), so my concern was for kidney stones. She has a kidney > > ultrasound booked for 17th September. I feel confident this > > shouldn't be a problem as she drinks plenty, so I hope it'll just be > > a routine 'strike it off the list' situation. > > > > However, her blood calcium level was 2.17 against a range of 2.22 to > > 2.51. Is this to be concerned about? She takes a calcium > > supplement, but does this show it's not being absorbed as well as it > > should? Should we change to a more absorbable form??? > > > > How likely is osteoporosis? She has been on the diet for 10 months > > (6 months at the time of the test results) and has been drug free > > since May (previously was on depakote/Epilim for 3 and a half > > years). Should I request a bone density scan or am I being > > paranoid??? > > > > , Mum to Francesca, Keto Kid since Sept 03, and frankly just > > having a few myoclonic jerks each day, which I'd like to get rid of > > but feel are liveable with, so long as the tonic clonics never come > > back... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Thank you - this group is so wonderful. You are absolutely right. I asked for the test on myself due to the family history, but in which case, my GP who agreed to me having the test would, I'm sure, agree to Francesca having it too - for all the obvious reasons. I will ask on Monday morning when I have my 'what to do next' appointment for myself. Re the absorbtion, we have the magnesium covered, but the vitamin D and K is just what's in the multi vitamin tablet, which interestingly, is not as high in vitamin A or zinc as our dietician believes (or if it is, it's not being absorbed???), so... We really do learn something new every day, don't we? Thanks heaps , Mum to Francesca, Keto Kid since Sept 03, drug free since May 04 > > I'm fascinated by the current posts on osteoporosis, as there is a > > history of osteoporosis in my family. I am due a doc's appointment > > on Monday morning, following a recent bone density scan and my > > doctor's letter said " the recent bone density scan suggests you need > > some treatment " . I was expecting it, since my Mum has recently been > > diagnosed and my late grandmother had it too. I figured I'd best > > find out sooner rather than later and I'm rather glad I did now... > > > > Anyway, my concern is now for Francesca. Her last tests showed a > > slightly high calcium:creatinine ratio from her urine (and I > > subsequently discovered from the Multistix that she had blood in her > > urine), so my concern was for kidney stones. She has a kidney > > ultrasound booked for 17th September. I feel confident this > > shouldn't be a problem as she drinks plenty, so I hope it'll just be > > a routine 'strike it off the list' situation. > > > > However, her blood calcium level was 2.17 against a range of 2.22 to > > 2.51. Is this to be concerned about? She takes a calcium > > supplement, but does this show it's not being absorbed as well as it > > should? Should we change to a more absorbable form??? > > > > How likely is osteoporosis? She has been on the diet for 10 months > > (6 months at the time of the test results) and has been drug free > > since May (previously was on depakote/Epilim for 3 and a half > > years). Should I request a bone density scan or am I being > > paranoid??? > > > > , Mum to Francesca, Keto Kid since Sept 03, and frankly just > > having a few myoclonic jerks each day, which I'd like to get rid of > > but feel are liveable with, so long as the tonic clonics never come > > back... Quote Link to comment Share on other sites More sharing options...
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