Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 I'm on 2400 mg right now and I must admit that my memory is going down the tubes. I find that if I remember to do something that I'd better do it right then or at least write it down so I wont forget when its time. I had a great memory for things and lately its just not happening and its very frustrating! To make things more frustrating in my life..I've been taking a class for the last couple of years and all that I've learned has been forgotten when it comes to verbal recall, so this past month I asked my teacher if I could start over...grrr...oh well at least it will be a good refresher for me but puts me so far behind and I find myself getting very mad about it sometimes. Oh well, Im sure that it will probably decline further before it improves but for now I'll just write things down and live with it. Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Barbara, I totally agree. When they did the skin biopsy I was really hoping something would turn up and they would say oh...this is what's wrong and this is how you fix it...but no such luck. I didn't feel any effects from the Neurontin either, so maybe that's why we had no problems going off of it....who knows. I hope that you are feeling better and I'll talk to you later. <hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Debbie, It's good to hear from you! I haven't been around much lately either, between physical problems and work I haven't had the energy. I'm sorry I'm so late in responding to this!! More than likely if no other medication has changed then it is the Neurontin making you feel this way. I know some other people had those kinds of side effects. I personally didn't feel any different when I was taking it. I would talk to your doctor if you can't handle the side effects, but if you can maybe give it a bit of time for your body to adjust and then see how you feel. The way my doctor explained it to me is if 2700mg is not helping the pain than increasing it won't help either, so he switched me to Trileptal. There are a few others that you may not have as bad side effects, your doctor could switch you if you can't handle it. I think the Trileptal is working better for me than the Neurontin did, at least with the burning sensation. I still have it but not as hot, if that makes sense. I hope that you are able to post some more and not isolate yourself. I know it is hard to accept things and sometimes you just want to stay in bed and hope it goes away. We all feel like this at times but you have to keep fighting and you have alot of people here to support and love you. Take care of yourself and hopefully I'll talk to you soon.<hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 -- Re: Donna Donna, That is how my mind was as long as I was on the medication. Then my insurance sent me to see a psychologist and had me preform a number of memory tasks and I failed at so many of them it wasn't funny, yet social security didn't see any functional assessments in my chart. I am so irritated, I know, I know that hardly anyone gets on it after their first assessment but I am still irritated. I am sorry that you may have to take your class all over again. My memory was getting so bad that if I lost my place in a book it took me forever to remember where I had stopped reading. My memory is still not what it used to be before I got this wonderful disease, but it has improved since I have been off the Neurontin. Lin Lin I'm on 2400 mg right now and I must admit that my memory is going down the tubes. I find that if I remember to do something that I'd better do it right then or at least write it down so I wont forget when its time. I had a great memory for things and lately its just not happening and its very frustrating!To make things more frustrating in my life..I've been taking a class for the last couple of years and all that I've learned has been forgotten when it comes to verbal recall, so this past month I asked my teacher if I could start over...grrr...oh well at least it will be a good refresher for me but puts me so far behind and I find myself getting very mad about it sometimes.Oh well, Im sure that it will probably decline further before it improves but for now I'll just write things down and live with it.Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 It was pertty bad yesterday when I went for the IME and when he asked me what meds I was on I drew a total blank. Good thing I wrote them down because I knew damn well what I was taking and other than the neurontin I couldnt recall a single one. UGH! Reading has indeed become a challenge but as long as I only read for short periods of time then the story line seems to stay in my mind. But doing tasks that require memory is shot, thought process is shot and long term and name recall are shakey at best. Should be interesting should I ever return to my old job where memory is a must LOL. Try not to lose hope on the SSI approvals, most everyone is denied on the first try I think mostly in hopes that applicants will get frustrated and not reapply. Fight for what you deserve Lin. Hugs Donna > That is how my mind was as long as I was on the medication. Then my > insurance sent me to see a psychologist and had me preform a number of > memory tasks and I failed at so many of them it wasn't funny, yet social > security didn't see any functional assessments in my chart. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Donna, It is so funny that you talk about reading, because when I was talking to LTD case worker yesterday, she asked what things I did. I told her that I loved to read but since the memory loss and sight loss that I can only read for about 10 to 15 minutes at a time because my eyes go blurry and just don't get what I am reading.I do not know if she believes me, but at this point I really do not care!!! You are right with SS, they just want you to give up and do not give in to them no matter how frustrated you get! I have learned that no matter how tough it gets, I am not letting them win! I have only paid into SS for 22 years and now I want what I truly deserve. How dare they think that I am committing fraud, when everyday they give benefits to people that do not deserve a dime!!!!!! This is what angers me so much, because I could give them about a half dozen people that have committed fraud but yet they would rather take it out on me! Well I am not going to let this happen and will fight for the next 20 years if I have to! Well felt good to vent this morning and hope you are feeling better today! LOL and Best Wishes Always! DawnDonna wrote: It was pertty bad yesterday when I went for the IME and when he asked me what meds I was on I drew a total blank. Good thing I wrote them down because I knew damn well what I was taking and other than the neurontin I couldnt recall a single one. UGH!Reading has indeed become a challenge but as long as I only read for short periods of time then the story line seems to stay in my mind. But doing tasks that require memory is shot, thought process is shot and long term and name recall are shakey at best. Should be interesting should I ever return to my old job where memory is a must LOL.Try not to lose hope on the SSI approvals, most everyone is denied on the first try I think mostly in hopes that applicants will get frustrated and not reapply. Fight for what you deserve Lin.HugsDonna> That is how my mind was as long as I was on the medication. Then my> insurance sent me to see a psychologist and had me preform a number of> memory tasks and I failed at so many of them it wasn't funny, yet social> security didn't see any functional assessments in my chart. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Try not to lose hope on the SSI approvals, most everyone is denied on the first try I think mostly in hopes that applicants will get frustrated and not reapply. Fight for what you deserve Lin.HugsDonna Thanks Donna, My attorney went through the appeal process and asked me a few questions, and she said she would get back to me, if they heard anything before me. Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 How dare they think that I am committing fraud, when everyday they give benefits to people that do not deserve a dime!!!!!! This is what angers me so much, because I could give them about a half dozen people that have committed fraud but yet they would rather take it out on me! Well I am not going to let this happen and will fight for the next 20 years if I have to! Well felt good to vent this morning and hope you are feeling better today! LOL and Best Wishes Always! Dawn Bravo Dawn Bravo!!!!!! Everybody needs a good vent now and them !!! Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 How dare they think that I am committing fraud, when everyday they give benefits to people that do not deserve a dime!!!!!! This is what angers me so much, because I could give them about a half dozen people that have committed fraud but yet they would rather take it out on me! Well I am not going to let this happen and will fight for the next 20 years if I have to! Well felt good to vent this morning and hope you are feeling better today! LOL and Best Wishes Always! Dawn Bravo Dawn Bravo!!!!!! Everybody needs a good vent now and them !!! Lin Quote Link to comment Share on other sites More sharing options...
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