Guest guest Posted November 29, 2008 Report Posted November 29, 2008 Support Groups There isn't one in my area and I didn't know enough patients in the area to even attempt such, nor did I feel I could do it. But, isn't that such a glaring shortness in PF compared to other diseases. I go to my neurologist and see literature for many support groups and my rheumatologist and see more. Such a very small percentage of PF'ers are being reached by any form of support group, including online. > > > > > > > > > > From: Sher Bauman bofus@ > > > > > Subject: Re: a thought > > > > > To: Breathe-Support > > > <mailto:Breathe-Support%40yahoogroups.com> > > > > > Date: Saturday, November 29, 2008, 1:49 PM > > > > > > > > > > Yes, Kathy, it will succeed. You are already getting response. > > > > > I'm with you emotionally. I'm tired too of ONLY a " pink " color > to > > > > > be recognized. > > > > > I'm behind you in support however. > > > > > MamaSher, age 70. IPF 3-06, OR. > > > > > Nasturtiums > > > > > Don't fret about tomorrow, God is already there! > > > > > > > > > > * a thought > > > > > > > > > > No it won't be me running and I don't know a thing about > > > > > organizing a run so I figured it would take a year or 6 mos. > > > > > to plan.But my daughter is training for her 3rd Houston > > > > > Marathon in January,so she is where I got the fun run idea > > > > > from. I guess I sit in this apartment all dayand yesterday I > > > > > wanted to scream to the world about us.Not to take away from > > > > > anyone else's pain, but I am real tired of seeing pink > > > > > everywhere I go. I would really like more feed back guys and > > > > > after the holidays we could possibly get the ball rolling.I > > > > > guess I visualized, maybe someone has a connection some where > > > > > for this, and some one else has a connection for that some > > > > > where else, it may materialize. If it is to be, it will > > > > > succeed!!!!! !!!!!!!!! !. > > > > > KathyS.TX. dx/10/04 > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------------------------------- > > > > > > > > > > > > > > > No virus found in this incoming message. > > > > > Checked by AVG - http://www.avg.com <http://www.avg.com> > > > > > Version: 8.0.176 / Virus Database: 270.9.11/1819 - Release Date: > > > 11/29/2008 10:37 AM > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------------------------------------------ > > > > > > > > > No virus found in this incoming message. > > > Checked by AVG - http://www.avg.com > > > Version: 8.0.176 / Virus Database: 270.9.11/1819 - Release Date: > 11/29/2008 10:37 AM > > > > > > > > > Quote
Guest guest Posted November 29, 2008 Report Posted November 29, 2008 That's why you've got folk from over the Pond & Downunder as well as India on Board! Oh as well as your immediate neighbours in the North! Canadians I think they're known as!!! lol! GIO> > > > > >> > > > > > From: Sher Bauman bofus@> > > > > > Subject: Re: a thought> > > > > > To: Breathe-Support > > > > <mailto:Breathe-Support%40yahoogroups.com>> > > > > > Date: Saturday, November 29, 2008, 1:49 PM> > > > > >> > > > > > Yes, Kathy, it will succeed. You are already getting response.> > > > > > I'm with you emotionally. I'm tired too of ONLY a "pink" color> > to> > > > > > be recognized.> > > > > > I'm behind you in support however.> > > > > > MamaSher, age 70. IPF 3-06, OR.> > > > > > Nasturtiums> > > > > > Don't fret about tomorrow, God is already there!> > > > > >> > > > > > * a thought> > > > > >> > > > > > No it won't be me running and I don't know a thing about> > > > > > organizing a run so I figured it would take a year or 6 mos.> > > > > > to plan.But my daughter is training for her 3rd Houston> > > > > > Marathon in January,so she is where I got the fun run idea> > > > > > from. I guess I sit in this apartment all dayand yesterday I> > > > > > wanted to scream to the world about us.Not to take away from> > > > > > anyone else's pain, but I am real tired of seeing pink> > > > > > everywhere I go. I would really like more feed back guys and> > > > > > after the holidays we could possibly get the ball rolling.I> > > > > > guess I visualized, maybe someone has a connection some where> > > > > > for this, and some one else has a connection for that some> > > > > > where else, it may materialize. If it is to be, it will> > > > > > succeed!!!!! !!!!!!!!! !.> > > > > > KathyS.TX. dx/10/04> > > > > >> > > > > >> > > > > >> > > > > >> > > > ----------------------------------------------------------> > > > > >> > > > > >> > > > > > No virus found in this incoming message.> > > > > > Checked by AVG - http://www.avg.com <http://www.avg.com>> > > > > > Version: 8.0.176 / Virus Database: 270.9.11/1819 - Release> Date:> > > > 11/29/2008 10:37 AM> > > > > >> > > > > >> > > > >> > > >> > > >> > > >> >> ------------------------------------------------------------------------> > > >> > > >> > > > No virus found in this incoming message.> > > > Checked by AVG - http://www.avg.com> > > > Version: 8.0.176 / Virus Database: 270.9.11/1819 - Release Date:> > 11/29/2008 10:37 AM> > > >> > > >> > >> >> Quote
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