Re: Re: Sad Day- Langan coming off keto = (Kristi Mann)

[Guest guest]

I do not write often because I do not feel as much as part of the group since we

came off keto in January but I do read everything that comes in. Your email

really hit me hard and I had to write back. My daughter Wyaema, started the keto

diet in March 2003 and by August we were med free. We went 14 weeks without

seizures and we thouht we were doing pretty good. However Wyaema was loosing

weight and not developing, and seemed always moody. We decided in January to

take her off the diet. In March we had to put her back on Trileptol. I hated to

put her back on meds but we would go a few weeks without seizures and then we

would have a really bad day, and everytime she got sick her seizures got bad. We

have now started gaining weight, we are at 16.8 pounds and starting to slowly

develop more. We are still not sitting up, completly on our own. We do not laugh

and giggle and play. We pretty much sit around assisted or lay. I really think

the diet ended up slowing her down, even more,

developing because of such little carbs. Wyaema will be 2 on Oct 9, we are at a

6 month level. Dont get discouraged about the trileptol and dont get discouraged

about coming off the diet. You are doing what is best for your daughter. Keep

your head up, I know there is a bright future ahead for our kids. The trileptol

only made Wyaema sleepy the first couple of days but has really helped control

her seizures, 1 med is better than 12. I hope this letter gives you some kind of

hope.

Kristi Mother to Wyaema, 20 months, keto kid from MArch 2003-January 2004

Kristi Mann

Smile make everyone wonder what your thinking

May God Bless you today, tomorrow and always