Re: low ketones and seizures- Carolyn!

July 19, 2004

Carolyn

Earlier this year Claire was in hospital as she was having severe seizures

all night long. She had just dropped the last of her medication (Lamictal -

which she had been on for years) but we had been using a variety of benzo

drugs to try to stop the clusters of seizures at night (nitrazepam,

Rivotril, Clobazam). Nothing worked and I concluded the benzos were making

her seizures worse and also they made her really dopey by day and the

drooling prevented her from eating. Benzos were ceased and a small amount

of Trileptal, only 225mg at night, was started. Over the next few nights

the seizures reduced considerably and now she hasn't had a seizure for over

6 weeks.

Since the Valium made your son worse, I wonder whether he also reacts

adversely to benzo drugs. What other meds is he on? It could very well be

the meds interfering with the diet working. Since the diet seems to

increase the effects of meds many people find they have to reduce them

early on. One other thought, have the carbs in the meds been calculated

into the diet? If not, this could be interfering with his ketone levels.

Jill

At 03:00 AM 20/07/2004, you wrote:

> aël went to hospital 1 month ago for 3 weeks and it's worse since

> this hospitalization....We tried a lot of drugs but no effect and I don't

> want to go back to hospital for the same!

>

> So I keep him at home and I try to help him as I can, I did a valium

> intra rectal last night but it's worse so I have to wait for the good

> effects from the diet.Doctors said they can't do anything else for my

> son, they don't understand so....

>

> Carolyn, Nath's mum

Recommended Posts