Re: Malar Rash and other symptoms

[Guest guest]

A few newbie questions:

If any of you have experience with the malar rash I would appreciate sharing it.

I have been noticing that my cheeks and nose look flushed. That comes and goes.

Now along with the " sunburn look " I have a sort of blotchy red pigmentation too.

On one side of the nose are bumps, not pimples.

I have been wearing a lot of sunscreen, here in Southern CA.

Also, anyone experience a weekness and heavyness in the backs of your legs, from

just below to above the knee?

Lastly, I have had full blown pleurisy, but lately the breathing pain comes and

goes, it is in the same spot each time> ( I will discuss all of this with my dr

if they persist).

Your input is so appreciated,

Pam

Re: Question about Lupus 2004

Hi Maureen,

I really haven't heard much about the Lupus 2004, and would love it

if you could fill us all in with all that you do know. I would love

to meet you, but unfortunetly, I am on the wrong side of NY to be

able to attend. I live in a suburb outside of Rochester, NY. If you

are ever out this way do not hesitate to let me know.

I do know M. from www.butyoudontlooksick.com the member who

invented the spoons theory lives either in the city or near the city -

might be interested in meeting with you. I know she was on TV not to

long ago getting the word out about lupus and such. She is quite the

inspiration, and am sure she would welcome hearing from you. I do

know she is a member here as well. I believe you can contact her

through her site at the above address.

I look forward to hearing more about the Lupus 2004 and any other

info you would love to share with all of us. I wish you the best at

the meeting, and remember we are always here for you.

God bless and take care,

Hugs,

Deanna

> Hi, all!

>

> Sorry I haven't been posting much at all. I've been reading,

though, and have

> kept up with you that way -- this loop is great!

>

> I'm wondering if you've all heard about Lupus 2004, the

international lupus

> meeting in New York and if you're planning on attending? I'm going

to be

> speaking at a Lupus Foundation of America meeting and will be their

guest for a few

> days during the meeting. It would be nice to meet some of the faces

behind the

> names on this loop; maybe we could meet for coffee or lunch or

something?

>

> Look forward to your replies -- and to meeting, if possible! And

for everyone

> -- May 10 is going to be declared World Lupus Day and will be quite

a media

> event. Here's to further awareness and support for our confounding,

confusing

> " lupie " disease!

>

> Maureen Pratt

> www.maureenpratt.com

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